Forum Replies Created
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Yeah, but the negotiations fell through when he insisted on $47 billion in advance and each ones first born before he would sign.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi FlyingFox,
If you are going to be taking Daclatasvir then probably better to avoid grass….ahem, “medical” marijuana per below link (4th item listed). My body is a temple until at least the end of April.
http://fixhepc.com/forum/experts-corner/108-daclatasvir-warning-interactions-cyp3a4.html
More seriously, while we need to consider drug interactions I would also recommend that everyone consider whether anything they are taking whether legal, illegal, herbal, over the counter or prescription is necessary for the relatively short time we are treating. Anything that we put into our bodies has to be processed by either our liver or kidneys or both, which will already be trying to process the meds, dispose of dead viral particles and repair the damage that the virus caused over the years. So the less extra workload we put on these organs during treatment the better able they will be to perform these tasks.
Gaj gets off soapbox and goes to find some polish for his halo.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Paul,
Yes, I know. You probably couldn’t hear the sarcasm. Sof/Dac works out much more expensive than Harvoni. I based on total of 24 weeks for my script but here is the calculation for 28 days.
Sovaldi x 28 days = 27,980
Daklinza x 28 days = 20,987
Copegus x 28 days = 105Total = 49,072
Generic APIs
Sof/Dac/riba x 84 days = 1,2501,250/3 = 28 days. = 417
49,072/417 = 117 times (My first 12 weeks was at the older higher price so my total script would be 115 times)
I couldn’t buy from Costco because I’m not a member.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Lots of excellent advice there LondonGirl.
“Many GPs are not totally up with the latest on all conditions…..”
This is something we all need to keep in mind when talking with GPs and asking for their assistance. In almost all cases their previous experience with Hep C has been to order tests to confirm diagnosis of their suspicions and then write a referral for the patient to a specialist or clinic.
Suddenly over the course of the last 2-3 months they have got patients who are taking control of their own destiny and probably know almost as much, if not more, than the GP does about the virus.
It will be disconcerting for many due to:
a) No longer being the confident ‘expert’ that they usually are in their surgery.
b) The learning curve required as a busy professional to allow them to be able to provide good advice with the confidence that they are acting in the best interests of the patient.Given the short length of doctors appointments it may be advisable during your meeting to use the approach suggested by LG regarding supporting your adult decisions. Give them a quick summary of the generics path you wish to take, how it is safe as per the printouts in your hand and how you would greatly appreciate their support but that you understand they may need to consider their decision. Then provide the GP cheat sheet plus a printout of the “Testing Provisions” blog, the site Home page, the main Getting Treated page and anythIng else you think may reassure them or trigger your particular GPs interest. Explain to them that you realise they are busy but here is some reading material for them to study later to assist them in their decision (don’t forget to run a highlighter pen or similar over the FixHepC web address) and ask when they think they will be able to provide you with an answer regarding support. Basically, show them this is a considered decision on your part that you have thoroughly researched and are confident in but allow them the time to bring themselves up to speed.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Yes, it is a worry! I go for my four week bloods this Wed so I sort of know the feeling and while I feel better since I started treatment it isn’t always consistent and varies from day to day so there is that nagging thought “What if it’s all in my head?”
But recently I have been seeing/feeling improvements that just couldn’t be happening if I was imaging things and this gives me much more confidence. I’m sure you will find the same over the next couple of weeks and will, at least, show a massively reduced VL at 4wks.G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Dan,
I agree with Sirchinenge that changing meds if your viral load isn’t UND at 4 weeks is not the correct decision. Please see the Doc’s post below about when different people attain low viral loads which can take up to 8 weeks in some cases. But also note that even then he is not talking about only UND but also some who will be in the <15 group at that point. In fact I have read in a number of the trials where people have still been showing <15 at EOT and have then gone on to be UND at SVR12 or 24.
http://fixhepc.com/forum/experts-corner/287-viral-load-on-treatment-what-to-expect.html
I also agree that it would help if you have someone you can confide in with your concerns about both your treatment and the other health issues you have. I know from experience that this can be difficult with the stigma attached to hep c but it is important for all of us to share our thoughts and feelings with someone we trust. A close friend or relative perhaps? Or if that is not possible, your GP as you seem to trust him enough to have informed him you are treating with generics? Otherwise, I am sure that there are many of us here including myself who would be happy to Private Chat with you from a laymans POV if there are worries that you don’t wish to discuss in open forum.
How is the sleep going? As I’ve said in a few other threads I believe it is important to sleep at least reasonably well during treatment so if you are still having problems please discuss that with your GP too, and check drug interaction charts if he wants to prescribe something. You don’t want to bomb yourself out each night but at least a few good nights each week until you get use to the meds will help I’m sure.
Hope this helps
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Gold!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Wow, that Harvoni stuff is dirt cheap compared to some. Just checked my script and best price is 115 times higher than my generics……and I bet the quoted prices don’t even include shipping!
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
I’m thinking that maybe because Chejai already has an appointment for this morning, the app sees that and gets ready to launch and she just needs to go into the virtual waiting room at the right time and it will all work. If Rusty or someone who has used the iApp could confirm that I’m sure it would be useful for others in the future.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
That’s interesting. I’ve had lower back/hip pain whenever I stand up after sitting for a while for many years. Had to stretch and ease into walking after which it would gradually improve as I moved around. Always thought that it was old age and motor cycle accident related. Reading this I’ve just realised that it has gone sometime since I started treatment. Hadn’t even noticed!
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi Lin,
I experienced similar for the first week or so but it seems to have gone now. Perhaps wait and see if yours does before changing. We all have times when we are obviously off color and not at our best at work so I don’t think your coworkers will notice or say too much other than maybe keeping out of your way just in case it’s catching.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
If you do find you suffer insomnia and decide to change timings here is a link to Dr James recommendations for how to do it.
http://fixhepc.com/forum/patient-stories/326-time-of-day-to-take-medication.html#3069
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Welcome Jaz,
You’ve made a really positive step by seeking out treatment now that we have these new meds. There’s plenty of good information and support here. Post away if you have any questions or just join in the general banter.
Great to hear that Canberra Hospital is supportive of generics which is great for your monitoring and will give confidence to others in your area contemplating treatment.
G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
At least 2-3 litres for me. But only other drink is coffee in mornings and no soft drinks etc
Melbourne has very pure water almost like rainwater, filtered through forest and very low gh & kh hardness.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Bill,
Make sure you drink plenty of fluids, to the stage of ‘flushing’ your body by the evening. Seems to help.G
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
