Jacqui - FixHepC - Page 4 of 14

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16 January 2016 at 12:30 pm in reply to: Jaz’s Sof/Dac Journey Gen 3a #9425
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
That’s interesting Chejai that you are doing 16 weeks. I had only planned for 12 weeks but will get some further advice on it. I thought that was all I would need based on my lft’s always being good for the past 10+ years and apparently no damage to liver. I wasn’t expecting a 9 million v/l either so that was a surprise.

I would have preferred the quantitative at week 4. I’m not expecting to need another v/l past this point so why not use them at a point they can provide useful info and also encouragement to the patient. Maybe its a bit of a case by case thing, it may not be as necessary for people with lower v/l as you’d expect to be und at 4 weeks. I’m not sure if it’s right to assume someone with lower v/l will reach undetected more quickly? It sounds logical but seeing as v/l does not correlate to patient wellbeing I don’t even know

I’m sure it’s all going along the way it’s meant to be though hope you guys are travelling along well with your Tx

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
15 January 2016 at 3:24 pm in reply to: Treatment arrived yesterday #9249
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Best wishes for your Tx another attempt!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
15 January 2016 at 10:44 am in reply to: Jaz’s Sof/Dac Journey Gen 3a #9208
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Gaj wrote:

Hi Jaz,

I can’t remember whether you said you were going through a clinic/specialist or just via your local GP but in either case please consult with them as to the best course of action for you. But as it is a Friday afternoon I will just make some general comments to allow you not to worry over the weekend until you can talk to someone with more knowledge.

Okay, so I’m no medical expert but here is a post from Dr James on VL testing. It looks like you and I are in the 18% who aren’t undetected at 4 weeks, but note all were undetected at 8 weeks. I have seen one person here who was not undetected until 10 weeks but from memory they tested at 6 and then 10 weeks so they may have been undetected at 8 weeks without knowing it.

http://fixhepc.com/forum/experts-corner/287-viral-load-on-treatment-what-to-expect.html

There have also been posts on this site about people having very low detects of less than measurable quantity at even the full 12 weeks and still having an excellent chance of going on to achieve SVR12 or 24.

So what does this mean for you? Well you said your fibroscan was good (although I haven’t seen anywhere what it actually was), but assuming that means F2 or less then I would think 12 weeks is normally more than enough treatment. If I was you, I would get another test at 8 weeks and see if that was UNDetected. If it was then I wouldn’t worry and just finish your treatment. If it was still detected I would discuss further with your specialist/GP or maybe seek a second opinion from someone like Dr James via GP2U or similar.

All I know is at the fibroscan they said my liver looked perfect and they had absolutely no concerns so I assume F0? Yeah I am going through a gastro clinic at the hospital.

Those stats are reassuring. I will try to stay positive about the outcome. I appreciate you taking the time to reply GAJ, thank you I do feel a lot better now.

I’m having another qualitative test at 6 weeks so hopefully I will get both results at the same time. I am a bit concerned that I’m using up all my tests before EOT! But I’ll just have to foot the bill I guess if I fall a bit short for the post Tx ones.

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
15 January 2016 at 7:45 am in reply to: Jaz’s Sof/Dac Journey Gen 3a #9192
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Gaj wrote:

Jaz wrote:

4 week results = detected

They didn’t do a quantitative so will request one be done now and give me the results on 2nd feb.

Feeling a bit emotional. I knew I might be a bit slower to get to und with a 9 million vl so I shouldn’t be surprised by this. I’d just hoped it would be und

Hi Jaz,

If it’s any consolation, I am in the same situation. Waited three weeks for my results due to Xmas break then told the lab only ran qualitative on mine. So now further wait for quantitative retest results. I’m not worried about not being undetected at 4 weeks as I knew that was a long shot with my status/history but not knowing if there is any change at all is frustrating. (Though I assume there must be change as my LFTs were improved a lot and I feel heaps better )

For others, may I suggest you clarify exactly what they are testing prior to the test to avoid this situation.[/quote]

I remember reading your post and thinking how frustrating that would’ve been. I even knew there was a chance she would request a qualitative test but still did not remember to make sure she did the quantitative. Just before Xmas was feeling a bit overwhelmed with everything and completely forgot. When I realised a few days after the test was taken I just crossed my fingers she had in fact done v/l or if not it would be und and I wouldn’t need to worry.

She said they will have to reasses whether they do quantitative in future for people at 4 weeks.

I’m glad you’re feeling better and the lfts have improved, that is at least some sign that things are going along well.

Would there be a possibility I might need to think about doing a longer treatment?

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
15 January 2016 at 7:01 am in reply to: Jaz’s Sof/Dac Journey Gen 3a #9182
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
4 week results = detected

They didn’t do a quantitative so will request one be done now and give me the results on 2nd feb.

Feeling a bit emotional. I knew I might be a bit slower to get to und with a 9 million vl so I shouldn’t be surprised by this. I’d just hoped it would be und

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
12 January 2016 at 3:52 pm in reply to: Sirs treatment journey! #8788
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Fantastic news!! illy:' />

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
12 January 2016 at 4:27 am in reply to: Hep C and Me #8734
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Best wishes for your Tx Stew!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
12 January 2016 at 12:35 am in reply to: ‘In which LG seeks Redemption & makes new friends’ #8718
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
That’s great you have started LG! Time to annihilate some HCV butt!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
12 January 2016 at 12:29 am in reply to: My parcel of Magic Pills has arrived!! #8716
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Best wishes Chejai!! Time to kick some hcv butt!!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
9 January 2016 at 5:16 pm in reply to: Kingswood Compounding Pharmacy … Sof, Dac, Led #8461
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
That’s awesome! All the best with your Tx splitdog!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
7 January 2016 at 11:41 pm in reply to: Delivery #8300
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
All the best to you Debs!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
7 January 2016 at 5:17 pm in reply to: The Ducks (Smileys) Are Lined Up #8275
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
love it!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
7 January 2016 at 4:49 pm in reply to: HCV RNA UNDETECTED #8273
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
No way GAJ! How frustrating! Hopefully the quantative test doesn’t take too long to come back!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
7 January 2016 at 4:27 pm in reply to: ‘In which LG seeks Redemption & makes new friends’ #8271
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Wishing you all the best LG! Another UND on the horizon

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
5 January 2016 at 12:09 pm in reply to: 2B HERE #8028
Jaz
- Topics: 2
- Replies: 81
- Total: 83
- Guardian Angel
@jaz
Congratulations Joan! Excellent news!

3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR12
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