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Viewing 15 posts - 16 through 30 (of 1,348 total)
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  • in reply to: Finally EOT (again) #25478
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hello Coral #love – So pleased all is going well with you and youvare feeling better.
    Sending #love from afar and with you all the way to good health #flower #flower #flower
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: The second wait! #25315
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Coral, Watching and waiting for your results. Feeling very positive on your behalf :+1:
    The post tx waiting did seem to drag a bit for me, kept busy for most of it, suggest book some pleasurable activities for tge last 2 weeks #flower

    Here for you in spirit, please feel free to email if you feel inclined, much #love LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25314
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Matt :+1:

    Sorry to read about your family member having a stroke, I do hope things improve for them and you are getting the support you need to help them.

    SVR4 for you? Awesome ! I look forward to reading your next good news and #love and seeing you join this wonderful club :)

    Be sure to look after yourself too #flower

    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25292
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Congratulations Bob in Ireland ! – That’s wonderful news, so pleased to read :+1: :+1: :+1: and improved fibroscan too :cheer:
    Here’s to your improved health my friend..

    Dear Coral, Thank-you so much for your lovely message #flower #flower #flower I am just waiting for you now, so we can share some virtual hugs and do a happy dance. It’s been a long road for us both, than-you too for your support, kindness and understanding, it means alot. So looking forward to reading your good news too #love

    Greedfighter – Another one to celebrate :) – and so delighted to join you in SVR24 – Catching up here after some time away, so pleased to read all the positivity, stay well my friend and thank-you for your support and good wishes. :+1:

    Thank-you too to CC2B – Yay I joined you in the 24 club :cheer: Tatty (waiting to hear more good news from you) and Fara Great news from you, waiting for your 24 :cheer: – All your posts and good wishes mean so much. You lovely lot #love

    RSF :

    There’s a bit more good news here folks: I’ve joined the SVR 24 club too. Sweet relief.

    Sweet relief indeed my friend :cheer: Looking forward to meeting up sometime, maybe in improved weather ?!

    I absolutely mean it when I say that was a kindness I shall never forget, ever.

    Right back atya ! :P #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25291
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Nadia :

    LG not quite there yet as I took another 8 weeks so am about half way to having my 12weeks EOT blood tests.

    Ah, that should do the trick :+1: I can remember that waiting for the SVR12 test, I was ok until the last 2 weeks when I felt a bit anxious, then you have to hope the lab will return the results quickly ! WIshing you all the very best for the perfect result and looking forward to reading your good news.

    due to all the changes the government have bought in. I have had to fill in so many massive forms on his behalf and had to write about all the negative aspects of his diisability in order to get him his disability benefits.

    Only those here in the UK can know what a nightmare these forms are, one wrong tick in the box and along come severe delays, so stressful. You have my empathy on this. It just isn’t what’s needed when you are battling something yourself. Fingers crossed that all goes smoothly.

    Sorry to read you’ve had all this other stuff to deal with, here’s to an easier 2017 #love #flower #flower #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25243
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Nadia :)

    Trying to work out how you’re doing from your profile, great to see you’re UND :+1:
    Are you coming up to your 12 week post tx tests?
    Thinking of you and sending #love & best wishes for the best result.
    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: The second wait! #25238
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    With you both in spirit and spurring you on Coral and Sabrecat .


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Psychoemotional ups and downs. Their associations with hepc #25237
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    As we all know there’s a strong association between hepc and anxiety/depression. Now why is that and what does it mean for us? What impact, if any, does treatment have on this? If it does, how do we distinguish the positive feelings we have at a hopeful result from a remission in our hepc and the consequent reduction in anxiety or depression?

    This is such a good post RSF.

    I have no doubt at all that HepC brings heightened anxiety and /or depression. I also feel that it’s rather overlooked by many in the medical profession, especially in the UK as they only deal with ‘one part at a time’ and not the whole picture. (Remembering the consultant who told me the portal vein had nothing to do with the liver and to contact my GP and my GP who said my joint pain had noting to do with the virus etc etc )

    I used to become extremely anxious before treatment, sometimes about the strangest things like booking a ticket, making arrangements or especially filling in an important form. It is hardly surprising that those who were still being offered the Interferon /Riba tx and those GT1s who had to add the dreaded Boc/Telap (Uggg) as the only option, with such low cure rates not so long ago, were anxious and depressed ! The NHS level of care was pretty bad too and even when the new medicines arrived the response of many NHS consultants was more times than not, less than supportive (polite version).

