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Hi Nick,
Sorry to hear you have the virus. On the good news side:
- It is generally pretty simple to get rid of it
- You are unlikely to have any lasting damage from it
- You are unlikely to have given it to either your wife or children
In other words, don’t panic.
In terms of access to the medications (this being government/insurance) subsidised access it depends entirely on what country you are in.
If you were in Australia you could see me this afternoon, get a prescription, and probably start treatment tomorrow.
If you are in countries like the UK, USA, and Canada then treatment is available, but it is currently rationed based on all sorts of criteria, but typically you need to be at least a bit sick with the virus to get access. The downside of this is that it means young well people with Hep C are typically being forced to wait for treatment.
So, your plan A should be to see your local doctor, get the genotype, viral load and fibrosis testing done and then work out if, in your local area, you meet the local requirements for treatment.
If you don’t then a possible solution is to pay for your own treatment using self-imported generics. We do a lot of that here for patients around the world. I see patients online by video and make the correct prescription. I do need to see your blood results but the bottom line is you can get treated for under $1500 USD including all the medications and testing.
Definitely go for the “free” stuff first, but if you can’t get it that way… it can be done anyway.
YMMV
Hello Balance,
Yes, reducing it down is a good idea and Hep C nurses have a lot of experience in this so following that advice sounds like a good plan.
YMMV
Hello Kaju,
I am sure you will be reassured by the fall in ALT…
YMMV
As one of the brave explorers who took the leap of faith that this site was legit and that generic meds would work you earned it GF!
Plus all rhe encouragement you’ve given others over the years….
YMMV
When you stop the tablets you get rid of 1/2 every day so:
1 ->1/2 of 1 = 1/2 left
2 -> 1/2 of 1/2 = 1/4 left
3 -> 1/2 of 1/4 = 1/8 left
4 -> 1/16 left
5 -> 1/32 left
6 -> 1/64 left
7 -> 1/128 leftSo within a week you are down to 1% of the drugs left. 2 weeks and it is 0.01% and at 3 weeks you have only one millionth of the blood levels you had when you stopped.
YMMV
Hi Balance,
That sounds like a good plan. It will probably stabilise but best to keep a close eye on it because of the rapidity of that drop.
It takes a while for ribavirin to come out of a person’s system so in the event we need a dose reduction, or to stop it, we need to be on the ball.
YMMV
Hello SHarmon,
Sorry to hear you’re results are dragging. There is a lot of anxious waiting during treatment. It should be fine.
Patient Stories looks like the right place for this thread.
YMMV
Hi John,
That’s good going on the weight.
Time is your big friend with weight loss. The average person needs 18,000 calories a week, there are 9,000 in a kg of fat so … on 1/2 rations ~1 kg a week is about where it settles. When you’re heavier you can get close to 1.5-2kg a week but it slows down pretty quickly. Any way you look at it you need to be able to sustain the effort over a good period so it’s a matter of working up a customised plan that suits the person.
The key bits about protein are that:
- When you’re hungry your body is usually chasing protein, but the average person reaches of cheap an cheerful carbohydrate based stuff that is designed to be more-ish and does not fix the hunger. Protein tends to keep most people full for much longer.
- If you diet in a way that is calorie deficient you will lose weight (for a while) but if it is also protein deficient you lose muscle and this reduces your metabolic rate which leads to the dreaded plateau – you are eating less but not losing weight anymore because you’re back in balance.
- People who are a good 50kg over their “ideal” weight have a lot of muscle to carry themselves around – it’s like two sacks of cement – so as a result they have a lot of muscle, and quite a good metabolic rate… the trick is to lose as little of this as possible.
YMMV
Hi Balance,
I presume you are using Ribavirin. That is a pretty rapid drop. You should have another check of your blood count at rhe 3 week mark rather than 4 weeks.
YMMV
Well done and good luck. I look forward to hearing about your progress.
YMMV
Hi JohnSmith,
It’s normal to feel anxious and lost with Hep C. It’s a pretty lonely disease to have given nobody talks about it.
It’s unlikely that you have cirrhosis, however, if we keep worrying long enough and not treating you will eventually get there!
On the pragmatic side, you are also overcomplicating it and yes, you do worry too much about minute details.
The single best health intervention for someone with Hep C is to get rid of it. Then we can see what we are left with which will probably be not very much with somebody as young as you are.
I recall that you’re a big man and I’ve sent you my weight loss tips – these work really well. A patient yesterday has gone 125 kg to 65 kg over the last 8 months following the “Get enough protein and be calorie deficient and it will not only work, but it will keep working”. There’s more to it than that of course, but weight can be fixed too. It’s not as easy as the pill a day Hep C cures, but it’s not as hard as people think. I’m not much of a conspiracy theorist but it does strike me that the diet industry has a vested interest in their various wares working just enough to keep people hooked – like small jackpots from slot machines.
If you’ve had chickenpox you DO NOT need a vaccination – you’ve had the full power virus and been vaccinated with that and as a result will now be strongly immune to it (more strongly immune than you would be from the vaccine).
Google is both your friend and your foe. Without it, you probably would not have found us, but it does provide a lot of worrying information. I can assure you that almost all student doctors diagnose themselves with diseases they read about – welcome to the club of “a little bit of knowledge is a dangerous thing”.
Keep asking questions – the more you know the less you will worry about things that don’t require your attention. There are no stupid questions, only stupid answers.
YMMV
Hi Balance,
Yes, like sabrecat say riba is a lot easier without the interferon which was the main cause of the side effects.
Dose reduction is something we do have to do sometimes.
YMMV
Had just a few drinks whilst away for a few days and paid the price.
This would be one of those cases where you should listen to your body. If it’s telling you booze is bad it’s probably best to listen to that advice…
YMMV
Here are the approximate sales volumes (rather than financials) – they are accurate to +/- 10%
Up until 2016Q3 Gilead published their sales volumes (to analysts) but given the revenues from the drugs are known precisely (published by all the companies in their quarterly reports) we can calculate the yields. We also know precise pricing and volumes for some of the other drugs in other markets and relative pricing.
Anyway, the bottom line is that volumes between 2015Q2 and 2016Q1 at around 160,000 treatments per quarter and have now fallen globally to 80,000 treatments per quarter.
In short, we are losing the battle to eliminate HCV.
YMMV
Hi Mike,
Yes we do, and always have. It’s down in the footer section.
It’s the same one we use for our Telehealth Consulting Business and follows all the rules and regs we have to abide by which is basically nothing goes nowhere.
YMMV
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