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Viewing 15 posts - 181 through 195 (of 206 total)
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  • in reply to: Emilio’s Place #2776
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    All the best Emilio, fingers crossed.

    in reply to: Cured #2752
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    I like your new picture – daffodils are such HAPPY flowers, like you lucky bunny.

    in reply to: Cured #2751
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    FANTASTIC NEWS VICKI! YAY!!!
    So happy for you and your family and your future.

    in reply to: Buyers Club under investigation by TGA #2714
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Congratulations to Dr James and team for reaching 2 million hits on FixHepC today.

    So many people from all over the world helped, educated, connected and given hope.

    And perhaps a few out there pissed off – like Gilead shareholders, who are creating so much negative karma for themselves I feel sorry for them.

    in reply to: Buyers Club under investigation by TGA #2700
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    And a direct link to the FixHepC Buyers Club. Good promo…

    in reply to: Joy To the World #2648
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Oops, spoke too soon.

    Nausea again yesterday, and an angry red itchy rash on shin, thought it was a sandfly bite at first but it’s grown to about 3″ diameter & turning purple today. A ‘fixed drug eruption’ I guess.

    But this too shall pass.

    6 day blood tests showed my ALT and AST have dropped significantly (since last bloods in August). So something is happening. Looking forward to the viral load at 4 weeks.

    in reply to: Nadia’s journey #2624
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yay! Fantastic!

    in reply to: Joy To the World #2574
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Day 7 report:

    • more energy – HOORAY
    • need 1-2 less hours sleep each night
    • eyes have stopped itching (dry-eye symptoms before, using drops a few times daily, now not at all)
    • less trips to the loo at night, sometimes not at all (& I thought that was old age)
    • feels like I’ve been plugged back in to life’s electrical circuit – or is that a coffee buzz? (only 1 shot a day)
    • mild brain fog sometimes – scoring lower on lumosity :ohmy:
    • But

    overall feeling excited and empowered :woohoo: :woohoo: :woohoo:
    And very grateful.

    in reply to: Liver Clinics and Generic Rebels #2573
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy
    Vicki wrote:

    Stay tuned for the next episode of “The Days of our Livers”

    ha ha “Like APIs through the hour glass, these are the Days of our Livers…

    And I agree with you about the bonus of having more energy to spread the love like Greg and Dr James do…

    in reply to: Liver Clinics and Generic Rebels #2531
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Hi Vicki,

    Well that’s great news that Geelong has forgiven you for being a generic rebel, and that the tide is turning in Victoria.

    I went for a routine Fibroscan at the Gold Coast University Hospital today – it’s been 14 months since my last, and no change (F0-F1), which was a relief. After your initial experience (that was you on Greg’s blog wasn’t it? – shameful response by the hospital) I was a little hesitant to disclose that I started sob/dac 6 days ago. But it turned out okay, the nurse was great. They are already monitoring several generic rebels, and the specialists are writing scripts. So I have pathology requests in place for weeks 4 & 12, backup if needed, and bloods taken today. Very reassuring. She did mention ‘that doctor from Tasmania’, but was unaware that the Buyers Club tests the generics as part of the deal.

    According to her Gilead issued a statement in the past week or so that HCV DAAs WILL be on PBS by December and available by April. Which contradicts your information. Has the deal been done I wonder???

    All the best with your 4 week results Vicki – hope it’s an UND.

    in reply to: Joan-Awaiting New Drugs #2505
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes welcome Joan. It was a long 3 weeks for me – but well worth the wait. More energy already, and I’m only 6 days into treatment.

    in reply to: Nadia’s journey #2504
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Wonderful news Nadia! :) :)

    in reply to: Gilead versus China #2461
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    This Blog Post Will Cost You By Jessica Wapner – with thanks to Jolie for finding it…

    There is a cost for reading this post.

    Let’s agree to a baseline of $100. That’s less than ten cents per word, so a pretty good bargain. This post won’t cure what ails you, but it might relieve some symptoms. Side effects will probably be minimal.