    Having said that, I believe the virus itself also causes anxiety and depression. Now SVR24, I still have bouts of anxiety, over any stresses in life, maybe having had them for so long, it takes a while mind and spirit to also repair? but they are much less often and not so bad any more.

    I must thank Dr Debasis from Monkmed, who has a rather more holistic view and who used to call me and manage to calm me down and inspire confidence, hope, and didn’t ‘poo poo’ my ideas, this was definitely good medicine in itself.

    When people say “It’s all in your mind” dismissively it kind of bugs me somewhat, as surely, the mind rules all?

    and find myself thinking that what they describe could all be attributed to anxiety, which turns up as physical symptoms very often

    I have no doubts about this. Anxiety causes physical tension which will spread to other parts, it makes perfect sense to me. I believe it can cause actual physical problems that become real co-morbidities..

    For much of my adult life I have intermittently suffered from a/d and for nearly all of it I have had hepc. I can’t help wondering what the relationship has been between the two, and what life may have been like if the virus hadn’t infected me.

    I believe it has very possibly played a large part in your a/d RSF – I also think our minds and bodies have very likely ‘got used’ to this reaction to stress and it will take some time to improve, but I do think it will improve. I guess the longer you have had the virus, the longer the memory will take to repair? but with the acknowledgement of this possibility, that time could well be shortened .

    LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25236
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Yay – Thanks Gaj #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Thank You Doc Freeman #25235
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    The Ruski drug was BMS originator Asunaprevir which is a GT1 specific NS3/4a DAA like Simeprevir,

    I also had that ‘baseball bat’ as a 3rd med for 4 weeks thanks to Dr F – and am happy to report I am now SVR24.

    Reading your amazing posts Woobia – You are an inspiration.

    Hi Paul, I see you are SVR 4? Great news :+1: (catching up here ) – Very pleased for you and wishing you the very best for your next results.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: SVR24 #25233
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Well guys, just got my latest blood results back and am extremely happy to report that I am now a member of the SVR24 Club :cheer:

    Apart from being eternally grateful, I am also proud to have been part of such an amazing period of time that offers something truly good in a pretty ****ed up world, you know? When I think back to only just over a year ago and how ill and scared I was, so many of us were and how new these new medicines were and how hard it was (and still is in some places) to access them and if you could, how hard it was to get true, good advise and support/monitoring. Really, MonkMed and Dr Freeman / FixHepC have moved mountains for us and made our hope reality. I mean, what greater gift could there be than hope, friendship and support followed by improved health.

    The kindness and care I have encountered through all of the above, Dr Debasis at MonkMed, those special NHS few who went against the grade to help me out with monitoring and all you lovely lot on this forum is humbling and that is a kindness I will never forget. I would also like to say hi to Chester, a patient on here right at the start, whose amazing offer of kindness will never be forgotten.

    So, sorry, bit of a speech :P I send BIG #love to you all and my very best wishes to all those who are still waiting for / are on treatment for better health – What a truly fantastic and unique bunch you are :)


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Been away too long!!!! #25230
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Nads & Coral, I’m also trying to catch up with all your news and have been thinking of you all. (Have had alot on my plate and no time, haven’t forgotten everyone).

    Ouch Nads – Sorry to hear you have had to deal with some other painful stuff on top of treatment – I do hope this resolves itself soon? Sending get well wishes. Post 4 bloods looking good :+1: I’m also looking to hearing good news about your SVR12 and sending my very best wishes for your improving health in every direction #flower #flower

    Dear Coral, I am also awaiting good news from you my friend and send big #love

    Splitdog – Hello mate, I do hope you are not waiting too long now and hope you’re not feeling to unwell and doing ok as can be expected? When I think back to how ill I felt just over a year ago and how much better I feel now I can truly offer you hope. I was a slow responder to the meds, one of a small % but am now clear and can only say that you are in the very best place you could possibly be here with Dr Freeman and Monkmed to to get fixed – like I did. (but I expect you know that!) – The very best wishes for your next treatment.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: First dose today, the journey begins…. #25229
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Congratulations from me too Sven (still catching up with news!)
    So delighted for you. :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: First dose today, the journey begins…. #25189
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hey RSF – I am totally delighted for you :cheer:
    You must be so relieved and happy.

    Sorry for recent absence, had some heavy going responsibilities, will be in touch soon.

    In the meantime I wish you a very happy and healthy 2017 #flower #flower #flower

    #love LG


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    High Donna – Great news :+1: #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 16 through 30 (of 1,348 total)