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Viewing 15 posts - 361 through 375 (of 1,348 total)
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  • in reply to: UK Patients willing to speak to the media #16007
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    The HepC Trust also want patients on generics to talk to the media…but they, as usual, are keeping this quiet.

    They frustrate me with their reticence … but they are sponsered in part by Gilead, so.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: undetectable at 9 weeks sof/dac gen 3a F3 inf/rib relapsr #15924
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Pleased to read you’re UND week 9 :+1: and good luck with the more detailed scan. I’m suprised they can see anything much at all if Ireland have similar USound scan equip to the ones we have locally to me here in England!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Baby Boomers #15923
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    1970s dentists (and in fact dentists 2015) :ohmy: School vaccinations, medical procedures and …. contact with the blood of others, particularly partners and those who are alcoholics, self-abuse and bleed often. Home done tattoos.

    I was never taught to avoid the blood of others. We even used to do that pin-prick blood brothers / sisters thing way back when. I think medical procedures especially in the 60s/70s have helped the virus spread, no doubt about that in my mind


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Afraid to take the meds due to severe anxiety #15839
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Dear Hope, What a horrible experience – I really feel for you having been through similar treatment with a previous consultant myself. That Dr is supposed to be caring for you, I hope when this is all over you will raise a complaint.

    Please don’t stop! I was still detected at 8 weeks – and <12 at 11 weeks and I have extended treatment. Not everyone is the same, the worst thing you could do is stop at this point. As you haven't even had your VL figures, you could be <12 or 32, or some really low figure and you still had 8 weeks to go when the test was taken !

    It must be quite scary to have this Dr. - It's a shame you can't change. Is there any other way of getting your own VL test privately? Did you get your meds through Redemption /Fix Hep C? You could ask Dr Freemans advise or Dr Debasis from MonkMed. I'm sure though, that any normal Dr would request the result of you VL test before advising or say keep going until your next VL test.

    What is interesting though, is I had antibiotics mid treatment. I read somewhere recently from an official paper, that antibiotics can mess with the Abbvie medicines, I am wondering if they can also affect other treatments, even though they say they don't.

    It is hard to tell anything without those blood test results though. Your Dr may have done a qualitative VL test which would just say detected or undetected rather than a VL Quantitative count maybe? You should ask her - really.

    I think you need advise from a different Dr really Hope. Keep talking the pills and try to get some other advise I would suggest. #love

    lg

    ps I can't see your Genotype etc in your profile...if you can pop that in, it could help people when reading your posts. #flower


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: ‘In which LG seeks Redemption & makes new friends’ #15767
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hellooo :) – I had the test, but apparently there are delays last week and this week .
    I had it worked out that they do a batch of VL tests late Friday mornings and made an appointment for early Friday morning hoping that I wouldn’t have a long wait ( it worked the previous time ) – but I am told by a reliable source (who actually finds out for me as soon as the labs come back and txts me bless) that there are delays and they are still waiting for their results from the previous week, so I’m trying not to think about it until it arrives. If it comes back <12 again (as seems to have happened with a few people I know around here) I'll do another one elsewhere I think. Things can be slow (and very expensive) if you source your own though, 7 'working days' ...so that's 10ish in reality.

    It'll be time for a new one soon ;)

    Been thinking about you too dear Ariel, is it me or are the past couple of weeks dragging ?

    SendIng BIG #love - lg xx


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: new member from south korea #15766
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    From me too :cheer: :+1: :+1:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: UPI On Board! #15753
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Great news- Was just catching up on Twitter and delighted to see the sympathetic reports :+1:
    So little from the UK though, dreadful, really ashamed of those here who should be supportive – what is their excuse now I wonder ? :evil:


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Searching for monitoring in UK #15698
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Fernandez, I sent you a private message a day or two ago.
    lg


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15697
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Thanks Tina – They were the photos I was trying to post while on the road :) but small device wouldn’t allow :+1: (hence the ‘soap-box’ comment).


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15587
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Gracie, Yes I was following while traveling, so not easy! but saw the tweet about great applause :+1: Tried to post a cool pic earlier, but it didn’t work on portable device, but Dr F seemed to get a fantastic response on Twitter and there in Barcelona .


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15580
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    From Twitter : Get ON that soap-box Dr F !

    oh well that didn’t work ! will try again in a bit.

    (tried to add a cool photo while traveling but it didn’t work).


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15571
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Serg, I see this as the point being made possibly?

    what justification is there for the gargantuan prices of these drugs?

    What treatment helped your difficult to treat friend reach SVR in the end?

    I agree there is much more detailed research to be done, I guess this just the beginning.

    btw – Portugal treated everyone with HepC and have reported 96% SVR at ILC2016 I believe. So you could say they did a massive trial!


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15569
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Some of us take longer Hazel, but I didn’t have to go through Interferon – Thanks to Greg J, Dr F & MonkMed.
    So glad to see your UND there on your profile #love

    Still waiting for mine, (delays at lab this week – annoyingly!). UK medics consider my <12 'job done' - We shall see.
    My very best wishes to you.
    Stay well.
    lg

    (edit) Dear Tim, I am not surprised you & Dr Debasis are so busy You both take such an interest in your patients and speak at length with every one of us who have concerns. I want to write a BIG public thank-you to you both #love

    pps : Here's the official Redemption Trials link again for anyone Tweeting in support of Dr Freeman today #ILC2016 :
    https://www.clinicaltrials.gov/ct2/show/NCT02657694?term=redemption&rank=1


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15523
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    If anyone from the UK is willing to talk to the Daily Mail (not my fave paper !) – They want to run a sympathetic article on treating with generics via FixHepC – PM me. They say it can be anonymous and via email or phone.

    ps This came via the HepC Trust.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    in reply to: Liver Conference Barcelona 2016 – #15521
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Tweet tweet !

    Shame our lovely MonkMed aren’t there too, so much good work done by them quietly behind the scenes to help patients.


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

Viewing 15 posts - 361 through 375 (of 1,348 total)