Forum Replies Created

Viewing 15 posts - 61 through 75 (of 369 total)
1 2 3 4 5 6 … 23 24 25
  • Author
    Posts
  • 6 October 2018 at 12:23 am in reply to: FixHepC – Party Playlist #28608
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    It’s the weekend, must be time for some music! I’d never heard of these people, but she is a mesmerising vocalist

    https://www.youtube.com/watch?v=wDjeBNv6ip0

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    30 September 2018 at 12:54 am in reply to: Good news #28597
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Brilliant to hear Balance! puts a smile on my face to start the day. Enjoy it all being a thing of the past, with an interesting adventure to cure along the way. #magic#

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    20 September 2018 at 11:24 am in reply to: FixHepC – Party Playlist #28570
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    love Courtney Barnett Beaches :+1:
    This has a great group energy
    https://www.facebook.com/metgesmusicmgt/posts/10156563323369061?__xts__%5B0%5D=68.ARBL-yPSMFeEA7JDeM1emTZTiqKdZ9NF1kxScqLM2a50M7bq265RWGfiT5pr6-FNwofPoa6-_lZ-t4MrKj7WE17HJ2qvGlzmDIEXbfKpmVBn97Y97hEvLUIb3_P72cPhfVyxp1nSYmwS2AfEmEVkH0BytCXmJBNN39S4FeA1hxJLtCJW5pLUgA&__tn__=C-R

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    3 September 2018 at 11:36 pm in reply to: Newbie and scared #28530
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Glen- while it would be awesome if there was a Dr James AND a Dr Freeman, imagine how much could get done! they are in fact one and the same :P Dr James Freeman it is.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    1 September 2018 at 9:39 am in reply to: Newbie and scared #28523
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Excited for you to be here Glen; it is almost 3 years since I landed here, saw the media etc, realised “This is for real. Maybe I will be ok” . And it was, I am. :)

    It is always a thrill to see others getting their moment while all that sinks in. It never gets old, and I have seen thousands do it. Looking forward to watching you hitting the milestones.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    31 August 2018 at 7:13 am in reply to: A story from communism – What is … “soon” #28513
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I like how you spell things out RHF. It is incredible to me how powerful stigma is that stops people even finding out, let alone getting cured when they need it- and everyone needs cured.
    This butterfly campaign really needs to take fire in the world, it is going to- it makes people walk towards the message, not step back. Here on our Hep C Action page we have 3 versions of the poster which anyone can just print out, and put on a noticeboard; or send to decision makers, it is a free public awareness campaign that will work in public transport, spaces, billboards etc.
    Please share! This is the FixhepC logo version- the original! There is also one with blank space for logo and one with the No Hep logo.
    Poster: https://static1.squarespace.com/static/591fb1cfb3db2b2e45f3350d/t/5b87edcf4fa51a22c692d68a/1535634902888/Old_tired_FixHepC.pdf
    website for other versions: https://www.seedthechange.nz/hepc-action
    cafe-reader3.pdf

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    31 August 2018 at 7:02 am in reply to: FixHepC – Party Playlist #28511
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Nina Simone all class as usual, one for us here
    “I got my liver” :)

    https://www.youtube.com/watch?v=L5jI9I03q8E&feature=share

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    26 August 2018 at 1:48 pm in reply to: after treatment ends how long till i feel normal and have energy #28506
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Hi Tanya,
    Seems common that people at the end of treatment seem to need, and feel better with, some vit D, and B12. I’ve seen lots of people go through treatment and it really varies- and perhaps depends what meds you took. But, big changes have happened, like you say, had it a long time, and is not uncommon to slowly feel better over 2-3 months afterwards. You might bounce back. Hope so, take it easy, it will happen.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    22 August 2018 at 6:10 am in reply to: Why I recommend fixhepc/Redemption Trial #28493
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    I like to look at this every so often and it has been a while :)
    Again, lots changed but this stays the same. Here in Aotearoa/New Zealand we have treatment for all around the corner. The focus shifts to stigma, finding the undiagnosed, elimination.
    I would like to thank FixhepC for acting so responsibly in saving those of us who couldn’t wait, and providing the market forces that have enabled NZ to negotiate this deal for DAA’s. This is a model for everywhere, use it, do it, tell politicians about it.
    This is me at a GP conference on the weekend. A med student said “you’re that buyers club rebel! you gave a talk to my dad, a doctor- he told us all about it. I love that story!”
    So add inspiring young doctors to the list of gifts FixhepC has sent its neighbours. Maybe we should lend you a rugby coach.
    Straighten me up please?

    20180818_115141.jpg

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    20 August 2018 at 1:23 pm in reply to: Too much political debates help HCV virus survive #28486
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Here is some interesting HCV politics. Patients missing out while the games are played. https://www.thehindubusinessline.com/specials/pulse/a-chinese-twist-in-the-tale-involving-hepatitis-c-drug-sofosbuvir/article24718541.ece

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    17 August 2018 at 3:13 am in reply to: SVR 20 #28451
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Logging in to say yahoo and magic Splitdog! epic journey.

    #magic# #magic”

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    14 August 2018 at 3:26 am in reply to: Undected #28440
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    Great news, great post, big gnarly old dragon put to the sword there. congrats.

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    2 August 2018 at 2:38 am in reply to: NZ News #28397
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    More…
    https://www.stuff.co.nz/national/health/105874756/Free-access-plan-for-revolutionary-drug-that-could-eliminate-Hepatitis-C-by-2030
    And look! Anywhere, anyone could do this, or posters, would love to see in other countries, ask
    NRA2401HepC.jpg

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    29 July 2018 at 11:39 am in reply to: NZ News #28382
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    That was my motivator that got a laugh in a talk I did here on Friday,- come on! Great chance to beat Australia, even with a head start!
    Must say though, Australians helped, more than a bit. Here is how good they look huge, also great as a handout size
    37958628_10155712625533106_6439044893200351232_n.jpg

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

    29 July 2018 at 5:01 am in reply to: NZ News #28379
    Avatar photoHazel
    • Guardian Angel
    • ★★★★★
    @hazel

    We finally have a plan to have Maviret for all (some clinical exceptions) here in NZ from October.
    Quite a bit in the news with World Hep Day
    https://www.odt.co.nz/news/dunedin/health/proposal-fund-hep-c-treatment-welcomed

    http://www.radionz.co.nz/national/programmes/sunday/audio/2018655680/professor-ed-gane-and-wendy-overy-discuss-hepatitis-c-cure

    80a52d950ecb0a5a76831a5d8e94a64c.jpg

    c1b793912f30a2478da2b8268bdc19c8.jpg

    And we have had these posters up all around the country this week

    Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716

  • Author
    Posts
Viewing 15 posts - 61 through 75 (of 369 total)
1 2 3 4 5 6 … 23 24 25