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That’s wonderful news…….congratulations
YMMV
I like to think this is the sort of place every child wins a prize.
For most SVR first time round, in if not, there can be a next time.
And for all a place to share what has often been a lonely journey.
Mostly life is not about the destination and is about the journey but I have to say SVR is a damn nice place to stop in for a bite to eat, and if so moved maybe a glass or two of bubbly.
Thank you to everyone who contributes here and makes it what it is.
A special thanks to our moderators for all their hard work.
YMMV
There are many many many causes of rash. One that does have an association with HCV is cryoglobulinaemia
http://emedicine.medscape.com/article/329255-overview
The rash can look like lots of things but here are lots of examples…
https://www.google.com.au/search?q=cryoglobulinemia+rash&source=lnms&tbm=isch
There will be a cause, we should find it, and if possible fix it.
Steroids for rashes can be like killing a spider with a shotgun – it may well work but it’s not the best tool for the job and there will be collateral damage.
YMMV
Germans are more frightening.
Once upon a time I was at a hang gliding competition staying with 5 Germans. It’s a long story.
Anyway after the initial shock of eating dinner for breakfast, eventually the time came to go to the pub where some beer, quite a lot of beer actually, was consumed.
At the end of a respectable session I was invited to go drinking and explained we had already had quite a few. It was then explained to me that:
Beer is not alcohol, beer is food. Now we go drinking. Schnapps, ja?
The rest of the evening is a blur. I presume a good time was had by everyone but can’t be sure.
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Oops! Wrong category. Didn’t know whether to put it in EOT or VL anyway. Could a mod fix it please?
You’re right, we need a new category….
SVR, which for those that are interested is running at over 90%, in line with what’s expected for patients taking 2 DAAs.
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With two weeks to go it would be easy to get 4-8 weeks generic Sof+Dac to finish off with, the goal being kill off any remaining resistant mutants.
Chances are you will SVR but retreatment with 24 weeks Sof+Dac should work well with no prior NS5A exposure and is far less than most co-pays.
YMMV
I have no doctor to supervise the treatment, so I am looking for some help in this group.
We can do it online but what we do, when and why is listed on our doctor’s cheat sheet
It would be perfectly reasonable to just take the meds and do an SVR4/12. The suspense might well kill you, but the blood tests don’t impact on SVR.
Should I do a blood test before, during or after the treatment?
You appear to have enough baseline data (assuming you have a liver panel)
A rapid fall in ALT happens over the first week(s) and is quick and cheap.
Should I take the meds before or after meals?
Either is fine. With or without food, morning or night
I eat loads of fruit every day, will that affect treatment?
Almost certainly not, but if you are heading on for being a “fruitarian” you may well be deficient in some essential nutrients. A varied diet on treatment means if a particular food is causing an issue at least you’re not eating it tomorrow!
YMMV
My view on where we should be here is much closer to fully free speech than censorship.
Spam is typically obvious and just gets deleted.
Then there is the more difficult area of “mis-information”, but with the rate of progress today’s “mis-information” could in fact be tomorrows factual reality. For example there was a post stating that NZ would be funding them. Now that has not happened yet, but I have heard that active negotiations are happening. At some point that information will become correct.
We have had a couple of really well credentialed and well informed people here “scared” off
To me that means if somebody posts something that does not pass the sniff test then a “measured” please explain response is a good way to call them out.
Of course in real life most Aussies apply a “no dick heads” policy and just raise our eyebrows, shrug our shoulders and move on.
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Hi All,
I’ve been at the ASHM HCV training course all day so have a good alibi!
It was all, as expected in the trash.
I have restored the thread.
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Thanks Mike, it all seems clearer now. Most probably just a technical glitch after all… Maybe this belongs in Quote of The Day, but here’s another ancient Chinese proverb:
Dont login as superuser from a mobile phone
sorry, couldn’t resist!
Vororo
(see also: http://fixhepc.com/forum/fun-stuff-and-trivia/677-quote-of-the-day.html?start=24#11295)
From Super User Mike on his Superpower iPhone 6s. Thanks V!! (I couldn’t resist…
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That is awesome news!!!!!!!!!!!!!!!!!! Go you And I luv Grumpy Cat
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Basically as long as it takes you to fill in the trial agreement form, for the money to clear (3 days) and then the medication to ship (5-7 days).
Typically under 2 weeks from apply to receive.
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I use it because a friend of mine recommended it. It is 95% ordinary salt contaminated with various bits, including iron oxide (rust) that make it pink.
The kids (girls) like it because…. you guessed it, it’s pink.
It should be fine to use on your food. Fine grinders are best because then you get the yummy salty taste without having to put heaps on (if the crystals don’t dissolve you don’t taste them).
As for headaches I’ve never heard of it, but seems like a harmless experiment to do on yourself.
I await your SHR4 – sustained headache response @ 4 hours post cessation of rocksalt medication
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It’s a good question. I would suggest measure your B12 and if it’s mid range to high don’t take B12
While this is probably just you, or HCV related, it may require looking into.
Polycythemia (Rubra) Vera is the medical name for it if you want to Google.
Here’s what the Mayo Clinic has to say about it
http://www.mayoclinic.org/diseases-conditions/polycythemia-vera/basics/definition/con-20031013
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We discussed this privately but <30 mean old machine!
There is not an undetected or detected notation on this (which there is on most of the results)
Use a lab that does <15
The lower limit of detection is about <6 so anything in the range 0-5 will be undetected.
You need a real zero to clear but we can't measure that low, so we over treat by a working safe margin.
With GT1 for example SVR is typically 97% at 12 weeks (depends on your profile) but 99% at 24 weeks. To a government/insurance payer the extra 2% of not worth the extra 100% cost. If we just treated the 3% failures with 2 x the treatment length the cost only goes up 6% so it's a pretty logical decision to do 12 weeks and retreat failures for 106% when you weigh it up against spending 200% in the first instance to get there.
If you are privately paying you might reasonably decide that you would prefer 100:1 odds rather than 33:1 and opt for 24 weeks, but it is overkill for 97% and the last 12 weeks will be going into a body with no HCV.
Not an easy choice but you have to draw the line on treatment duration somewhere.
YMMV
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