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Viewing 15 posts - 196 through 210 (of 543 total)
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  • in reply to: Otago Daily times New Zealand #7309
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great story, hope it encourages and gives heart to our Kiwi hep cousins to seek help :) Definite kudos to Hazel for having the courage to get it out there.

    When there was a suggestion put on the forum that Harvoni would become available in NZ from Feb at the cost of “about $125 per week”, I wrote to the NZ Ministry of Health, who put me onto PHARMAC. Just received their reply:

    Dear XXXX

    Thank you for your email about funding for ledipasvir with sofosbuvir (Harvoni).

    PHARMAC received a funding application for ledipasvir with sofosbuvir (Harvoni) in February 2015. The first step in assessing the funding of a new medicine is for the application to be reviewed by the Pharmacology and Therapeutics Advisory Committee (PTAC), our clinical advisory committee. PTAC also has multiple Subcommittees, including one that provides specialist advice on Anti-Infective treatments. These committees provide us with expert, objective advice on medicine funding opportunities.

    Harvoni was discussed by PTAC at their meeting in May. The minutes from this meeting can be found here: http://www.pharmac.health.nz/assets/ptac-minutes-2015-05.pdf

    It is important to note that PTAC does not make funding decisions. PTAC provides clinical advice to PHARMAC. Additionally, a positive recommendation from PTAC and/or its Subcommittee does not guarantee the medicine will be funded. It is just the first step in the process. PHARMAC must then assess a number of other factors. This will include economic and commercial considerations as well as the clinical advice we received from PTAC and the Subcommittee. Further details on the process that PHARMAC uses to make funding decisions can be found on our website here: http://www.pharmac.health.nz/assets/factsheet-04-making-funding-decisions.pdf.

    You can follow the progress of this funding application using our online Application Tracker:

    http://www.pharmac.govt.nz/patients/ApplicationTracker?ProposalId=1344

    http://www.pharmac.govt.nz/patients/ApplicationTracker?ProposalId=1340

    You will see on the Application Tracker, that these funding applications have been ‘ranked’. This means they have been ranked against all other funding applications currently under consideration. We regularly reassess the relative ranking of medicine funding applications which means the ranking can change over time.

    Unfortunately, we are unable to provide a definitive timeframe for if or when a funding decision will be made for these medicines. This is because there are a number of factors that can affect the relative ranking and funding timeframe for a medicine. These include the success of commercial negotiations with the supplier (including changes in price of the medication), new clinical data and/or the other funding applications being considered at the same time. Further information on how PHARMAC works can be found on our website here: http://www.pharmac.health.nz/about/your-guide-to-pharmac/

    We are unable to advise how much Harvoni would cost to purchase privately as it may vary between pharmacies. We recommend comparing prices between several pharmacies if possible.

    I hope this information is helpful. Please feel free to contact us again if you have any further questions.

    Kind regards

    Lauren Grierson

    PHARMAC


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: Customs Issues-Success or Failure #7305
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Merry Christmas guys :)

    From all of us in the unfashionable Hemisphere lol


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: Nadia’s journey #7245
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Great news, Nadia! Many congrats :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7228
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey the same to you, Cindi. All the best for you & J :)

    All of us KNOW you’re going to have an awesome Christmas! :cheer:


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7219
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Ha, cool! B)

    That was awesome Tina! Really enjoyed my full-volume 3:50 secs of power & influence, woohoo :lol:


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7214
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey 2b!

    Us aussies are riff-raff by birthright, doubt there’s gonna be any risk there :lol:


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7212
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk
    Tina-Hill-facebook wrote:

    and so you should :P

    :lol:

    Thanks Tina!

    I’ll try not to let the power go to my head…whatever it is :) lol


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7210
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Where…wwha?? /pats pockets uncertainly

    Damn! Must have caught me while I was asleep lol

    Do we get some kind of secret password/handshake? I do kinda feel unaccustommarily exalted right now :P


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7203
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    I’m not sure how much significant monies they were losing in non-Aust sales overall, but I’m sure the global interest generated by the club wouldn’t have been pleasant, from a.PR POV.

    I think it was more a manoeuvre designed to shut down a political embarrassment.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: New compound triggers immune response #7146
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Hey thanks for your well wishes, Cindi…I appreciate it. Me too.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: Merry Christmas!!!! #7143
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    I reckon you’d be right there Bloot :)

    Sorry for my late congrats too Nello – an awesome way to end the year!


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: HCV-Related Nervous System Disorders #7142
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    How impressive is that, Wayne – great to hear!

    All the best of luck for the rest of your treatment :)


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7141
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Far as I know, Gilead obtains around 50% of its profit from hep C meds, and the bulk of its treatment-potential-population is in the US…so why not squeeze the most lucrative market.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: US Moderator announces our drugs are ILLEGAL #7124
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    Oh right of course, the great ‘evil’ that is Obama-instigated socialised medicine :pinch: I for one, wouldn’t be alive today without such an evil existing in Australia.

    And yeah mate, sadly we do. I know “individualism” is held up on a pedestal in the US, but what is a nation if not a community as well. Hell, even Maggie “there is no such thing as society” Thatcher didn’t dare dismantle the public health service in Britain.


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

    in reply to: Background info on Sussan Ley’s announcement #7119
    Avatar photozhuk
    • Guardian Angel
    • ★★★★★
    @zhuk

    I thought the PBAC recommendations were that the DAA’s wouldn’t come under the s100 scheme? Did something change?


    GT1a since 1988, diagnosed 1990
    F0, tx naive
    VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
    Started Mesochem sof/dac 12 weeks 01/01/2016
    11/02/2016 – 6 weeks UNDETECTED
    AST 26
    ALT 26

Viewing 15 posts - 196 through 210 (of 543 total)