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  • 3 May 2016 at 10:19 pm in reply to: HCV New Drugs Blogspot #16599
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Interesting! Seems like a kind of “compulsory licence” for the USA? But I could not access the original article. For anyone who wants to follow up further, here is a link:

    http://content.healthaffairs.org/content/35/5/791

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    3 May 2016 at 2:57 am in reply to: Any Post-Treatment Reflections? #16529
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hey Gaj, :idea: :idea:

    If only FixHepC would ship one of those with every 12-week treatment, they’d out-sell Gilead in no time!?

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    3 May 2016 at 2:48 am in reply to: Google & fixHepC #16528
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Just did a search on google.com for “generic hepatitis c treatment”. This shows Greg Jefferys AND FixHepC on the first results page. Nearly there now. Soon it will work without the “generic” keyword… :evil:

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    3 May 2016 at 12:05 am in reply to: Any Post-Treatment Reflections? #16515
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi folks, Oor Wullie here!

    Well, heer I am, just aboot twelv wiks after ma treetmint (that’s EOT+12 in sientifik langwidge), an still feeling richt as rain…

    Onyway, nuthin reely speshul tae repport except that ah ma pals are tellin me that the bald patch on the top o ma heed is startin tae disappeer! At furst ah thoot it wus jus Soapy Souter gi’in me the usuel wynd-up cos after ah, ah havnae git eyes in tha back oh ma heed… But yesterday ma gurl-frend Primrose took a photo o the top o ma heed tae proov it, an ah swear its true! … Ah’m sprootin fresh little hairs all ower the place!! Ah dinna unnerstand the sience behind it, but ahm sure its ah linked tae gettin rid o the famous virus. Jings, if it carries on like this, its gonna cost me a small fortune at the barbers!

    Hus onyone else hud a similar eksperience??

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    2 May 2016 at 9:18 pm in reply to: TPP set to potentially block generics #16510
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Hazel, I completely agree. This is the most insidious part of the TPP. It aims to give “investors” (in practice, that means american corporations) the power to challenge and over-rule policies that have been set constitutionally by the participating state governments (in practice, that means non-american governments). What government in their right mind would ever agree to a deal like that?

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    2 May 2016 at 11:46 am in reply to: TPP set to potentially block generics #16498
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    What does “investor-state” arbitration mean with the TPP?

    http://www.theatlantic.com/politics/archive/2015/06/tpp-isds-constitution/396389/

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    29 April 2016 at 2:12 pm in reply to: TPP set to potentially block generics #16353
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Here is an interesting article from PublicCitizen entitled “The Trans-pacific Partnership: Restricting Access to Affordable Medicines”

    http://www.citizen.org/tpp-public-health

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    28 April 2016 at 11:36 pm in reply to: What if fixhepc would become an international ww forum for HCV? #16310
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    There have already been some efforts behind the scenes to make some “official” translations of the most important sections of the FixHepC web site (French, Vietnamese, … and maybe others?). Maybe they will eventually appear one day?

    But the info on the english version (especially the blog) is evolving very rapidly and it is hard for the translators to keep up. Also, as far as I can see, there may be a technical question of how to integrate different language versions with the main forum?

    The automatic language translation feature (menu at top left of page) is probably good enough to let most non-english speakers get the gist, but it would obviously be better if there was a top level language version for each of the main world languages, and a language-specific web address for each…

    Anyway, if anyone is really motivated to do some serious translation, they should contact Dr James (help@fixhepc.com) with any suggestions or ideas.

    Cheers, Ciao, Hasta luego, À plus,

    Vororo

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    21 April 2016 at 12:11 pm in reply to: Baby Boomers #15925
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Thanks Gaj for the nice explanation and graphic.

    Thanks Londongirl, also. There is probably a good evolutionary reason for our fear of dentists :ohmy:

    But the thing that still bothers me is how it was transmitted before battle-axes, syringes, and dentists were invented?

    Current medical opinion says it was not by insect bites, even though insects are the main vector for the other flaviviruses (https://en.wikipedia.org/wiki/Flaviviridae).

    … Dog-bites?

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    21 April 2016 at 10:07 am in reply to: Baby Boomers #15918
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    fretboard wrote:

    mgalbrai wrote:

    A lot of blood flowing during the first half of the 20th century all over the world. Given the unsanitary conditions, both on the battlefield and off, its no surprise that a blood borne disease went “viral”. Add Korea and Vietnam, factor in the mass smallpox and polio vaccinations and you have a perfect setting for an epidemic.

