Thank you Hazel, I had no idea it was low to nothing so that’s brilliant news!

Smiling now …..

Thanks Coral, yes it is going in the right direction thank goodness. I guess I was just surprised at my slow response as 2b is meant to be the easiest to get rid of, but we’re all different I suppose. I’ve a phone call booked with Dr. J later today so no doubt he will fill me in as to how much longer I have to take the medication. The past 3 days I’ve had an upset stomach, it comes and goes during the day and night but it’s really getting me down this morning. Hopefully it will pass soon as I’m invited out to a lovely birthday lunch and I’d really like to go but no point if I still feel like this. Western medicine always has this affect on me so it’s just to get on with it, but some days it’s harder than others. I have really good days too so I’m not complaining, just struggling a bit at the moment. Anyway thanks again for your kind words of encouragement, my friends are lovely and supportive but no-one understands properly what it’s like to have this disease unless they have had it themselves. As you say the outcome will be so worth it.

Hi,

I had a chat with Dr. Freeman last night and I’m having a 4 week extension with sof/dac. And yes, it will b nice to see undetected one day. Thanks for your input and your message, hope all good with you.

Hi Coral,

Thanks, yes it’s all sorted and the meds are on their way, and looking forward to taking my last tablet in 5 weeks time.

The side effects have definitely decreased on the lower dosage, my son keeps remarking on how much energy I’ve got and I feel so much happier in myself.

I’m thanking my lucky stars for finding out about Dr Freeman and this site, and for having the money to buy the drugs. I am truly blessed!

Hi Coral,

I was doing great until about a week ago and then took another dive. Stomach pains/feeling sickly/bloated tummy/zero energy, no pains today but have all the rest of the side effects. I feel hungry but find it hard to eat as I don’t know if the food will settle my stomach or make it worse. I’ve lost a few pounds in weight so now have skinny arms and legs with a distended tummy – not a good look!

I’m 3 days into the last 4 weeks of the meds. Dr. Freeman said it’s preferable to take 8 weeks at this point with being a slow responder, but understood that I’m not rolling well with them and figured that 4 weeks would be enough. I’m going for my 12 week blood test in a couple of days and I’m trying not to dread the results, probably because of previous disappointments.

So I’m feeling fed up at the moment, I stopped taking my herbal HRT medication 12 weeks ago so that isn’t helping my frame of mind. The hot flushes are back some nights and I’ve tossed and turned so much that I’ve triggered my old back injury so am headed to the chiropractor again this week.

I’m still taking the reduced dose so no idea why I’m feeling so awful, maybe it’s just the build up of chemicals in my system and my body really doesn’t like them. I know it’s just to give my head a shake and keep taking the tablets, I’m very lucky to be in this position and don’t have any right to complain and I keep reminding myself of this when things start to overwhelm me. My landlord has sent various workmen round to do maintenance on my 300 year old house which has been really disruptive, and I could have so done without all the dirty boots and bags of plaster traipsing through my home. Hey ho! At least the work is done now and it’s just to clean up the mess, slowly I might add.

So my dear I bet you’re sorry you asked! Thank you for your concern though. I hope I don’t sound too miserable as I do my best to be as upbeat as possible and don’t want to put years on you!

The good news is that I’m going to stay with some friends up north in the Lake District next week and hope that the break will do me the world of good. I’ll message you when I get home and hopefully tell you that I’m doing good again.

I hope all’s well with you, bye for now x