    I wrote and scrapped several other blog posts before writing this one. Creating one post required dozens of failed attempts. That’s quite an investment, and I need to make sure that my costs are covered. So I’m raising the price to $150.

    Also, the Research & Development for this post was extensive. I’m not just talking about Googling stuff. The effort that made this post possible stretches back over years, even as far back as college. Before that, I had to learn to read and write. All of that costs money, and I need to be recompensed accordingly. That brings the price tag of this post to $225.

    Lucky for you I went into the science writing business. Not so lucky for me. If I had gone into drugs and biotech, I could have been making millions. But instead I am earning less because I must give the people what they want. I need to factor in what I’m not earning from doing other, more lucrative work. Make it an even $250.

    Alas, there’s another problem. I could have invested the money spent on Research & Development in the financial markets instead. I need to account for that loss. $300. (As long as I’m doing imaginary investing, it might as well be lucrative.)

    There are going to be people who can’t afford to read this blog post, so I need to charge you more in order to cover the expense of providing it to them for free. $325.

    Readers outside of the U.S. won’t pay as much, so I need to make sure I’m covered for that loss, too. $350.

    Remember, I only get $350 for as long as this blog post is patented, and there’s no guarantee that I’ll have another blockbuster success of a post in the future. I will need the money from this post to see me through future Research & Development until I finally create another masterpiece. Once the patent expires the price will plunge, so I have to earn as much as I can while I can. Without profits, I can’t continue to work. We all agree that new blog posts are vital and necessary. In fact, the posts are so vital and the years until success so unknown, I had better raise the price a bit more. $600 should do it.

    Say the patent expires in eight days. If this post turns out to be a huge money maker—and really, who among you doubts that it will?—probably many people will create generic versions. They’ll use the generic name, something like “esomeprazole magnesium” or “armodafinil,” and will charge you just $1 for the read. Maybe less. My strategy is to pay each generic blogmaker $100 to delay their posts, thereby securing my role as the sole provider of these therapeutic words for at least a few more days. If you don’t like this tactic, you can sue me.

    It’s true that public school was largely responsible for the basic research that went into this post. But I’m not going to give any of the money I earn from this post to the public school system. Also I won’t pay the same tax rate as you because of the Research & Development tax credit.

    Bascially if you want blog posts, you have to pay. If you want me to provide full accounting details for all the money that went into this post, sorry, I won’t disclose it. You’ll have to just trust me.

    Anyway you only have to pay $10. Your insurer is covering the rest.

    This post just scratches at the surface of the complicated world of drug pricing. There are rebates, discounts, negotiations (or lack thereof), traffic-jammed routes from wallet to wallet, and a deliberate obfuscation of actual costs. We all value life-improving and lifesaving medications. But the runaway profits, the legal loop-holing, and lack of transparency are all symptoms of money trumping humanity. It seems like the only way to have a system to that puts humanity first is to create a new system.

    Update! I just sold my blog to an investor who is going to increase the cost of this post to a kabilliontrillion dollars. He saw how few readers this post had and figured it must be for a rare disease.

    in reply to: Joy To the World #2458
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    Yes it’s remarkable news really – NSW Health and ASHM (Australian Society of HIV/HBV/HCV Medicine) have joined forces concerning the importation of generics, endorsing the FixHepC Buyers Club as an option.

    http://fixhepc.com/blog/item/18-ashm-position-statement-on-hcv-generics.html#sthash.BUzjjAZX.dpuf

    Hope other states follow suit.

    And I hope Dr James can cope. 3 weeks ago this site had 4000 hits. Now it’s over 1.8 million.

    in reply to: Side effects for sofosbuvir/Daclatasvir combo. #2428
    Avatar photoJoy
    • Guardian Angel
    • ★★★★★
    @joy

    All the best Vicki!

Viewing 15 posts - 181 through 195 (of 206 total)