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Viewing 15 posts - 61 through 75 (of 101 total)
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  • in reply to: Fibrosis F4 #26371
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hey Sonia, It’s good that your BF’s liver is getting so healthy that this minor cholesterol issue is now the question. So, how to raise the protective hdl cholesterol while reducing the artery-clogging ldl cholesterol?

    Raise the beneficial hdl through (1) excercise, (2) lowering trans fat intake (unhealthy trans fats are found mainly in partially hydrogenated shortenings), (3) moderate alcohol intake may help (usual advice is that if you do not use alcohol already then do not start). And reduce the ldl cholesterol through (1) increasing dietary fibre intake by eating more of the good stuff (legumes, vegetables, grain foods, fruit, nuts, seeds), and reduce saturated fat intake. (2) Loose excess body fat if you’re over the recommended body weight recommendations, (3) reduce sugar intake (remove sugary sodas, fruit juice, processed foods).

    The detail in this advice sheet covers the basics – http://www.mayoclinic.org/diseases-conditions/high-blood-cholesterol/in-depth/hdl-cholesterol/art-20046388

    Have fun now that you’re BF has reached end of treatment, that’s the most important part #love


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Fibrosis F4 #26369
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hey Sonja, Those liver function results going up and down within normal ranges is just the way things are. You can start worrying about that only when they go up, and up, and up. On the other hand, that cholesterol – doesn’t mean much by itself as 6.6 is total cholesterol. The number you need is the ratio of low density lipoprotein (ldl) to high density lipoprotein (hdl). See if the blood results have one of those details?


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Buying twinvir for hep c #26357
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi X-Hamster-Google, The treatments people access here mostly cost in the region of US$1,000 for a 12 week treatment. Most important though is to know which of the many treatments to use. In case you do not know this already, you need to determine which are the right drugs for your friends to use through knowing the genotype, fibrosis score (or estimate that through proxy blood tests), renal function, HIV status, and other pre existing medical conditions.
    I have had type2 HVC, for which Twinvir is not a cure, so I sought a different treatment through the Redemption trials available on this site.
    In other words, Twinvir can be excellent, but it does not meet every person’s needs.
    Best of luck, Mnem


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: veipatasvir & Sofosbuvir #26274
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Welcome Lynn, I am on Sof/Vel too, nearing end of 12 week treatment. I was undetected at 4 weeks so have reasonable expectations to maintain that. Keep reading the threads here, maybe search the term flu to see what others have said. One thing that all of us need to consider when we feel flu/like is that it IS the flu. Go easy, and remember to keep up your fluid intake :) Let us know how you get on.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: After Treatment #26245
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Kitty, I am sorry to hear that after all that effort to clear the virus you don’t feel better and it is concerning that you have lost more weight. My #love goes out to you. If you have not had a medical check recently then it could be worthwhile seeing your own doctor to find out if you have something else going on. For instance you mention your thyroid taking a beating from your old treatment.
    Your query about how long it takes to detox – Dr Freeman provides an answer for Harvoni half-life in the following forum topic: How long should I wait after treatment before getting pregnant?

    Kitty, I cannot hyperlink it due to current tech glitch I am having.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: taking Riba with food #26239
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Keith, This is a dilemma for you, to have a sufficiently high fat meal to maximise the bioavailability of your ribavirin dose yet simultaneously maintain a weight reduction diet. And that suggested 50g fat dose would be a crazy amount for just one meal with all you have going on.

    This research paper mentions ribavirin bioavailability increasing by up to 46% if consumed with a high fat meal [ref: Wade JR, Snoeck E, Duff F, Lamb M, Jorga K. Pharmacokinetics of ribavirin in patients with hepatitis C virus. Br. J. Clin. Pharmacol.62, 710–714 (2006)]. Annoyingly I could not find its definition of high fat.

    Back in 2006 it was pre-DAA days, so the need to get every ounce of benefit out of the ribavirin would have been pre-eminent. I wonder if it is not such a priority now we have our DAAs?

