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  • 8 April 2016 at 10:21 pm in reply to: #Latest NZHF magazine (Generic Ledipasvir) #15094
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    ”hazelriannon” wrote:

    ”And as as far as I’m concerned, any doctor who says people with F4 can wait 5 years should be taken out and shot…

    … with a US Army JetGun!”

    I like it Vovoro but it was: treatment for F4 now, certainly, but everyone else can wait. We beg to differ. I have been F4 17 years but have seen and heard people suffering much more day to day than I did who show far less damage. I am aware that comment has personally distressed quite a few people who feel rubbed out by that analysis. I understand he is doing liver transplant work and sees the very sickest of us but it is disheartening that he doesn’t seem aware of how limiting all the years up to that point are.

    Thanks for the correction Hazel. But my point, and yours also, is just the same. The idea that people who have a serious illness but who are not yet at the point of requiring surgery should be able to wait is just intolerable when there is a cure available.

    It is easy for a specialist to look at the charts of life-expectancy and cost-of-treatment and pronounce a decision.

    I can do exactly the same calculation on whether it is cost-effective to spend money on my old car or whether it is better to spend nothing and wait until it claps out completely.

    But with Hep-C, the “official” cost of treatment is FALSE and the HUMAN COST OF NON-TREATMENT IS IMMENSE.

    WHY DO SO MANY DOCTORS CHOOSE TO IGNORE THIS? … present company excepted, of course :)

    And I say CHOOSE deliberately, because with HepC, they must all know by now the enormous racket that Gilead are still getting away with…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    8 April 2016 at 4:17 am in reply to: #Latest NZHF magazine (Generic Ledipasvir) #15048
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Yeah, I can understand its annoying when you start a thread and the replies always seem to end up going off the topic. So I just want to say a big thank you to Tina for telling her story to the world.

    And as as far as I’m concerned, any doctor who says people with F4 can wait 5 years should be taken out and shot…

    … with a US Army JetGun!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    30 March 2016 at 4:04 am in reply to: Has anyone used the buyers club from the UK? #14630
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    That’s right. But you need to get your blood tests done in the UK, in particular to show Dr Freeman (or any other Dr) what Genotype you have. Presumably you have all that already?

    The usual scenario with “NHS Choices” is that you get diagnosed with Hep-C, you go through a long series of consultations with one or more Drs who tell you (unless you are F4) that you have the “choice” of waiting either a long time or a very long time to get treated.

    With FixHepC or Monkmed, you have the choice of getting treated immediately.

    Your choice…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    30 March 2016 at 1:14 am in reply to: Has anyone used the buyers club from the UK? #14624
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Dom,

    It is entirely legal to import personal medication to the UK. Please see:

    http://fixhepc.com/getting-treated/how-to-do-it/worldwide-import-regulations.html#UK

    For possible sources, please see:

    http://fixhepc.com/forum/daa-access.html

    Or the quick and easy way:

    http://fixhepc.com/redemption-3

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    27 March 2016 at 11:12 pm in reply to: Some useful info for Hep C patients in CHINA. #14553
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Me, I only ever buy Levi Jeans. I know I can buy other cheaper jeans of similar quality. But in my head I know that Levis are “better”. Evidently, from an early age I have been brainwashed by cool marketing ads on TV. But it doesn’t matter very much because I only lose about $40 each time I buy a new pair of jeans.

    But with medication it is different. The same molecule is the same molecule, whether it was Made in China or Made in Ireland. And either way, I am not going to wear the label on my ass.

    So I’ll always buy the cheap one and put the savings towards my Levi Jeans fund…

    … which is currently running at a surplus of about 1,000 pairs.
    :)

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 March 2016 at 11:24 pm in reply to: Has Buyers Club been closed by the Australian government? #14506
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Just found this (dated 18/12/2015):

    http://www.brint.com.au/news/australian-government-stops-all-air-shipments-from-bangladesh-egypt-syria-yemen-and-somalia-to-australia-until-further-notice

    Lets hope there is still some sanity in the world, and that Dr James will give us an update soon…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    26 March 2016 at 11:04 pm in reply to: Has Buyers Club been closed by the Australian government? #14505
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi A.L.

    Are you referring to this?

    http://fixhepc.com/getting-treated/how-to-do-it/buyers-club.html

    As you say, that post was dated 31 August 2015. Since then there have been no problems as far as I know.

    … And even if there was a hicky with shipping Hep-C treatments out of Bangladesh last year, why would this lead you to believe the Australian government might take a negative interest in the Buyers’ Club?

    Everything that the Buyers Club is doing is entirely within the law in Australia…

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    25 March 2016 at 2:04 am in reply to: When Are You Cured? #14423
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Yeah, absolutely agree. As usual, this kind of calculation starts with the implicit assumption that the cost of treatment is a “given” and then goes on to analyse the complex medical question of whether and how a certain treatment is “cost-effective”.

    Brilliant. I can do that kind of thing myself with absolutely no medical training. Its not that much different from working out whether it is cost-effective to take a holiday from time to time.

    Why do so few medical people start from the right place before they do their complex calculation – i.e. why don’t they ever ask what is the true cost of a drug treatment, and why are so many people suffering due to corporate greed and price-fixing?

    And while I’m on the subject, It really pisses me off me every time I read the standard Gilead speel about how their treatment is cost-effective compared to a liver transplant…

    What about the human and job-productivity cost of waiting all those years until you get to the (almost dead) state of actually needing a liver transplant?

