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Thank you guys!
So…with the completion of 7 weeks of treatment – came all good things and I am feeling way better.
There is no comparison actually with the “me before” with the “me during” tx. But all pretty roses have thorns (although they don’t take away the beauty and fragrance of the flowers)
…and so I got a bit unsure on how to go about the cholesterol thorn/ issue. Will it resolve by its own with EOT? Is cholesterol a real culprit still or have doctors changed their opinion about it? Just for some context… I come from a family with heart disease. My mother, her mother and her siblings all died young due heart attacks. I believe I took over my father’s genetics though and don’t think I am at risk. I also always had low BP and have no idea if it has gone up with the DAAs. Something I should check this week. As you can see my cholesterol levels did increase post initiating Tx. Vitamin D and B12 decreased on the other hand. Also I thought I had been immune to Hep A and Hep B but according to these tests the vaccines I took years ago (?!) did not make me immune to them. Another surprise this week I did not like very much. Cholesterol levels before (on the right side) and during tx (on the left side)
Vitamin D before and during tx:
Test for Hep A and Hep antibodies (not sure what to make of them)
Hi Fitz I am so happy that you tested negative for cryoglobulenmia! Perhpas it was positive at the beginning of your treatment but by the time you had the test done (6 weeks) they are already gone. Yay! Also great results for VL – non identifiable will lead to UND in two more weeks. So it seems you will do great with 12 weeks and won´t need to extend tx. By the way did you test for cholesterol Vit D and Vit B12? Three of the ” markers” (aside from being cryo positive) that went out of normal range for me. My cholesterol for instance went from bellow 190 to 246 – 6 weeks after starting tx. Anyway wishing you that your journey continues being a success and that your sides are at bay! Thank you so much for explaining cryoglobulenmia in simple terms and posting the pictures. Great help.
Thanks everyone!
LOL at the dancing Brazilian dog
illy:' /> and the ” turning that dragon into nothing more than a whisp of smoke”.
Good ones!
Day # 46 on Sof/Led. I just looked up at my 6 week blood test results and the dragon is still out of sight since week 2!! Yay!
As you guys can see my liver functions are also impeccable, the lowest they have ever been in my adult life. With the exception that my Vit D and Vit B12 levels went down since starting treatment – everything else is doing great. Serum ferritim and cortisol also went down which sound like a good thing? The only “marker ” that went up a little is Uric Acid which I am not sure what that is for. Yes I know there is still a way to go to reach SVR but for now I am celebrating these results and wanted to share it with all of you. Edit – wanted to attach the images as pictures directly to this post – but they came out as files.
Bravo Fitz way to go! What a nerve to dare say ” I will take you off treatment” – as if she had the power to. Haha!
Oh well in this case she doesn’t thank goodness! I also agree on the ” arrogance equating ignorance” sometimes and little some doctors know what we are up to here! With Dr Freeman’s top of class knowledge and experience, together with GP2U staff and all of you as support peers, perhaps we have turned into wonderful ” anarchists” – in the best sense of the word of course ( non violent and free)! Looking forward to your 8 week blood test results my friend – the dragon will probably be out of sight! Fingers crossed.
Wow roshvfighter thank you soooo much for writing your story and sharing it with us. I enjoyed reading every word of it!
I’d like to share it elsewhere too as it brings a very important first person experience as well as very useful links.
Thank you also for your impeccable work translating texts to your language. You have inspired me to do the same and although not with the same “professionalism” I am slowly spreading the word about generics in my country as well. I agree once we are cured we automatically become activists as we want to share this blessing with as many people as possible. Congratulations on your brave journey and my heart felt wishes to your SVR! I will meet you there.
Big hug from Brazil.
Hi Stew-H thank you for sharing your “out of doctors expertise” symptoms with us. Man those are abundant and sure sound unpleasant. Sorry to hear they are still present and that the intensity comes in cycles. I would assume they’d get better once Hep C is cleared? There is so much we still don’t know. As far I was a month and three weeks ago regarding these odd sensations – when I first came to this site to inquire about treatment options – I have been on Sof/Led and some of that burning is dissipating. Also the tingling in my toes and numbing of my hands seem to have diminished. I have since then learned about Cryoglobulinemia – a “disease” that can be associated with the Hep C virus. In fact I tested positive for two of them. Hence feeling worse during winter. These globulines react in cold temperatures. Maybe that is what you have as well.? Have you ever done a cryoglobulines blood test? Best wishes and hope you find a cure and that the burning sensation as well as all those ” things” diminish and eventually disappear to you too.
“Cryoglobulinemia may also be classified based on the association of the syndrome with an underlying disease. Cryoglobulinemia without an associated disease has been known as essential, or idiopathic, cryoglobulinemia. However, the discovery of a close association between hepatitis C virus (HCV) and mixed cryoglobulinemia has cast doubt on the existence of essential, or idiopathic, cryoglobulinemia.[2] Cryoglobulinemia associated with a particular disease (lymphoproliferative disorder, autoimmune disease, infectious disease) is known as secondary cryoglobulinemia.”
http://emedicine.medscape.com/article/329255-overview
Some more Flamenco for our Party!
Edit: with an Irish twist! https://www.youtube.com/watch?v=BdDD9JX-Tyg&list=RDBdDD9JX-Tyg#t=0
Fitz how lovely those two Spanish tunes are! Muchas Gracias. I love the Spanish culture, architecture, cousine and music. Also ” me encanta” el idioma!
The songs shared herein from of you are like a musical library and it came to mind that we could have a FixHepC youtube channel with all our favorite music. We then could play it all day long and think how cool we International (w/o borders) Dragon Slayers are – haha – while dancing away!
Yay Fitz congratulations on the 4 weeks lab results.
We already knew your LV functions were back to normal, now the great news on the HUGE VL drop! That is awesome!
I also hope you have as a prompt recovery as possible from your nose surgery and that ice will help you with all that swollen tissue.
You look handsome in spite!
illy:' />
Big hug from Brazil and stay hydrated!
Just want to document that day – 24th on SAFINO L has brought me so much energy I don´t know what to do with it !!
illy:' /> (besides getting things done of course) so I ve been all over the place on FB sharing posts about Generic DAAs. Also just got the hang of using google translate so I might become impossibly opinionated. Haha
His voice and spirit are extraordinary ! So happy you introduced him to us Hazel. Thank you.
