Roger Esnouf - FixHepC - Page 6 of 14

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17 February 2016 at 4:46 am in reply to: Taurine Daclatasvir and Treatment Failure #12050
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Very interesting. It’s great to see information of possible interactions, both positive and negative, come to light. We’ve all been sailing in mostly dark, uncharted waters without navigation lights and this is invaluable for future patients.
Personally I have continued to take Jeunesse AM/PM Essentials which I started several months before treatment and made a noticeable improvement to my feeling of well being, although I take less than 1/2 the recommended dose (it’s quite expensive). It contains small amounts of taurine and green tea extract among dozens of other things. I was DET <15 at 4 weeks.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
17 February 2016 at 4:18 am in reply to: Quote of the day #12044
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Bird bird bird, bird is the word.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
13 February 2016 at 1:59 am in reply to: Daclatasvir relapse options #11823
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
AFAIK RAV testing is performed by genetic sequencing and only relevant for a small percentage of patients.
This study from Glasgow University is interesting:
http://www.bhiva.org/documents/Conferences/EHHC/2015/Presentations/151210/Emma-Thomson.pdf

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
12 February 2016 at 1:28 pm in reply to: Daclatasvir relapse options #11796
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
CC2B wrote:

Sorry don’t really know how to post it here, but was an interesting read. Maybe someone here better pc savy could find it and post.

Here ya go –
http://www.clinicaloptions.com/Hepatitis.aspx
Unfortunately you need to register to read it.
The precis on the front page says:

In the few HCV patients for whom DAA treatment fails, I consider a combination of 2 or more of the following: switching to a different DAA class, treating for longer, or adding ribavirin.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
12 February 2016 at 1:02 pm in reply to: Any Post-Treatment Reflections? #11794
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Bloot wrote:

The only time I have actively thought about a hep death is during tx when i researched how to get my hands on Nembutal in case I do ever need to die on my terms rather than some medical practitioners

Stats show people with a gun in the house are more likely to use it if they want to suicide. Don’t get the Nembutal!

Anyhoo, as I’ve been scorned for before, I do like a drink and it’s fast approaching beer o clock
So if you excuse me i’m going to smoke a reefer to get the thirst going

Good thinking. You can smoke and drink but you can’t drink and smoke.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
11 February 2016 at 2:48 am in reply to: More nausea-inducing news about Gilead’s strategy #11706
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
That’s comparing apples and oranges. $3000 is the wholesale price of just the battery unit, $15,000 is retail for battery + solar panels + installation.
I agree that Australian prices are regularly absurd compared to overseas for many items even allowing for the weak Aussie dollar atm.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
10 February 2016 at 7:08 am in reply to: Any Post-Treatment Reflections? #11673
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I’d guess a lot more people here are currently on Tx rather than finished. As time goes by there may be more post-tx reflections.
Also there are a lot of Looky-Loos in here but that’s normal for lots of forums. Compare FixHepC forum 9 Members and 169 Guests Online, with Bleeping Computer forum 73 members, 6639 guests.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
10 February 2016 at 6:46 am in reply to: Prof Gane’s remarks: implications for relapse #11672
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
On the issue of “genotype change”, it was postulated in another thread that someone could be co-infected with multiple genotypes but the test may only detect one. Possibly if G4 was detected and cleared, a co-infection with G3 could have been present and not cleared but detected in subsequent test. Only a theory but sounds more likely than genotype morphism.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
10 February 2016 at 6:19 am in reply to: One for the ladies in the house. #11671
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Chejai wrote:

Hello, Sonix lurking in on Ladies chat
You mention this product you use-
“Ingredients: Wintergreen 40%, Menthol 15% and Camphor 6%. Inactive ingredients: Eucalyptus 18%, Peppermint 15% and Lavender 6%. Because of methyl salicylate’s toxicity I use it sparingly and very occasionally.”
My query is how is it possible that the Eucalyptus, Peppermint and Lavender oils can be “inactive”? Did you read that right?
There is very good reason that whole blend is combined that way. It looks very similar to good old ‘Tiger Balm’ – but that uses petrochemical and mineral oil base.
Such a blend is meant to be used sparingly and on tiny patches of skin, always avoiding eyes – not liberally applied to large areas – so you’re only absorbing ‘therapeutic doses.” Very effective combo, especially for lurking migraines.

