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Great news – Congrats from me too Splitdog
If I get a bit low at any point, I’m just going to come to this thread – absolutely hilarious !!
Great news – Good luck Beaches
Somewhat different to the UK – When Australia says the medicines are approved, they really are – Here they are still delaying, a commissioning group have to have meetings re every patient before they can prescribe, then more waiting etc etc
I wish you every success for your treatment and future good health
I knew it ! – So very pleased for you Tina
Now, keep yourself well and continue all that healthy living, things are really looking up
(edit )Ariel said
Tina! You are living proof these meds work in mysterious ways
No kidding from the Mermaid
Hi jay kim, Think we ‘met’ on chat last night?
Good to see you registered, as you can see, there is plenty of help here
Meanwhile, there are lots of patients doing very well on Twinvir here and I wish you the very best success with your treatment.
Hi FFox, My feeling would be to test early week 9. This will give you a good idea of how it’s going and enough time to order more meds should you need to extend (unlikely, but hey, nothing wrong with having a plan B )
When you have been at the mercy of NHS England for some years, you gradually learn to assert yourself ! However, when feeling low and unwell or anxious, , we can be forgiven for not being ‘on the ball’ but anyway, you can’t control how the conversation goes as it involves two people
but you can be prepared with your questions ready and learn a bit of ‘Dr speak’ – I have learned they like measured reasoned requests with some Dr lingo and phrases included, I mean, they are using them all day after all? An earlyi test is good, just to see if you are responding to the meds. Then, whereas most get a <15 at 4 weeks, not everyone does. There is still an excellent chance for SVR even if not UND at 4 weeks into tx, these are powerful medicines, but if not UND at 9 weeks, you have time to consult Drs and decide on your tx options for the foreseeable future.
NHS England may have only offered me 8 weeks which would not have been enough for me, even 12 , so you need a plan B just in case, that's my way of thinking and thankfully easily doable thanks to MonkMed fast tracked FedEx, Dr F & FixHepC so I wouldn't worry yourself too much
Link on the subject : http://mobile.aidsmap.com/HCV-viral-load-levels-during-treatment-and-speed-of-decline-do-not-predict-cure-with-interferon-free-therapy/page/2962856
So pleased and happy for you Debs
Absolutely hilarious re the consultant in the restaurant !!!
Sending big hugs and smiles to you my lovely tx buddy
Congratulations Magpie
I wish you every success and great health for the future
Thanks for your kind wishes isaing
Actually, I think I’m F1(5.6) – down from F2 in 2014 (8.7) (told you I’m a strange one !)
Feeling better in many ways over the last few days, I’ll just ‘keep on keeping on’
Thankful I can extend as necessary. How are you doing? Hope you’re keeping well xx
Yes, Harvoni needs stomach acid, some of us are trying to increase it xx
