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  • in reply to: FixHepC – Party Playlist #29543
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    See if you can not smile at this Bob Dylan cover…

    https://www.youtube.com/watch?v=VKFgLNBpQK0&feature=youtu.be&fbclid=IwAR2i7k88eTfE2P9bhhM-q03wTLSM3LX1ylt_ALSKxrWG-R0ORh0tgUJ9cNA


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Going to self medicate when drug arrives #29526
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Sherif,
    I guess it depends on the pharmacy. This site, FixhepC, helps people safely and legally obtain generic hep C meds. They can be completely trusted, not everyone can, do your homework is the best idea. Have you looked at the home page?
    All, or most of us here (1000’s) have done exactly that- ordered our meds, enjoyed the support, medical advice, and got cured.
    best of luck!


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Cirrhosis Stage F3 Hep C #29525
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Jerry,
    Welcome, like Mar says, I was one of the lucky ones, I had end stage cirrhosis, got treatment here and it has melted away completely. This is not common but improvement is very common- and I was F4 for 15 years, so at F3 you still have plenty of time to rebuild your liver.

    You will see the general advice on lots of posts- take the meds at same time every day, with food, and drink plenty of water while on treatment. I have seen 1000’s recover now, always nice to see someone about to start treatment/kill the virus. I felt way better, pretty much straight away, in a few days, but I was getting sick so the inflammation going down made a big difference, fast. For some people the improvement is more gradual.

    Please check in every week or so, love to hear how you are doing.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Am I considered cured? #29460
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    YES IT IS!! you are done and dusted. Great news Oregondaisy!!
    #magic# #magic#

    I heard a good analogy the other day from a UK doctor- he tells his SVR patients, that you are now completely cured, don’t get confused in the future if you are tested and it shows antibodies- those are “just a stamp in your passport- they show where you have been in the past, not where you are now”


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Is itching common with hep c? #29410
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Apogal,

    I have to say, I did 24 weeks treatment- I wasn’t undetected until 18 weeks- had failed 2x before so the skin improvements were not my focus, I didn’t track when/ how much it improved on treatment. Everything I noticed about feeling better was so marvellous- I emerged realising skin was better too.
    Pretty sure it took a while but I had bad cirrhosis so you would expect it to sill be an issue until that was cleared up. I didn’t have fatty liver surprisingly, as I am a fatty!

    Drinking lots of water is the key, especially for you at the moment, with so much dying virus to be flushed out of your system, it could well be the itching will be worse before it is better while your body adjusts to all that change happening. It is going to be cool hearing how it is going for you, let us know every week or so?


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Is itching common with hep c? #29408
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I had lots of itchy patches and responses to clothing, shampoo, food and sea etc for the 30 + years I had Hep C.

    I had ecxema, psoriasis, dandruff etc- not charming…. I had no idea they were HepC connected- specialist never said a word- the psoriasis made me ineligible for a pegylated interferon trial at one point.

    I also had cirrhosis- they sound the same and people often swap the words around! Mine got bad, decompensating, and yes skin itchier at that point.

    Then- tah dah! #magic# FixhepC, got meds, survived, cured, no hep C, now have none of the above, I can wear what I want, use hotel shampoos, now there are tubes of cream gathering dust in the cabinet..

    And even the cirrhosis, has melted away against all expectations to a normal liver.
    So, imho, the best treatment for the skin, not ‘just’ liver is DAA’s, and my advice is to everyone- don’t wait, get fixed. Best $ I ever borrowed and repaid.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: World Hepatitis Day 2019 #29380
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is an article from NZ Doctor Magazine from that trip, it is paywalled so just pasting in, no link

