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Viewing 15 posts - 1 through 15 (of 16 total)
  • Author
    Posts
  • in reply to: Waiting game #22276
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Haven´t checked in for quite a while, and this will probably be my last post as I received SVR12 results as UNEDTECTED today B) B) B) B) B)

    I extreemly happy for the help I´ve received through this site and all the nice people here and at fixhep-C.

    Thanks again, and sayonara!


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #14990
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Thanks LG. You were a big help and great guide when I was going through the ordering process!

    P


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #14988
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Just got the reults for my 7 week bloodtests…… virus is UNDETECTED!!! :) :) :)

    I´m extreemly greatful for the job beeing done by this community, Dr Freeman, Monkmed and all other good forces! I´m still amazed over how well the Reemption trials are set up, and the truly global effort going on to get the medicines out.

    Happy springtime from Oslo:) B) B) !!


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Double dose #14497
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Thanks a lot for the good advice. I´m not suffering from any side effects, so I´ll take my pill as normal today.

    I actually have a pillbox with the days of the week on it (I don´t understand how I could have managed without it. The TX have left me with a new understanding for all women out there eating pills on on a daily basis:)) I´ve had a week off work in connection with easter and actually mixed up the days…..

    Happy easter to everyone!


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #13035
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    :) :) :) :) :) :)
    Happy happy happy happy . Just got the results from my blood tests 2 weeks into treatment. VL had dropped from 9,6 mill pre Tx to 160!

    A final confirmation that the pills I´m eating is the real deal:)


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #11433
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Waiting is over :) !

    Just got back from London with my three boxes of Hepcivir-L. Started Tx on saturday and will finish last day of april :) :)

    The meds got through customs in the UK without any hold-ups(spent 2 mins at customs according to fedex tracking). Going back to norway I walk through customs without beeing stopped. Not that it would have been a problem as you are allowed to bring 3 months of medication as long as you bring the prescription.

    I´m very thankful for the whole fixhepc setup and all the good help from people here at the forum. I must admint that i have been very sceptical about buying drugs online, but now i´m fully confidendt that I have recieved the real deal.

    It is quite humbeling to know that there have been people around the world (literally) involved in securing Tx for me. FixHepC in Australia/Tasmania, MonkMed in US/India, friends of friends lending me an adress in the UK and LondonGirl giving me confidence through chat and e-mails that this was actually doable.

    I thought I´d make a post of how i did It for anyone else wanting to import to norway, any hints to where that should be posted?


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Cheating Fibroscan #11121
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    The consultation went well:) The doctor did two full rounds of fibrocan and they showed around 5 and 6. Apparenty there can be quite big variations depending on exacly where they do the measurements.

    As I have signed up for generics(Hepcivir-L) through the redemption trial and the meds where delivered in the UK on monday this week I was happy to see that there hadn´t been any more damage to the liver. I´m traveling to UK to pick up the meds friday and will start Tx saturday.


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10923
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Waiting over!!

    The meds cleared customs without any delays and were delivered to my UK adress today :) :) :) :)

    It only took 10 days from I made the payment until they reached London. I´m traveling to London next friday to pick them up and will start Tx saturday 6. feb.


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10835
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Hi Gerges

    I haven´t recieved the meds yet, but have confidence in monkmed and fixhepc. I fully understand that you want to make sure you´re not getting ripped. So did I. I was conviced that this was the real deal from spendinig time on this forum and e-mailing directly with some of the good people i met here.

    Good luck in taking your decision :+1:


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10751
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Things are moving in the right direction :) :)

    Yesterday I met up with a new specialist and had a great experience. He did two rounds of Fibroscan, but no results high enough for putting in a new application for meds from NHS. Then I told him that I was waiting for generic medication organised through FixHepC buyers club. He was quite excited about this, as he had heard of buyers clubs but didn´t know of any patients that had tried it in Norway. He was very supportive about my choice and agreed to let me be followed by the hospital during treatment. As he said “you´ll take the medicines anyway, and it would be unethical not to follow you during treatment”.

    I let him have a copy of the concent form from the Redemption trial and told him that he could let other patients curios about genercis contact me. Interesting to see if others will follow.

    He also confirmed that once the meds arrive I can start taking them and that there is no danger associated with taking sof/led. I got an updated VL above 9000 and my others results seemed fine.

    Today I recieved the tracker code from monkmed and my meds are on their way from India :cheer: :cheer: Keeping fingers crossed they will get trhough customs without any trouble. Must say I´m very impressed with how well organised the Redemption operation is. Both monkmed and fixhepC reply to e-mails quickly and give good info all the way.

    It´s been a good week :)


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10607
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Good news tonight: payment has cleared and meds will be shipped :) :) :)

    If no hold up at customs they will arrive by next weekend. Looking foreward to get the tracking number so i can follow the journey


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Cheating Fibroscan #10606
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Thanks for the good advice! I think I´ll refrain from going into a discussion about the ethics of my question.

    I have my appointment tomorrow morning and will go for a big breakfast. To those concearned, im still sober B) B)

    As for getting generics, they´ll ship today. I will however have to bend a few rules to get them into the country anyways


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10287
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Yup, MrMumbai was me :) :) . My first plan was to go to india to get meds. It´s still a plan B if the Redemption medication for some reason don´t get through to the UK adress.


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10209
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino

    Hi Gaj

    You did a better job than me finding my own post!! Good thing it was not cencored. It will be interesting to see if other norwegians will join this site as well.


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

    in reply to: Waiting game #10111
    PauliNO
    • Topics: 4
    • Replies: 16
    • Total: 20
    • Treatment Warrior
    • ★★★
    @paulino
    Gaj wrote:

    Hi PauliNO,

    Not much waiting left. :)

    Best wishes for your journey to SVR and keep us updated with your progress. I think you are the first here from Norway so no doubt others will be watching and learning from your example. :+1:

    I have been trying to get the word out at the norwegian forum hepatitt.org about fixhepc.com, but my post never appeared on the site. I posted as a guest and I´ll probably try a bit harder to get the word out there as I learn more about how the redemption trial and transport works out.


    Genotype 1b – Tx naive
    Pre Tx Vl 8 900 000, Alt 52
    2 weeks VL160
    4 weeks VL 43
    7 weeks VL UND
    EOT UND
    SVR 12 UND

    Startet Tx 6. feb 2016 Hepcivir-L (Generic Harvoni from Cipla)
    (REDEMPTION trial)

Viewing 15 posts - 1 through 15 (of 16 total)