Forum Replies Created
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Matt so thrilled to have started!
You still sound like you are buzzing! What a difference one person can make along with a few others. It is wonderful and brings a smile to my face. i will indeed try to deliver the kiss but you know what some young guys can be like ‘stay away from me, no kisses from mum anymore only girls if you please’ and who can blame him right? 
I am probably asking something which has possibly been asked before a hundred times and answered too but just wondering how you put your details re results and treatment etc at the bottom of posts. I just know I found them really fascinating particularly how different everyone is. Just thought it would be good if I could get my own up to join the rest.
much love and affection. Keep well everyone
Nadia
xxxx
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!H everyone. Thank you Greedfighter, Matt Kenny, and Lynn Francis for your recent kind words of encouragement you certainly are a wonderful lot of people on here
Well took first one of those orange tablets yesterday. Spent the day wondering if I was getting any unusual sensations yet.
……..don’t think so …….told myself don’t be so ridiculous its only the first one come on!!!!! Decided not to think about it anymore what will be will be right and deal with it along the way! Knowing you are all here is special and comforting. Trying to keep a balance and not get too obsessive over it all. It is very exciting just the prospect of kicking that monsters butt right out! So looking forward to feeling 20 again!!!!!! My son J shouting to be rolled over in his bed better go help him before he wakes up too much
Value a few hours of peace in the morning before everything kicks off for the day and I take pill no 2!! Promise I won’t be counting each one of them off haha! Hope you all have a great day or sleep depending where you are in this oh so strange world of ours.
love to you all
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Coral,
thanks what a great message. You made me laugh re retaining sense of humor. Sure didn’t have one whilst on that stuff I was like a wild cat with a sore everything!!!!!!! haha!!! You know the one?I am still in a bit of a trance since receiving those boxes yesterday. Makes me think again what a mad fucked up place we all live in!!!! I just hope others follow this path rather than wait till they get any worse.
Hope life is being kind to you. Thanks again for your warm words of encouragement.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!H Cadu,
I am new to this forum too and just received my meds yesterday. Just waiting to sort a couple of appointments out before I get started. i feel so very fortunate to be here with all these wonderful sharing people. Your Father in law is lucky to have you in his life he sounds like he is having a rough time. I wish him and you well on his journey to regaining his health. Lots of love to you for being such a caring person it is a fine atribute in this world of ours!!!!! Hope good things will happen real soon for your family.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Thanks Fretboard for your warm welcome! Yeah looking back thinking about the Interferon and Riba gives me the shivers!!!!!! BRRRRR. What a relief these other meds have come along sad so out of reach to many makes me mad like others on here have already muted many many times. Hope to meet you again on here soon.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi CD wow its great to talk to you all on here. you are all so embracing that in itself is a great start to getting well! It sounds very hopeful to hear your AFib has diminished along with your asthma since ridding yourself of the hep.Thrilled for you and makes total sense to me. I have been questioning if there was any relation to suddenly aquiring AFib after having hep for 20+yrs
Yes CD my heart is supposedly good so I couldn’t really understand why I had suddenly gotten it. Just feel it is a bit of a bastard to get back into sinus rythm. Adds to the tiredness with the added crap of getting breathless just walking down the road. Sorry everyone for sounding like an old git
Too many meds plus the Warfarin, which I so don’t like the sound of longterm. I will so PM you soon to pick your brains on your way of dealing with it thank you so much for the offer. Talk soon and stay well!!!!!
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Thank you Ariel for your encouragement. The positivity that comes from everyone on this forum is incredible for all of us just starting on this journey. I can imagine each time you get your results your heart misses a few beats. Exciting and nerve wracking at the same time.
You are so spot on we have similarities yet all vary a little in the way this f****r of a virus has played out in our systems. The end game is to kick its butt. Now we have the opportunity and you are about to reach your goal Ariel.I have everything crossed for ya!!!
Your posts along with others have all been terrific to read and helped me to make my mind up that I had to give it a go!I love your profile pic can almost smell the surf just looking at it!!!
I hope to be right here with you when you get your last lot of results and here is wishing that they come back exactly as you desire SVR 24!!!!!! 
bye for now.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi Beaches thank you lovely to meet you.
Yes LG they literally just arrived and Dr Debasis was on the phone in a flash. As you say refreshing especially considering all the people they are keeping an eye on. We have become too used to people feeling rushed under pressure and having their ‘hands tied’! Have heard this expression too often.
So good to read how well you are all doing and I hope that those who have not yet seen it happen for them will real soon.
I am feeling so blown away by how quickly this has all happened. Got to go and get an appointment with GP and put a few things in place to keep an eye on other meds then I can take that first tablet. Excited and apprehensive I am sure many of you know that one!!!!
Will keep you updated. Love to you all.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!Hi LG how lovely to hear from you. I feel like I know you a little already. I spent 2 weeks reading the wonderful posts on this site and yours were particularly informative, and both moving and sometimes humorous to read.
I think the consultant I saw was the same one as you. I just felt he was sitting there hoping to ward of any awkard questions, especially requests for any treatment. When I told him about feeling really tired all the time totally lacking in energy, he remarked that everyone gets tired. Yes that is true but the exhaustion many of us feel is not the norm! If you have the strength you should make a complaint via PALS. That is terrible that someone feels the only choice they have is to leave the much needed support of a hospital whose care they were supposedly under as a result of an experience like yours. Yes I fear the Prof going is a massive loss to the patients and other young doctors to learn from. Arrogance is not an attractive characteristic!
I hope my GP will monitor me as she agreed to do but you can never be sure about other influences in a large practice. She was great about getting me my VL and blood tests these past weeks, its just a case of how many she will be willing to put through. I had a consultation with Dr Debasis he was fantastic as everyone I have had dealings with so far. I couldn’t believe how fast and how smooth everything went from applying for Redemption Trials to the gift of better health arriving at the door!!!!
I think it is all thanks to you and others on here who have ironed out all the little issues with those running it. I feel so very lucky to be here LG.Will certainly take you up on yer offer of sending you a PM later if that’s ok. Oh and thank you for helping set up all the music. Some I have not heard for a long time brings back memories!!!
Love you and leave you now before this becomes a book!
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!pat1 wrote:Hello Nadia and welcome
wishing you all the best for your Tx journeyThanks Pat1 for your kind words.
Diagnosed Hep C genotype 1b early 1990’s. Treated 1998 peg Interferon/Riba non responder
( Meds stopped after 4 or 5 months.
Fibroscan April 2013- 7.3kPa repeated May 2015- 5.8kPa mild scaring
May 2015 ALT 59 AST 56
21/7/2016 ALT 36 AST 44 BIL14
VL 939000
thanks FixhepC +Monkmed started Sof/Led 16/8/2016.)
OCT 3 AST33 VL UND
OCT 11 ALT 29 AST 36 VL UND
NOV 10 ALT 27 AST 37 VL UND
JAN 30 2017 ALT 23 AST 29 VL UND
SVR12 ALT 23 AST 27 VL UND!!
SVR 24 UND!!!TY EVERYONE!