    Good deduction there Mike, so how did the various genotypes come about? Just asking cause that area always confuses me. :)

    [/quote]

    Yeah, no doubt technology and bloody wars contributed a lot to the spread. But the fact that there are 6 genotypes or more must mean that the virus has been in the human population for a very long time.

    Until modern medicine came along, human life expectancy was only about 30 years. So back in ancient times the chances are pretty high that anyone with the virus would die of something else long before it would cause any problems…

    https://en.wikipedia.org/wiki/Life_expectancy

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    20 April 2016 at 11:43 pm in reply to: Unable to acquire a prescription in NZ #15892
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Just to add my own two-cents,

    I have the feeling (from my own experience anyway), that many Drs are unwilling to actively support the use of overseas generics, but once they know that you are taking them, they will support you as far as monitoring is concerned. This is their duty of care, after all. And they will be (or should be) very reassured to know that your generic treatment is sourced from a reputable source such as FixHepC or MonkMed.

    And once they see from the first blood tests that the stuff really works as advertised, they will open up and start telling you how wonderful the new generics are.

    Again from my own experience, my specialist was at first absolutely astonished that I had flown to Australia to get the treatment. But when I showed him a copy of the prescription from Dr Freeman he was quite satisfied that all was well.

    Twelve weeks later, and UND, he told me that I had done absolutely the right thing, and he even seemed apologetic that he had to follow national guidelines and was thereforepowerless to prescribe himself… Still, he told me that if he ever has another patient like me he will keep FixHepC in mind.

    So at least as far as Hep-C and generics are concerned, my advice to anyone who might be reading this is not to wait for permission from your own Dr, but just take the initiative yourself and go for it through the Buyers Club!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    14 April 2016 at 10:53 pm in reply to: Gilead- Evil in the Form of Greed!! #15489
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    I remember back in the nineteen seventies when we were all growing up, “Career of Evil” was just a dark song on a concept album with cool guitar riffs:

    So much for progress?

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    13 April 2016 at 1:18 am in reply to: Attempted hacking on Delphi forum (Hepatitis Central) #15356
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Folks,

    I must say, I would doubt very much that anyone is being hacked by “BigPharma” just because they are posting on FixHepC or any other Hep-C forum. If that was really happening, and if it ever came out, the negative publicity would be enormous. A bit like tapping Princess Diana’s phone calls. As a business model, I am sure their best strategy is to continue to talk as if generics and buyers clubs do not exist.

    But the reality is that these days, as soon as you post an e-mail address on-line, you will be subject to all manner of probes by automatic software. A lot of this is not real “mal-ware”. It is just search engines trying to collect up-to-date mailing lists for special interest mail-shots.

    For example, did you know that every time you upload a photograph to FaceBook, within 2 seconds it is automatically processed by automatic face recognition software to identify who is in the picture … Except in certain European countries where this is against the law?

    But there is also real mal-ware out there as well that will attempt to find the password of your mail account. Often it is just to hijack your account to be able to send spam in bulk. But if your main mail password is cracked, that could lead to more serious intrusions…

    Probably many of don’t need to be given basic advice, but here are a few tips anyway:

    * Use disposable mail accounts for one-off on-line purchases and for on-line social networks.

    * Use non-memorable passwords that use all the characters on the keyboard and no real names or dates.

    * Have two computers / laptops / ipads. One for the social stuff on the web and one for serious stuff like your real-life friends, your work, your on-line banking.

    * Never download “free stuff” from the web onto your main laptop or ipad.

    * Never reply to unsolicited mail

    * Never tell anyone else your passwords (including your kids)

    * Install mal-ware detection software on your computer.

    And if you really want to close all the doors and windows:

    * Use Linux or Mac instead of Windows as the operating system on your “main” machine (or even on all of them)

    Cheers,

    (and if any spam-bots are reading this, you can reach me here: vororo 911 at gee-mail)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    9 April 2016 at 11:45 pm in reply to: #Latest NZHF magazine (Generic Ledipasvir) #15149
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    LondonGirl wrote:

    Journalists are writing …in the UK, but Gvt interfering,. The BBC is sadly no longer what it was ….

    Here is a copy of the mail message that I sent to the BBC on 29/12/2015:

    Dear BBC,

    This is a message for Fergus Walsh or anyone else in the Health & Medical Team who might be interested to take up this story.

