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  • 4 March 2016 at 12:12 pm in reply to: EOT Viral Load result #13268
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Tina,

    Sorry to read your news. What a bummer! But don’t give up hope. If I understand correctly, the virus needs to be at > 10 UI/ml to replicate. So there is a good chance you will now clear naturally. But I see you are not leaving it to chance, which is even better… Hang in there!

    Vororo

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    4 March 2016 at 11:56 am in reply to: What’s your personality type? #13267
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    Tina-Hill-facebook wrote:

    Ooh another fun thread :+1:

    Heres my result lol

    ENFJ
    Extravert(3%) iNtuitive(38%) Feeling(25%) Judging(3%)
    You have marginal or no preference of Extraversion over Introversion (3%)
    You have moderate preference of Intuition over Sensing (38%)
    You have moderate preference of Feeling over Thinking (25%)
    You have marginal or no preference of Judging over Perceiving (3%)

    Snap! :cheer:

    http://fixhepc.com/forum/technical-support/776-personal-attacks-on-this-forum.html?start=6

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    4 March 2016 at 3:54 am in reply to: Ireland treats only certain patients. #13211
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Sirchinenge,

    I don’t doubt what you are saying. But please could you state your source or some links that everyone can look at?

    Cheers,

    Vororo (28% nit-picker)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    4 March 2016 at 2:26 am in reply to: Personal attacks on this forum #13207
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Ah, if in doubt RTFM. Now I understand.

    I am “ENFJ”:

    You have marginal or no preference of Extraversion over Introversion (3%)
    You have moderate preference of Intuition over Sensing (56%)
    You have slight preference of Feeling over Thinking (12%)
    You have marginal or no preference of Judging over Perceiving (1%)

    Still, liked the idea of Judging = 1%. A good principle for everyone here on the forum… :)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    4 March 2016 at 2:08 am in reply to: Personal attacks on this forum #13205
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    ”James-Freeman-facebook” wrote:

    Hi DT,

    Anyway, I think you’ve been here long enough to be made a moderator too so take care with the extra buttons. The pay is terrible and the hours are awful.

    I would be willing to bet that if you and Sir did the personailty test here:

    http://www.humanmetrics.com/cgi-win/jtypes2.asp

    You would fall at polar opposite ends

    Me, I’m an INTP

    INTP
    Introvert(38%) iNtuitive(62%) Thinking(53%) Perceiving(34%)

    Hi DT, congratulations on your “promotion”!

    James, do you realise that according to that personality test you scored 187%, and are therefore “super-human”!?

    Anyway, just for a bit of fun, and perhaps to avoid future heated arguments, maybe we should all post our own personality test results? So here are mine:

    Extravert: 3%
    Intuitive: 56%
    Feeling: 12%
    Judging: 1%

    This comes to only 72%, so obviously I am lacking certain key skills…

    ps. yeah, I know, I should probably read the numbers differently (judging 1%, non-judging 99%, etc.). But why don’t they explain their scale of measurement and lower limit of quantification?

    I think I should really be Judging = UND.

    pps. And “extravert” should be spelt “extrovert”…

    Cheers,

    Vororo (28% nit-picker).

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    1 March 2016 at 8:35 pm in reply to: Quote of the day #13039
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    A lie told often enough becomes the truth.
    Vladimir Lenin

    See also:

    http://fixhepc.com/forum/geopolitics/732-big-pharma-spending-19-1-marketing-r-d.html

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    28 February 2016 at 3:33 am in reply to: PBS Pricing – Take a deep breath… #12903
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Brilliant! He’d get my vote any day.

    You’ve gotta hand it to the aussies for knowing how to say it like it is…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    28 February 2016 at 2:34 am in reply to: Drinking alcohol #12893
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Yeah, I remember reading somewhere that being a doctor is strongly correlated with developing alcohol and other drug-related problems (sorry, can’t provide a link for that).

    Anyway, here’s to sensible “doctoring”… :)

    Cheers!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    28 February 2016 at 12:41 am in reply to: Drinking alcohol #12885
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Ariel,

    I think one has to develop a thick skin when doctors ask questions about alcohol.

    I went to see my gastro specialist last week to discuss my latest results (VL=UND). The first thing I noticed when he opened my file was the way that the printout of the fixHepC web site that I had given him on my last visit just popped out from of the top of my file. Great! I thought. This is going to go well!