    Aussie doc urges GPs to join a once-in- a-generation hep C treatment drive

    ScreenShot2019-08-19at9.15.28AM.png

    ctaylor@nzdoctor.co.nz
    Friday 9 August 2019, 01:49 PM

    Australian GP James Freeman says finding hep C patients to treat is getting more difficult and the help of GPs is urgently needed
    The man behind Australia’s hepatitis C “buyers’ club” is urging New Zealand GPs to get involved in treating the disease, which he describes as one of the most rewarding experiences in medicine.
    But GP James Freeman is also warning health decision-makers in this country not to follow the lead of the Australian Government by setting time limits on funding hep C drugs.
    Speaking to a small audience at the RNZCGP conference in Dunedin at the end of last month, Dr Freeman described his personal experience of getting involved in hep C treatment.
    His talk came just three days before the Ministry of Health and Pharmac announced that more than 2000 New Zealanders with hepatitis C have been treated with direct-acting antiviral Maviret since it was funded in February.
    Australia spends $1 billion on hep C treatment
    The Australian Government has committed $ 1 billion dollars over five years to tackle hep C. An estimated 230,000 Australians are living with the disease.
    However, when asked by an audience member what Australia can teach this country about how to deal with the disease, Dr Freeman says, “What Australia can teach you is how not to do it.”
    Finding and treating the first 25 per cent of patients is easy, he says – and after that it gets increasingly difficult. “It’s just going to get harder and harder. In Australia in the first year, we treated 40,000, in the next we treated 20,000, next year it’s going to be less than that. We’re going to have to work to find these patients.”
    He says a relatively tiny amount of money was spent on awareness, and if New Zealand does the same “you’re shooting yourself in the foot”.
    He says the health minister who championed the hep C funding in Australia was replaced by a new minister who gave it a lower priority. “I don’t think he understands that we run out of funded treatment in a year and a half.”
    Pharmac says the current funding for Maviret in New Zealand isn’t for a fixed period. But Dr Freeman says it is still vital for GPs to find patients to treat.
    “Everything needs to be done to wheedle patients out of the woodwork. People with hep C are going to die.”
    Unorthodox methods to access drugs
    Dr Freeman says hepatitis has a long history. It was known as far back as the days of the Roman legions, but it was during World War II when “hot blood” transfusions from person to person were common, that it spread around the world.
    He met his own hep C “patient zero” in 2014 and he began to research what treatment was available. Drugs had been produced but they were very expensive. “They were the same price as diamonds, gram for gram. It really was your money or your life.”
    After meeting a South African doctor who recounted how people had started importing generic antiretrovirals to treat AIDS in that country, and also inspired by the film Dallas Buyers Club, Dr Freeman decided to do the same for hep C, setting up the FixHepC Buyers Club to access generic drugs from China and India, which he tested on himself before treating his first patient.
    As word got around more patients started knocking on his door. He “accidentally” treated the retired editor of the Sydney Morning Herald, and it ended up on the front page.
    Within three months the Australian Government announced a funding deal for the drug Epclusa.
    ‘Once in a generation’ opportunity
    Dr Freeman describes it as a once-in-a-generation opportunity for doctors. “It’s our first-ever cure for a virus. I think that’s fantastic.”
    Some New Zealand GPs have been reluctant to get involved with hepatitis treatment, fearing it will entail a lot of extra unpaid work, but the pan-genotypic Maviret is regarded by the Hepatitis Foundation as relatively simple to prescribe.
    Dr Freeman would like to see more incentives for GPs to treat hep C patients so it’s not something else they are being asked to do without recompense. “The Government needs to be realistic.”
    However, he says being able to cure patients of a debilitating and fatal disease is incredibly rewarding and the gratitude shown by patients is unlike anything he has experienced.
    “They’ve been crook for so long – it’s like being reborn. There’s a brilliant opportunity to get involved in this.”


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: World Hepatitis Day 2019 #29354
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Thanks Coral and Mar

    I love these night time ones- I defy anyone to drive past these and not notice them

    expocentregreenland.jpg

    NewtonRdofframp.jpeg


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Day 32 of Harvoni first blood check #29338
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    So pleased it is going smoothly for you Karen. I love thinking- there is another person getting free, more virus gone, the world a better place for it.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is a great article about NZ’s leading hep C doctor Ed Gane, out today, and look Hopeful425, has the butterfly being tattooed in it. NB it needed to be that big or would be blobby, if you are planning one- I’d planned smaller! But didn’t hurt at all, and I’m a sook.

    https://www.stuff.co.nz/national/health/113364268/national-portrait-hepatitis-c-treatment-pioneer-ed-gane


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    IMG_1716.JPG
    Do it Hopeful425! I am aware of only a couple of others…… it makes a cool tattoo:


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Pill number 1 today #29279
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi KarenB, welcome

    Big day when you take the first pill! Geno 1b has great cure rates. Drinking plenty of water and sticking to a routine is the main advice. I had to take iron supplements a couple of times a week as well as iron rich foods, with vit C for a long time, including on treatment.

    all the best, let us know how it is going


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Just started treatment #29242
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    That is just great news, love hearing you are feeling that freedom from the virus- enjoy.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: 8 week blood test #29197
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Great news Hotdog!

    Extremely important to keep taking the whole lot- the virus is a tiny little dodger and can be just out of sight of the tests in a minute amount. Taking the whole course hoses out any in hiding.
    :+1:


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Butterfly at EASL 2019 #29131
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    More from EASL, we had a great time, great reaction

    https://www.stuff.co.nz/national/health/112029274/kiwi-butterflies-get-support-as-global-symbol-for-elimination-of-hepatitis-c


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

Viewing 15 posts - 16 through 30 (of 369 total)