    A moderate fat breakfast like those mentioned further back in this conversation may be the best thing for now. That way, you get sufficient fat to assist ribavirin absorption, without giving yourself a heart attack. With any luck someone else here knows more about this topic. Cheers


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: NZ news #26221
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Hazel, Great advocacy in the radio broadcast you linked thank you. It is good to hear someone speaking up for all those living with HVC who are imprisoned in New Zealand. This country has one of the highest levels of imprisonment per capita, so bringing this to the fore in public discussion is particularly important. Thank you


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: The Beginning of my Journey #26214
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Heatherlou30, I will assume that what you call an energy drink is the same as in my part of the world:) Most so-called energy drinks are water, sugars (or sugar-substitute), food acids, flavour, caffeine and CO2 bubbles. Some have other ingredients such as guarana, and a few B-vitamins added. Guarana metabolises to a caffeine-like molecule that passes through the same metabolic paths as caffeine. From what I have read on this forum, caffeine is a weak inhibitor of DAAs.
    In other words, unless you drink more than one or two ‘energy drinks’ each day then they will not affect your Dac. If you need a boost some mornings, then in terms of dental health due to the acids in these sodas, coffee would be a better choice. Unless you dislike coffee. Cheers!


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: The Beginning of my Journey #26204
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Heatherlou30, If you use the Sof and Dac buttons then under ‘drug class’ add something like Contraceptive and hormone… under ‘Drug Class’ and click search on the drug interaction hyperlink that is on the GP cheat sheet tab on this site, you will see it is okay to proceed with your hormone regulation. All the best!

    :+1:


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Side effects. #26192
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi 2bornot2b, Once you are logged-on, try clicking on 2bornot2b to take you to your profile page. Click ‘edit’ then put in your password and IGNORE requests to add it again. You should be able to click the Edit user information tab.
    Then click Profile Information tab, and scroll to the end to enter your profile details.
    Write what you want there. No need at this point to write in medical terms, you can always change it later

    Don’t fret if you have no energy for this right now though.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Seriously worried that I may have relapsed #26182
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi rightsaidfred, As the others say, at this stage it’s virtually certain to be something other than HVC that is taking you low. Hope you can get your results back soon.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: taking Riba with food #26174
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Hi Keith, Those breakfast suggestions from Gaj sound nice, but if you cannot face solids in the morning, drinking a big coffee made almost all with full-fat milk provides a decent amount of fat. In 300mls of 4% fat milk there is the same quantity of butterfat as on two slices of averagely buttered toast. Good luck with your Riba.


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: taking Riba with food #26172
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    A two coffee breakfast certainly does not count as food Keith. Arguably however you can class a large mug of coffee MADE entirely with milk as food, because it has a decent quota of your daily protein and carbohydrate requirement. Cafe au lait!


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: NZ news #26106
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    This Hazel, is a truly impressive news post, and it looks like you are the driving force behind much of it. Thank you for all of your hard work.
    The Stuff link to the story of their frontman Martin Phillipps really made an impression on me too, What a great musician, it is heartwarming to know that he is no longer dying of end stage liver disease since he got the DAAs.
    Also I liked that link at the bottom of your post in which Russell Brown outlines the sense of pervasive hopelessness that is so easy to fall into when you are told you have HCV yet suffer the inequity of not receiving treatment. He writes with real humanity


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

    in reply to: Genotype 3/dating/pregnancy #26105
    Avatar photoMnem
    • Guardian Angel
    • ★★★★★
    @mnem

    Here’s my completely personal and subjective take on this question, Hailz.
    Coming as I do from an earlier generation, one that had never even heard of safe sex, I’ve spent the past 45 years regularly practising unprotected, mostly but not exclusively, penetrative sex with my (male) partner, Given birth, and breastfed children. Yet none of them became infected. None of them even have antibodies.

    This despite close living, in which each person in my family somewhere along the way would have say, used my toothbrush, or my facecloth. Certainly I know body fluids got swapped one way or another. So my advice is use condoms or whatever, and maybe do nothing too crazy, but as my grandma used to say “practice makes perfect”


    G2, infected maybe in 1971?
    Diagnosed HVnon-A non-B 1980s, revised to HVC 1990’s.
    Treatment naive. Fibroscan & bloods all normal ranges.
    Viral load 7million,
    began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
    Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
    Kia kaha e hoa ma!

Viewing 15 posts - 61 through 75 (of 101 total)