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  • 19 December 2015 at 5:35 pm in reply to: Sirs treatment journey! #6735
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    I had expected to be Undetected when I had those bloods taken I was kind a looking
    at the results everyone else was coming back with.

    The nurse mentioned something I was not aware of I’ve read the research since it pertains
    to viral loads mean during treatment.

    Firstly, the test only detects above 0-15,if you test undetected at 2/4/6 it simply means it can’t detect
    the virus I thought it meant you’re cured.

    I’m mentioning it as I was unaware that early blood tests can go back and forth between positive
    and negative at 4 weeks you can be UD whilst at 6 weeks you’re positive then at week
    12 you are Undetected.

    There is smaller group who have at EOT being positive three months post treatment they
    are Undetected and remained so afterwards.

    My point is as follows thus far I have seen no discussion at all about viral load tests and what early
    testing means.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    19 December 2015 at 5:12 pm in reply to: London Girl’s NHS Experiences #6731
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge
    LondonGirl wrote:

    Whereas I agree, some side effect reporting may make some patients a little nervous even if they are nothing like the old meds sides, I also think it is good to share how people are feeling on tx, so others can be prepared. I mean, if no-one ever had any side effects at all because they didn’t want to mention them and then a person new to treatment got some, they may be really scared because they think they are the only one to get some, does this make sense? When people just tell me ‘oh it’s just like a mild flu for a bit’ I have to say, I do wonder what a ‘mild’ flu is like, you know? ;) Having said that, I haven’t had flu for so long, I can’t remember what it’s like! but I have definitely had other very horrible symptoms since I’ve had this virus. Joint pain so bad I couldn’t walk for example. Really don’t want those to get worse.

    I never suggested not to speak of your experience of sides while on treatment of course its important to talk
    about how you’re doing on treatment positive or negative.

    What I did say was Id be mindful of not worrying about sides before you’ve started treatment.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    18 December 2015 at 9:19 pm in reply to: UK NHS in for a Shock #6644
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    I’m glad to hear you’ve started treatment DT I’m sure more difficult once you’ve failed prior I think
    you’ll be fine it the end results that matter.

    Good luck.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    18 December 2015 at 8:19 pm in reply to: Sirs treatment journey! #6642
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    My viral load at late week five was 17 apparently they cannot detect from 0-15, I’m just about
    there!

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    18 December 2015 at 6:26 pm in reply to: Dan’s Twinvir story #6636
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    On a personal level I can of course empathize with anyone thinking they may have side
    effects the evidence thus far including myself is most of us have none.

    Of course, there are some less fortunate that do in have sides,Dan being one of them.

    I don’t think its helpful to anyone thinking about treatment too start worrying about events that as yet
    have not occurred. Id be mindful of the fact its fairly painless!

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    18 December 2015 at 5:32 pm in reply to: UK NHS in for a Shock #6634
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    I was wondering have you started treatment doingtime.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    18 December 2015 at 4:39 pm in reply to: Dan’s Twinvir story #6631
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge
    isaing4 wrote:

    Wonderful news Dan!
    You have a small start VL therefore NOT DETECTED in week 2!
    No side effects apparently is not possible. But you forget all when you get rid of the virus!
    Good luck with your doctor! :lol:

    I think its the opposite,the majority of us have no side effects what so ever.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    17 December 2015 at 7:41 pm in reply to: More Gilead BS #6561
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    The lovely specimen of humanity bought a generic drug upping the price from a few dollars
    per pill too 750.00 per.

    Excellent news to read he’s being investigated by the FBI he’s a utterly repellent individual!

    http://www.theguardian.com/us-news/2015/dec/17/martin-shkreli-arrested-by-fbi-over-hedge-fund-investigation

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    17 December 2015 at 5:38 pm in reply to: Dan’s Twinvir story #6558
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Glad to hear its all going to plan!

    Are you planning on telling them you’re on treatment?

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    16 December 2015 at 5:19 pm in reply to: West Lindfield Pharmacy and Compounding Chemist #6456
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Probably pretty similar to The buyers club I would think.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    16 December 2015 at 4:42 pm in reply to: UK NHS in for a Shock #6451
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Whilst I agree with you the lack of monitoring by the NHS for patients on generics is a serious
    problem I don’t agree at all you’ll have endless patients buying generics.

    Let me explain why. The UK has free health care as such the population at large believes they will get
    access to treatment free.Maybe those educated about Hep and generics will pay I doubt the majority will.

    For example,Greg and James have had very few patients UK use their services,sure it was some what
    difficult to access the patients that payed are used to paying for care( Australia,USA East Europe).

    I think its a cultural thing I don’t know the price dropping down to 1k less will have that much impact, I
    hope I’m proved wrong. I hope as many people as possible buy generics and get cured.

    Looking toward the future, I think we may see price drops across the board that will allow everyone to be
    treated.

    PS; I’ve said a few times,someone should attend a citizens advice clinic about the lack of monitoring patients
    on generics,I think there is a legal duty to look after patients.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    15 December 2015 at 1:30 am in reply to: US Moderator announces our drugs are ILLEGAL #6298
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    You don’t use Ghostery or Add blocker Chester you need to add them to your browser.

    I take it the Mod thinks generics are the devils spawn I had a quick look around its
    all quotes from shit. V odd.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    15 December 2015 at 1:21 am in reply to: US Moderator announces our drugs are ILLEGAL #6296
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    Jesus that forum this thread was started about is full of shiny ticker type shit.

    My fucking eyes are bleeding it looks like it was set up by a 12 yr old (Circa 2000).

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    14 December 2015 at 11:57 pm in reply to: Dan’s Twinvir story #6286
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    I still think you should speak to someone in a Citizens advice bureau they’re usually staffed by
    lawyers versed in this type of situation.

    I’m not shocked the type of Lawyer you spoke too make that statement this is not the type of case they
    run with.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

    14 December 2015 at 9:44 pm in reply to: Dan’s Twinvir story #6276
    Avatar photoSirchinenge
    • Guardian Angel
    • ★★★★★
    @sirchinenge

    That’s interesting Al,has anyone talked to a Lawyer about this.

    For example, a patient returns to the UK with generic medication, at some point they
    have problems, no hospital has the right to turn them away,it breeches their duty of care.

    I take on board the letter you’ve received I am of the opinion what they are doing is failing
    to look after patients, I think someone in the UK needs to talk too legal.

    The courts look very badly at this type of thing.

    Sob/Dac from Oct 29 2015
    Geno 1b
    Fiberscan 9.9 Pre treatment
    Fiberscan 7.4 week 10
    VL 1.3 million pre treatment
    Week 2.5 VL 96
    Week 5.5 VL 17
    Week 10 VL UD
    SVR 3 UD
    SVR 16 UD
    Cured:
    All liver functions in normal ranges.

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Viewing 15 posts - 151 through 165 (of 260 total)
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