    So he immediately said “Wow, you’re cured! These generics work incredibly well! I have never seen this before!“. So we chatted a bit about patents and China and India, and why couldn’t health services just buy generics direct from China, and the usual stuff like that…

    And then he said, “Yes, but your lipase levels are a bit high (105, instead of about 70). How much strong liquor do you drink?” This, despite the fact that I’d been off the booze for 6 months last year, and (thanks to the Sof+Dac) my GGT was now down to probably its lowest level (30) ever in my life! So I pointed out that the Lipase was at the same level or higher last year when I was booze-free but NOT virus free. So he just shrugged and we chatted a bit more about the price of airline tickets to australia.

    Well, anyway, this is all just to say that doctors sometimes do (and should) ask lots of questions about one’s health & lifestyle etc. without meaning to make judgements…

    And also, this is just to say that (even if he didn’t out-right say it), I strongly suspect that both my specialist and my GP will be keeping fixHepC firmly in mind next time they have someone come in with HCV (booze or no booze).

    Cheers!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    27 February 2016 at 11:17 pm in reply to: What is the perfect medical treatment system #12875
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    re_roll wrote:

    Sometimes one needs to wait an hour or even the next day to submit a post, especially an emotional
    one. Think about the reaction and consequences. If one does not care, then do it.

    Yeah, well said mate!

    We are here for HCV, how to get cured, and even how to help other people get cured. Maybe even to have some fun while we’re at it. The way I see it, this forum is our temple to that, and I really hope it can stay that way.

    And for anyone in need of something else….. happy hunting! :)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    27 February 2016 at 12:29 pm in reply to: PBS Pricing – Take a deep breath… #12812
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    At current current rates, $66,000 AUD = 43,000 EUR. Back in 2014, the French government negotiated 41,000 EUR for 3 months of sofosbuvir.

    http://www.pmlive.com/pharma_news/france_agrees_lowest_sovaldi_pricing_in_eu_618661

    I am just guessing, but here is how those tough negotiations seem to have rolled out:

    Australia: We want to treat everyone, please can we have a special bulk-purchase deal?

    Gilead: We made a special deal with France for sofosbuvir 41,000 EUR per head. We’ll drop that by 5% to 38,750. Take it or leave it.

    Australia: OK, we’ll take it.

    If 230,000 people in Australia have HCV, then 230K*66K = 15180 Million = $ 15 Billion.

    …. Maybe the Australian govt should give a tax rebate to everyone who sources their own treatment? The saving would be massive.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    27 February 2016 at 4:12 am in reply to: What is the perfect medical treatment system #12785
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    There are three things in this world that I really don’t understand. Nuclear physics, high finance, and american gun laws.

    Does anyone want to talk about nuclear physics? The other two suck.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 February 2016 at 4:56 am in reply to: Viekira RBV Failure – Retreatment #12715
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    It can be difficult to separate the marketing from the medicine. Also, the numbers of people in those relapse studies are very small (22 or 25), so it is hard to get anything concrete back out. Mostly, Merck, BMS, and Gilead do not cooperate. So a study by Merck about relapse will most probably not include the possibility of re-treatment by a molecule from Gilead or BMS or Abbvie. If you look at the wiki pages for Daclatasvir (from BMS) and Ombatisvir (from Abbvie), the two molecules look quite similar (“me-too” drugs?).

    https://en.wikipedia.org/wiki/Ombitasvir
    https://en.wikipedia.org/wiki/Daclatasvir

    Probably one is better than the other. But there is no way Abbvie will publicy admit it. And resistance to one does not automatically imply resistance to the other, as they will each block the NS5A binding site in a slightly different way. So if one didn’t work, you’re probably still good to try the other, along with sofosbuvir (a very effective polymerase inhibitor) which is a “new” one relative to your previous treatment (as per the advice of “adding an agent of a new class”;).

    Anyway, I’ll shut up now, and let you and the Doc figure out what is really the best way to go…

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 February 2016 at 2:03 am in reply to: Any Post-Treatment Reflections? #12700
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Dan,

    Most probably, the light-headedness will just go away in a couple of weeks once the nerve cells get used to new (proper) levels of enzymes coming from the liver. Well, that was how it seemed to me anyway…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 February 2016 at 1:46 am in reply to: Viekira RBV Failure – Retreatment #12699
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi John,

    According to this review paper,

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961994/

    Gt1a people with Q30R variants should be responsive to Daclatasvir rather than Ledipasvir. So if this is all correct and I understand it properly, it looks promising for you. Generic Sof+Dac is readily available through the buyers club:

    http://fixhepc.com/getting-treated/how-to-do-it/buyers-club.html

    Compared to 3x$690 for the pre-treatment tests that you mentioned, you almost can’t lose by just going ahead and trying it for real ($1400).

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

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