Forum Replies Created

Viewing 15 posts - 166 through 180 (of 206 total)
  • Author
    Posts
  • in reply to: Joan-Awaiting New Drugs #3232
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Joan, I had a similar range of emotions and when the meds arrived on my doorstep I was quite detached..Oh, here they are…and popped them in my mouth. They sit in the hallway as a reminder, those 2 small plastic bottles worth $100,000!!

    in reply to: My twinvir story #3205
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Great Tweakmax, it’s exciting to finally get started. Onward and upward!

    in reply to: Potential 3-week treatment? #3194
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Schinazi – one of the scientists who developed Sofosbuvir and then sold it to Gilead. Wonder what he thinks about the $1000 a tablet pricetag…

    in reply to: Eight week treatment #3152
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Fantastic news Johnboy!

    in reply to: Poor Poor Gilead Ruined by Generics???? #3112
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Too disgusting for words.

    in reply to: Buyers Club Scheduled To Meet Key Decision Makers #3111
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I take full responsibility for my misspent youth, and have paid the price in many ways over the past 30 years. Single and childless, HCV has been my shameful secret, although I have lived a full life with contributions and responsibilities to the community. The first real discussion with my parents about being HCV positive was after placing the order with the Buyer’s Club, ie, when the solution was in sight. Waiting for the cure to list on the PBS has been agonisingly frustrating, and reinforces that we Heppers are marginalised. I was prepared to go to India or anywhere else to access the generics. Thankfully, the Buyers Club assisted me to import, test and compound the generics, and I applaud the professionalism, compassion and initiative of Dr James Freeman and his team. It’s Day 19 of treatment and the mental and physical improvements are significant and magnificent. A huge weight has been lifted. I can return to the workforce. I have a future.
    In my opinion, the obscenely greedy Gilead is not only acting unethically but criminally, and Big Pharma need to be controlled so they cannot hold governments to ransom like this, at the expense of human lives. The Australian government (and US & UK & ?) should save lives and money by dealing direct with Mesochem or similar reputable providers NOW.

    in reply to: Can hep C cause strange symptoms? #3073
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes the same old conservative stance from your good doctor. Wait…wait…wait…

    I agree with Alsdad, jump in and fix yourself NOW.

    It’s LIBERATING.

    in reply to: Emilio’s Place #3069
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hmmm… you have me wondering now if I should wait until 4 weeks Em – I was planning to be tested on Monday – day 20 – maybe it’s worth waiting another week. I just wanted to join the CURED mob, but like you would feel disappointed if I wasn’t quite there yet. Hang in there.

    in reply to: BIG news on Greg’s blog fou UK patients #2999
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    WOW! Really EXCITING news!

    At last, a way through the bog of bureaucracy …. Greg you are a legend.

    So happy for all the heppers in UK. :P :P :P :P :P

    in reply to: Week 6 bloods WOOHOO!! #2932
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Ann, I quit alcohol in 2004, 11 years after diagnosis, and 20+ years after infection. I was in Turkey at the time, where I lived for almost 20 years, and drinking was a big part of expat social life, and sailing. But hangovers were happening too easily (one glass of wine), often followed by anger. After doing a meditation retreat in 2004 I decided to ditch the alcohol and keep the meditation. Twice a day.

    My first viral load was taken in 2010 – 740,000. Five years later it’s 91,000 and not sure why. Meditation?

    I’m one of the lucky ones, and really feel for everyone who was tortured by interferon and everyone who has relapsed and everyone out there who can’t afford the generics or can’t get a script. Don’t give up hope. These new cures are like miracles.

    in reply to: I encourage people to try this. #2924
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Excellent news Wombat!

    Party party party?

    I agree Alsdad, we need a thumbs up/smiley button. There’s going to be a lot more celebrating yet.

    in reply to: Hep C QLD Factsheet Draft #2923
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Paul, for me the link went to ‘We can’t find the page you requested’.

    in reply to: Week 6 bloods WOOHOO!! #2840
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes that’s really good news Ann. The last fortnight must have been a bit challenging, but all clear now and it must be a wonderful feeling.

    And may there be many more happy endings for all of us.

    in reply to: Anticipation and Thanks #2817
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Rowan, welcome to the generic rebels club, and all the best with your treatment.

    in reply to: Incepta’s Twinvir #2778
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi khilde, are you back in the US? How is treatment going?

Viewing 15 posts - 166 through 180 (of 206 total)