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    25 March 2016 at 1:26 am in reply to: To treat or not to treat: Acute HCV mono-infection #14422
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Looking4Help,

    Thank you for posting! What a story! I have never seen ALT/AST numbers like those before. Are you still alive to read this? ;)

    Nearly everyone on this site has chronique Hep-C, not acute Hep-C.

    Correction… Many of the people on this site USED TO HAVE chronique Hep-C. Now more and more are being cured with generic DAAs (Sof+Dac or Sof+Led), with very few side effects (me included – and absolutely no sides).

    Before the days of DAAs, the usual advice was “wait and see”. But this was mainly because the classic Interferon+ribavarin treatment was expensive, horrible for many, and had only a moderate success rate.

    Maybe you will clear the virus naturally… But you will only know that in 6 to 9 months time. Why wait and suffer? My advice is find out what your genotype is, get a sympathetic Dr to write a prescription, and order your generic treatment right now. There is lots of advice on here on how to do it. Most people on this site report VL < 15 or even UND after around 4 weeks. You can do it all on-line for about $1000, more or less, from a reputable source (again, check out the various threads about this). Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    18 March 2016 at 11:16 am in reply to: EOT Viral Load result #14085
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Yes!!! …. Terrific news Tina!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    17 March 2016 at 11:52 pm in reply to: Alibaba – Kg Quantities of Sofosbuvir #14042
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Gaj,

    My statement about a general perception that chinese products might be fake wasn’t aimed at anything you said (that’s why I put it in brackets). I remember when I was growing up, anything with a “Made in China” label was thought to be cheap and inferior. So that was a side thought aimed at myself just as much as anyone else.

    Still, it does seem to me that a lot of people come on this forum with big doubts about whether generics are “the real deal” or whether they work as well as the branded product…

    So the point I was trying to make was that it seems fair to suppose that the people who work in those Chinese companies are trained and experienced chemists. And most probably they take pride in their skills, just like any other professional. Why would they be making anything other than the real deal?

    Me, I have a degree in chemistry and I spent many hours in the lab mixing reagents and purifying the product… I hated it. But the idea that a professional chemist can make 99.9% pure product once he knows the target formula doesn’t surprise me at all. And once an NMR spectrum is available for a reference molecule, its pretty easy for a professional chemist to verify that he has made the real deal. So yeah, I stand by my original statement – until there is evidence to the contrary, its reasonable to suppose that the chinese products are the genuine article.

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    17 March 2016 at 4:30 pm in reply to: Alibaba – Kg Quantities of Sofosbuvir #14027
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo
    Gaj wrote:

    The questions are;

    – Can the manufacturer accurately recreate an analogue of the original chemical?
    – Can they do so for all production batches?
    – How robust is their supply chain?

    In the case of Mesochem that you mention, answers to all of the above have been proven over the last 12 months or so. They are a tried and tested supplier.

    It appears there is now some more competition which is good for HCV sufferers worldwide as long as it doesn’t drive market prices down to the stage where quality of product and integrity of supply are compromised.

    Good questions, Gaj. No doubt the majority of those manufacturers are aiming at the Chinese pharmaceuticals market. In China, there are some 30 million people with Hep-C:

    http://www.hepcoalition.org/IMG/pdf/countries_excluded_gilead_s_vl.pdf

    I have no reason to believe that Chinese chemists are any less skilled than there western counter-parts, and it is very hard to believe that the Chinese government will allow sub-standard products to be sold in their pharmacies.

    So unless there is evidence to the contrary, I would suppose that the chinese products are the genuine article (minus the Gilead brand name, of course).

    [Why is it that people in the west have the idea that china produces fake products? Is this just more subtle brain-washing from Big Pharma?]

    Anyway, if anyone (or should I say any Buyer’s Club?) is considering these sources, they should naturally get the stuff properly tested like Dr James did with the Mesochem product.

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    17 March 2016 at 6:13 am in reply to: Alibaba – Kg Quantities of Sofosbuvir #13975
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Hi Gaj,

    You’re right. It’s just “News”, and not a recommended source for ordinary folk in search of 12 or 24 weeks of treatment :)

    Cheers,

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    17 March 2016 at 12:57 am in reply to: Generics Late Breaker Accepted for EASL in April #13944
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    Great stuff!!

    As soon as I get my latest VL results (EOT + 4 Weeks and a bit) I will upload to GP2U…

    Sock it to them, Dr James!

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

    11 March 2016 at 2:14 am in reply to: VA Approves Tx for All Vets! #13643
    Avatar photoVororo
    • Guardian Angel
    • ★★★★★
    @vororo

    According to this article, the list price of zepatier is $54,600 for 12 weeks.

    http://www.bloomberg.com/gadfly/articles/2016-01-29/merck-zepatier-hepatitis-c-drug-price-could-be-a-game-changer

    Coming after Gilead, this makes Merck look like angels. But no doubt the usual game is at play. Namely, charge whatever the market will bear, keeping in mind the price set by the competition.

    I expect sooner or later someone will work out how much it really cost Merck to develop zepatier, and how much it really costs to make the stuff.

    And then, no doubt, we will discover once again that there are no angels in the world of Big Pharma. Only Big Businessmen…

    Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
    Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
    Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
    Week4: AST 47, ALT 58. VL < 15 (unquantifiable). Week12 (EOT): AST 30, ALT 26, VL UND Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND Ever grateful to Dr James. Relapsed somewhere after all that... Bummer! Jan 2018: VL 63 000 (still GT3).

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