“Some may say it’s probably an emotional response, but I have had (without going into detail for those having breakfast) a digestive response this morning and feel , well …. much better!! ”

Nope I don’t think its emotional at all. I’m finding the Ledipasvir a constipation station too
Which is stressing me out a bit. Probiotics seem to have zero effect. This is actually probably why people get headaches on the Harvoni too. Headaches and bowels are unfortunate dance partners.
Not sure what to do about all that.
Wish I could get a psychedelic liver picture too

By the way if you want to see people being given meds by liver clinics you just have to look on the Facebook page…there are quite a lot of them there…though it would be true to say many of them are Queenslanders. I guess we just don’t have the population pressures you have down south.

If you know your genotype and cirrhosis level it really is just a matter of finding a GP who is a decent human being. Greg Jefferies has been compiling lists of them in each state from what I have heard.
You can’t really blame the Public Hospitals for being slow and useless when you consider how poorly they are funded these days.

Ariel you might like to know I managed to get my friend with cirrhosis started on her meds. She took the script she had got from GP2U last December to her lovely (but totally clueless) GP, and he rang up the PBS…answered the two magic questions…what is genotype? and any cirrhosis, and they gave him a number. He copied out the script from the GP2U generic one, and looked at the PBS guidelines…no worries mate!
I don’t think she has heard from her liver clinic at all yet though I did tell her she should let them know.
Anyway she is rushing around with a whole new lease on life!

From the stats in that article you posted, there are quite a few people who would still be detected at end of tx…35% of Sof/Led 12 weekers in fact…even though 95% are ultimately clear at svr12.
Considering my obsessive tendencies, I think I might just leave it to fate, and not even go there.

Thanks LG..its all a bit worrisome, especially as I stupidly cancelled my specialist appointment once I had a script (on my GPs advice).
When next I see my GP I will demand 8 wks bloods and try not to overthink it till then. I am stunned at my difficulty with asserting myself with medical professionals generally….I can do it just fine with everyone else.
Hopefully practise will make perfect.

Good to hear you have a clearer picture now of your liver health, and congrats on keeping it in such good shape!
I too was impressed by my Fibroscan results…4.7kpa and a FIB-4 Score of 1.01.
I am doing twelve weeks, and the GP who prescribed for me (who had done a course on the meds) advised me to not bother with any bloods till 12wks after tx. Reading your story makes me wonder if this is a good idea however, and as I have a several blood requests lying about I could use, I am thinking of doing an 8wk bloods. However if they are not undetected I’m not sure what I’ll do, as I have heard people do still clear even if they aren’t UND early on. But who knows…you seem to have had a bit of a rough ride with tx and I don’t blame you for wanting to extend, rather than have to do it again, which is something none of us want to do.. I guess I will just wait and see how I feel at 8wks.