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7 June 2016 at 10:04 am in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18582
Hi Pat
Copy the above “fixhepc.com” cartoon and send it into your local newspaper with a letter to the editor advising all and sundry that there is excellent support available for the 44 patients available at fixhepc.com. No need to travel to the big smoke or make unnecessary appointments with the local GP (and wait 1hr in the waiting room before he/she sees you). They’ll only need to see their GP a couple of times to get some bloods done.
BTW, GPs are in for a rude shock once online consults become medicare rebatable …
Just being cheeky.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂[video]http://https://www.youtube.com/watch?v=AndAkUQznQo[/video]
This is my case at the moment … the wind and the rain over the last two days has blown a lot of lemons, oranges and mandarins off my trees out the back … & the cumquats off the tree out the front (which is loaded & has made quite a mess … )
I’ve gotta get home
There’s a garden to tend
There’s fruit on the ground …
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂I just love the way Keith Moon drums … died way too soon.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Dr Freeman was onto it back in October last year … SOF + DCV as the pangenotypic cure for HCV … you wouldn’t even need a genotype test done… if you had GT1 – GT6, or any combination, the Darvoni would be the cure all. See:
http://fixhepc.com/forum/media-news/1053-darvoni-story.html#17255
From my understanding, the only reason a patented version has not been developed is Gilead refused BMS’s offer to work together on this … and has been developing its own pangenotypic NS5A inhibitor called Velpatasvir (VEL). SOF + VEL has been reported as having very high cure rates for all genotypes, but seems to have more side effects than SOF + DCV.
It’s all about money. Gilead simply wants to corner the market with a one pill cure all. However, there’s already a generic one pill cure all called Darvoni.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Good story … except the last few sentences of scaremongering … imported generics can be risky … really?
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Hi Ariel
That was a nice summary of what this forum is for … support for HCV sufferers going through HCV treatment. I don’t know how the TGA bureaucrats can honestly justify their actions with their conscience. Would they do the same thing if they, or a member of their immediate family, were suffering from HCV and couldn’t get timely treatment?
Probably. They are not trained to think outside the square … they think in black and white … there’s no shades of grey … and they are being directed by others above … they’ve got a mortgage to pay. The buck stops with Susan Ley, the Minister for Health. Would things be different if there were a change in government on 2 July 2016. Only one way to find out!
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂[video]http://https://www.youtube.com/watch?v=qe2LsD1fGCU[/video]
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Hi Arial and Beaches
Here are two links to articles by Choice on yoghurts, probiotics, and prebiotics
“ … probiotics by themselves are not enough to increase the activity of good bacteria. You should also eat 10g per day of prebiotics, which are non-digestible carbohydrates that act as food for the good bacteria.”
https://www.choice.com.au/food-and-drink/dairy/yoghurt-and-ice-cream/articles/probiotics
“Probiotics are live microorganisms – such as bacteria, yeasts and fungi – which in adequate amounts may have health benefits. Studies have shown they can improve digestion, help protect against disease and enhance immune function. Strains of lactobacillus and bifidobacterium bacteria are the most commonly used probiotics as they can survive the passage to the gut. Probiotics are most widely available as dietary supplements in tablet, capsule and powder forms or as a component in yoghurts and fermented dairy drinks.
Prebiotics are non-digestible food ingredients that can increase the activity of select “good” bacteria. Prebiotics naturally occur in bananas, asparagus, leeks, onions, garlic, chicory and wholegrains like wheat, rye, barley and oats. Savvy marketers spruik their benefits in foods including breads and infant formulas.”
Therefore, the best advice according to the above, if you live in the Eastern States, is to buy the Vaalia natural yoghurt (for the high probiotic count) and chop a banana into it (for the prebiotics and to add some natural sweetness).
I used to be on PPIs, but after changing my diet, and including the above, I haven’t taken them for years now.
Try and include garlic, onions and asparagus (cheap at the moment) into your evening meals too.
Cheers
GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Hi Beaches
I hope that you haven’t suffered any storm damage at your place.
I just saw footage of the damage at Shelly beach on the news … some of the restaurants/cafes really coped it.
Poor old Coogee Surf club copped it too.
Saw Midnight Oil at the Coogee Bay Hotel just before they broke up … their way of saying goodbye I guess … considering they played there a lot in their early days (& in Manley) and even a wrote a song named after Wedding Cake Island at Coogee …
[video]http://https://www.youtube.com/watch?v=j3FQwovIJw0[/video]
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂Hi Ariel
I’m glad to hear that yoghurt helps.
