Forum Replies Created

Viewing 15 posts - 46 through 60 (of 369 total)
  • Author
    Posts
  • in reply to: Flu during treatment #28838
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Chris, welcome.
    Hmmm that is tough, I would say it sounds like actual flu or chest infection or whatever, not the treatment because what they mean by flu-like symptoms is temperature changes, aching bones, shivers, maybe headaches- but not the chest or much runny nose like actual infection or bug brings.
    I’m not a doctor, can’t answer if it matters on treatment but lots of people have all sorts of stuff happen in the weeks on DAA’s, never heard of there being any connection with flu and not getting cured.
    I’d say the usual advice, keep up fluids, watch your temperature, take paracetamol. Hope you feel better asap. #flower


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Having Issues #28816
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Jessica,
    That’s all ok, is quite common to need a photo ID, or so I have heard. It is just start of day in Australia right now, I’m a couple of hours ahead in NZ. You can wait until you hear, or go ahead, talk to the DHS see what they need- a photo from your phone might be fine – it is just ticking the boxes, making sure everyone is who they say they are, getting the right meds to right person.
    I know it seems really unusual to be importing your own medicines, but it really isn’t, is routine, and there is routines to go through it.
    Why it seems so intense, I think, was for me, is this isn’t just any mail order package!! Our lives and futures are in it. Sounds like yours is close! ;)


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: NZ News #28813
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    We have got there at last, free treatment for NZ from 1 February.
    https://www.odt.co.nz/news/dunedin/jubilant-over-drug-funding?fbclid=IwAR3zvK_AU3TIeNDfh-DhvAm-eyCcsDtLFa8HsinTLI5X-WNdn0jlacpljRA


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: NZ News #28792
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Congratulations Jessica, the waiting is hard, but really it will seem like nothing soon. You are underway, that is good news.

    That is the great thing about here, FixhepC, doesn’t matter if we need it in NZ, US, or pretty much anywhere in the world, they can, probably have, get it to people.

    I can imagine how you are going to feel in the new year, when you receive your meds. Look forward to hearing about it. #flower


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: NZ News #28787
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Dr James helping make noise for us here . Still unequal treatment, only vpak for geno 1 !’s

    If it wasn’t for FixhepC, I don’t know what this country would have done. So many of us have been saved this way.
    https://www.newsroom.co.nz/2018/12/12/359182/the-race-to-eliminate-hepatitis-c


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: EOT #28757
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Just the best news Ron, and the whole point of it all. Good luck with the cirrhosis. I have been lucky, mine has retreated all they way back to normal from decompensating, so it is possible. That reminds me, must update my profile!
    #magic# #magic#


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: FixHepC – Party Playlist #28753
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    The format of this is I can’t slide along, four songs,
    15492381_1647658508866851_1955476070498406960_n.jpg
    they are all good but the last cover, Marlon’s voice….
    http://95bfm.com/bcast/friday-drive-w-marlon-williams-november-30-2018?fbclid=IwAR0TOZMlB6mO7tccOrxHK69eA1FsZnSVW-_5ESWTGfiTyz1fQAR3KhcjUgw


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Project Butterfly #28720
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Some more butterfly traction
    http://www.scoop.co.nz/stories/GE1811/S00070/changing-the-world-from-new-zealand.htm?fbclid=IwAR1n6MxPyRdLMkrmLG8Nq7frZgfvVO9DGaC3eOd7jTFrY5xVIio4uEfeJkA


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Shorter Time for Treatment (?) #28710
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    It looks like the reason for shortening treatment is to save money. With generics this is much less of an issue. Doing a bit longer makes sense for many of us.
    The 8 week course for Mavyret now is pretty quick! We used to do a year.
    It is a shame you are having so many side effects, it does happen but is fairly uncommon.
    Timing the meds, drinking a lot of water, going for a daily walk, eating well, those good routine habits seem to help. I hope it is over quickly for you and you feel better soon.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: GT3 #28673
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi, :+1:

    The odds are so extremely good, as in rare medical miracle good, for all of us with these great new meds, GT3 is only slightly more likely to need another go. I was in that hardest group, had failed the old treatments twice, g3, had it decades, cirrhosis, on the slide down. I wasn’t undetected I think until about 18/24 weeks treatment, but I won the fight this time. Don’t even worry about all those stats, it is the finish line, takes a while, but sooo worth it.

    Great to hear you have started. I felt better really fast, others that is more incremental, but your virus is getting marching orders, right now! good luck.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Hello. This is My first time on Fix Hep C ! GT 2 #28658
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Welcome Bobraas!
    I had geno 3, not 2, but also for over 30 years. I got cured here, 3 years since I started treatment. Life for me divides sharply into “before” and “after'” because I had no idea I would feel so much better, when cured.
    Looking forward to hearing that happening for you.


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Hello Community #28634
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Cheers.
    An update on that NZ story, and I think it shows how important media pressure is.
    I know that many people, senior doctors and organisations have asked Pharmac for more info, and a rough timeline of when Maviret will be available, having really raised expectations about Oct 1. Prof Gane told a conference recently he expected by Christmas. No answer from the govt…. but a couple of days after calling them cruel in a headline got their legal/comms dept busy and they came up with another response to the whole sector- not until next year, no idea when.
    This ….. does not meet with my approval, to put it politely.
    https://www.odt.co.nz/news/national/hep-c-drug-delay-confirmed?fbclid=IwAR0iweMvMen8suACBuMsWKlDloKPCMaum8mV44Jn3n811AqcrHVkY1HxoLo


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: FixHepC – Party Playlist #28629
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I’ve been listening to more of that singer, LP,
    Here is one for you Coral! Her voice is bloodcurdling in this cover
    https://www.youtube.com/watch?v=BdAgB0SKOoU


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: Hello Community #28628
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Great post Coral, :+1: :+1: #flower #flower :+1:

    I was thinking that it is a holiday weekend here, which means exam study again for me (for the last time), and it must be exactly 3 years since I was waiting for my meds to arrive.
    Pretty sure I would be fertiliser by now, I was out of time, if I hadn’t found FixhepC, and taken the leap- now I am well, the world is my oyster. We have seen some great stories- yours is one of them Coral!

    But as far as treatment goes in NZ, some things change, some things stay the same. (nb- it says I founded a buyers club- I didn’t- I found one- this!!!. They always get something wrong)
    https://www.odt.co.nz/news/dunedin/further-hepatitis-c-drug-delay-cruel?fbclid=IwAR0C-cttpICOaFX8B0TSaEtP4XfQBE5WIVbK2ydV7Y7YF8P5c-maF5Vf4iY


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    in reply to: стоит продолжать пвт #28616
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    :) :) always great news!!
    #magic#
    butter-man9C257004-4789-6E63-A4EE-E9DFA8D3E142(1).png


    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

Viewing 15 posts - 46 through 60 (of 369 total)