Great section Ladies and lurking Gents (just kidding with you Sonix)

I just copy pasted from a Chinglish website. http://scarfamilyditdajow.com/WhiteFlowerOil.htm
Definitely similar to Tiger Balm, which I still use for muscle pain (Cambodian imitation version actually). Tiger Balm doesn’t have wintergreen which possibly makes White Flower more effective for headaches.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
7 February 2016 at 12:34 pm in reply to: No good deed goes unpunished #11399
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
We can only help spread the word, not make decisions for people even if they base those decisions on inaccurate information.
I have a good friend who also has Hep C but more serious than myself as he is F4 and previously failed Inf/Riba. I had a long chat when I first found FixHepC and started treatment, told him how straightforward the process is and thought he might like a headstart. Nope, he’s going to wait for PBS availability. Which was announced in the week after I started but I have no regrets about starting 3 months earlier or about spending the dough.

I am reminded of a little fable:
There’s a story about a little boy that was on the beach throwing back starfish that had washed ashore. A man came along and saw the little boy throwing back the starfish and told the boy, “Little boy, you’re wasting your time. There are thousands of starfish washed ashore, you can’t possibly throw them all back. This is nature’s way. You’re wasting your time, you can’t make a difference.” The little boy looked at the starfish he was holding, then threw it back into the ocean and said, “Made a difference to that one.”

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
5 February 2016 at 4:11 am in reply to: Sonix Tx Log #11207
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
A quick update. I got 4 week blood results –
VL DET <15 down from 223,000
ALT 22 (<45) down from 54
AST 22 (<35) down from 42
Platelets 123 (150-450) down from 157
All other tests in range.

So looking pretty good and promising. I had another qualitative VL test this week at 6.5 weeks so hopefully und.
Side effects have abated so I no longer feel speedy but generally a bit less fatigued. Sleeping better too. I have had attacks of the lazies and had a few siestas.
Some of the symptoms have abated too, less itchy, a bit more clear-headed and less muscle pain. Not profound changes but noticeable.
It's good reading of everyone's successes here and hopefully I'm close too.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
4 February 2016 at 12:27 pm in reply to: Lynne’s end of treatment #11160
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
It goes fast, doesn’t it? I hope the future goes well and look forward to your SVR report.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
23 January 2016 at 4:11 pm in reply to: One for the ladies in the house. #10200
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
I’m not saying it’s bad for you as the monoi is just infused in the coconut oil and would be very low concentration. What I am saying is that it is a very expensive way to buy sweet smelling coconut oil.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
23 January 2016 at 2:41 pm in reply to: One for the ladies in the house. #10190
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
Sorry I’m not a lady but I’ll post here anyway as dry skin is non gender specific. That Elemis oil seems to be a very expensive coconut oil plus monoi which has methyl salicylate as its active ingredient. You may want to read up on methyl salicylate ( https://en.wikipedia.org/wiki/Methyl_salicylate ). It is a toxic ester of salicylic acid (aspirin), and a suspected carcinogen.
I use a marvellous Chinese oil called White Flower which is mainly wintergreen oil, which also has methyl salicylate as its active ingredient, as a rub-on treatment for headache, sinus blockage and muscle pain and is very effective. Ingredients: Wintergreen 40%, Menthol 15% and Camphor 6%. Inactive ingredients: Eucalyptus 18%, Peppermint 15% and Lavender 6%. Because of methyl salicylate’s toxicity I use it sparingly and very occasionally.
So I would suggest using pure coconut oil instead maybe with a drop of fragrant essence. Or even a drop of White Flower although the menthol smell may not be what you want in your hair.

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
21 January 2016 at 4:55 am in reply to: Hairdressers – risk of infection? #9955
sonix
- Topics: 7
- Replies: 158
- Total: 165
- Guardian Angel
@sonix
CJ wrote:

Why don’t mozzies spread it if they spread other viruses I wonder?

Interesting question, I had to look it up. Apparently mosquitoes only suck blood, not inject it. Viruses spread from the saliva they use for lubrication.
http://hepatitis.about.com/od/prevention/a/mosquitoes.htm

M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
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