Bear in mind that not all yoghurts are equal. The best ones are the natural pot-set ones with live ABC cultures (i.e Lactobacillus acidophilus, bifido bacterium, and lactobacillus casei).
I love yoghurt and regularly eat Mundella Premium yoghurt. It’s well known here to be the best, and to have the highest count of probiotic bacteria per 100ml, but I don’t think that it is sold outside of WA. Its ingredients are listed as: whole milk, non-fat milk solids, and live cultures. In general, yoghurt quality reduces as the list of ingredients grows. The next best pot-set yoghurt is VAALIA. See:
http://www.drdingle.com/yoghurt-report/
“Unfortunately many of the yoghurts tested had low probiotic bacteria counts. In particular, the large commercial yoghurts had as little as 9,000 times fewer probiotic bacteria than the brand Mundella. This is largely due to the way the yoghurt is made. Mundella is “pot set,” that is the bacteria are cultured in the containers in which they are sold. The highest count of 18 billion bacteria per 100ml serving was found in Mundella. These levels are in excess of most of the probiotc powders one can purchase from a chemist or health food store.”
The table below shows the number of live bacteria per 100 grams.
Yoghurt Bacteria per 100ml
SKI 2,000,000
UNCLE TOBYS 120,000,000
JALNA 300,000,000
YOPLAIT 410,000,000
BROWNES 600,000,000
NESTLE 1,300,000,000
VAALIA 11,000,000,000
MUNDELLA 18,220,000,000I hope that this helps.
Cheers
GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂6 June 2016 at 1:08 pm in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18509Hi Ariel
You have certainly found a good GP. When I grew up, my doctors were like that … It was a different era.
By far the best doctor I’ve had is the neurosurgeon who did an emergency operation on me and saved my life … very, very lucky … to get the best neurosurgeon at the time who just happened to being doing his ward rounds when the ambulance took me to hospital.
In my initial appointments with him after getting out of hospital, he took the time to get to know what made me tick, got down to my level, and progressively switched my focus from the negative to the positive. He made me feel like his miracle patient who survived against all the odds and, since I’ve made it this far so quickly, there’s nothing stopping me from achieving anything that I wanted … but I had to want to do it. He simply gave me the power of positive thinking.
It worked a treat. When I was in rehab, I witnessed others with less severe injuries than me, with negative attitudes and feeling sorry for themselves, plod along and not seem to make much progress. On the other hand, I was looking forward to my next appointment with my neurosurgeon to tell him about the latest milestone that I had achieved. He used to sit back with a big smile on his face, listen to what I had to say, and then make me feel like I was one in a million & encourage me to keep on pushing myself. Looking back, I realise now that he was the one in a million. I was just one of his patients.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂6 June 2016 at 8:29 am in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18490You couldn’t do any better than that.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂6 June 2016 at 7:45 am in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18488HI CJ
Glad you liked it … unfortunately, it’s too true …
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂6 June 2016 at 7:45 am in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18487HI Fitz
You can be The Scarlet Pimpernel … and post it here, and there … you can post it anywhere …
To everyone else, feel free to cut and paste the cartoon and post it anywhere you wish …
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂6 June 2016 at 7:44 am in reply to: GT2 Honks About Generic Sofosbuvir +Daclatasvir (SOF + DCV) #18486Hi Ariel
You are very lucky to have a good GP who puts your health ahead of his/her own self interests. Unfortunately, 6min medicine has become entrenched in this country. Anything that requires a bit of thinking, or ‘research’, is put in the too hard basket and palmed off to someone else (and have to wait months to see) … next patient please … here’s an antibiotic script for your runny nose and another repeat of Ritalin for little Johnny … next patient please …
This is a gross generalisation … there are good GPs out there, but unfortunately they are in the minority. I would like to ask the majority, to look at themselves in the mirror tonight when they are brushing their teeth … and ask themselves, what happened to that bright eyed med student who went around ad nauseam telling everyone how many thousands of patients they were going to cure … well, here’s your chance … and, in the main … you’re asleep at the wheel.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected 🙂 , FBG 11.9
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
🙂 (Accu-Chek Mobile & Omron Auto BP Monitor) 🙂 -
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