    I would like to draw your attention to the amazing story of Dr James Freeman, a rather special GP in Australia, who a few months ago launched “fixHepC” (http://fixhepc.com) – a “buyers club” for Hepatitis C sufferers that is rapidly becoming the only feasible source of treatment for many UK, european, and American patients.

    Why might this make a news-worthy story? Here are some basic facts:

    * The hepatitis C virus has been called a “silent killer” because it can take many years for people to learn that they have the virus, and then many more years for serious life-threatening diseases such as cirrhosis or even liver cancer to develop. But even if these conditions do not ultimately develop, the effects of the virus can be devastating, with the principal symptom being fatigue.

    * Approximately 659 000 people in the UK have the hepatitis C virus, which is the principal cause of cirrhosis of the liver and liver cancer.

    * World-wide, it has been estimated that some 170 000 000 people have the disease. This makes hepatitis C a global health issue.

    * While very effective treatments now exist, the list price of “sofosbuvir”, manufactured by Gilead Sciences Inc., is a staggering $84 000 for 3 months of treatment. This makes it literally $1 000 per pill. Furthermore, sofosbuvir, should not be taken alone. It has to be used together with another drug such as daclatasvir or ledipasvir, which increases the cost even further.

    * In the UK, the cost of the same or similar drugs is breath-taking, costing from around £25 000 to £ 60 000, according to the latest NICE recommendations:

    https://www.nice.org.uk/news/press-and-media/nice-recommends-new-treatment-options-for-hepatitis-c

    * This means that at today’s prices, it would cost the UK between somewhere between £16 Billion and £39 Billion to treat everyone in the UK who has this disease.

    * Consequently, treatments in the UK have to be prioritised, and many people with the disease will have to wait until their condition becomes life-threatening. This means that even though a treatment now exists, many people still have to suffer the often devastating effects of the disease just because of the price. Similar cost-based restrictions in the USA and the rest of europe also apply.

    * Because of the extortionate cost of the American drugs, more and more people from the UK, the USA and the rest of europe are travelling to Australia to obtain a treatment.

    * The fixHepC buyers club is able to source quite legally for Australians the same treatment from generic suppliers in China at a total cost of between $1000 and $1600 for a full 3-months of treatment. This is nearly 1/100 of the American list price.

    * fixHepC is treating some 100 patients per week, and the numbers are rising rapidly.

    * The Australian government recently negotiated a deal with Gilead to provide *unlimited* access to all Australians to a hepatitis C treatment, regardless of the severity of their disease. But this will still cost Australia many thousands of dollars per person. Consequently, more and more people are still turning to the fixHepC buyers club for a treatment.

    For more background information, I urge you look at the fixHepC “blog”

    http://fixhepc.com/blog.html

    I also encourage you to look at some news and TV reports that have appeared recently in Australia:

    https://au.tv.yahoo.com/sunrise/video/watch/30286645/australias-own-dallas-buyers-club-initiative/#page1

    http://www.smh.com.au/national/health/fixhepc-the-buyers-club-for-hepatitis-c-drug-inundated-with-inquiries-20151002-gjzud9.html
    http://www.smh.com.au/national/health/hepatitis-c-drug-buyers-club-aims-to-set-up-new-source-of-support-20150924-gjts1t.html

    I am sorry to report that this mail went unanswered…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    8 April 2016 at 11:45 pm in reply to: How long should I wait after treatment before getting pregnant #15095
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    According to this article, we each have about 32.7 Trillion cells in our bodies.

    http://www.smithsonianmag.com/smart-news/there-are-372-trillion-cells-in-your-body-4941473/?no-ist

    Now, 32.7 trillion = 32.7 * 10^12. So if you are thinking about how much of an unwanted drug molecule you might want to have in your body, wouldn’t it be reasonable to say you’re pretty safe if you get down to less than about one molecule per cell?

    Or in terms of moles, your pretty clean once you get down to about 6.023*10^23 / 3.27*10^13 = 2*10^-10 = 20 nano-moles?

    Me, I’m pretty sure I’ve got nanomoles of all kinds of crap in my body, but it probably isn’t doing any harm (and I don’t believe in homeopathy).

    So wouldn’t this be a “safe enough” point at which to break out the champagne and have an early night?

    [… Just a thought, since getting pregnant is physically impossible for me as I am only a cartoon character… ;) ]

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

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