Home › Forums › Main Forum › Patient Stories › Debs going on Cipla generics……
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1 January 2016 at 8:48 am #7676
Hi! Been meaning to do this for awhile, say Hi all. Got that Diana Ross song in my head “I’m coming out” Time for a proper introduction…….
Debs here, from u.k, going on the redemption 3 trial and should get my Cipla meds next week!!!! Have talked to London girl via e mail ( lovely lady) I have been lucky enough to get NHS monitoring and my appointment should tie in nicely just shortly after the meds arrive.
A Lot of love and happiness on the site tonight/today! All the best for 2016 everyone.Deb xxx
1 January 2016 at 8:54 am #7679Hi Debs,
Good on you, good luck!
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!1 January 2016 at 9:18 am #7680Thanks CJ – so glad things have gone so well for your son x
1 January 2016 at 9:38 am #7681Welcome Debs hope it all works out for you.
cheers
Two time relapser.
SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeatedGT 3 – about 28 yrs with HCV
1 January 2016 at 10:49 am #7690Well done on getting things underway Debs, and well done on getting NHS monitoring. What area of the country are you in?
1 January 2016 at 10:58 am #7691Well done Debs – great to hear you are all sorted for monitoring too…look forward to hearing more as your tx progresses. Very promising after all the angst you guys have been through in the UK
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 261 January 2016 at 1:30 pm #7701Yay Debs Are we going to swallow our 1st tab online together?
Fingers crossed for a speedy post-man – Here’s to you my friend xx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC1 January 2016 at 2:00 pm #7705Ha Ha, LG, like it! Why not?
Yes, we will be looking out for that postman next week!
Thinking about it I will probably take mine after my appt. on the 12th. They may take some bloods etc. And you might not be able to wait that long!
Thanks everyone for the well wishes!
Alsdad, I am northern but I don’t want to say anymore than that at the moment as I am very aware that my lovely consultant and nurse are going a bit out on a limb here and I dont want to land them in it so to speak. A few of us on here seem to have managed to get NHS monitoring though.
They do want to administer ribavirin though. I guess because NHS guidelines are 8 weeks Harvoni with ribavirin for non cirrhotics. I think they are re-considering as I am getting 12 weeks meds. I hope so!
Warm wishes to you all
Deb X1 January 2016 at 2:05 pm #7706Let’s do it!
I don’t have consultant appointment yet, as it’s NYrs Day, I shall not disturb the Doc, but need to chase up & hopefully speed up ‘good old’ NHS beaurocracy – GP and I, anxiously waiting!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC1 January 2016 at 2:17 pm #7708Hey I couldn’t resist taking a pic this morning as a kind of ‘D-Day’ record, after waiting so long to crack them open lol
Well I’m definately going into battle for sure heh
Won’t be far off for you guys
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 261 January 2016 at 2:23 pm #7709Well done Zhuk ! Keep us posted, we’re right behind you.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC1 January 2016 at 2:38 pm #7711Thanks LG! That means a lot, I appreciate it
Might have to start my own thread so as not to hijack Debs heh
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 – 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 – 6 weeks UNDETECTED
AST 26
ALT 261 January 2016 at 3:18 pm #7713Hi Debs and welcome,
Happy for you!
You will see it is really an amazing treatment. So powerful and in the same time so easy!
Good luck and let us know your improvements!
HCV since I don’t know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful 🙂
virus not detected 06.02.2016 & SVR24
isaing4@gmail.com1 January 2016 at 5:47 pm #7721Thanks isaing4 for those words of encouragement
LG yes that would be good!
Here’s hoping you get that consultants appt. soon!
And Thanks Zhuk for the support…..We can support each other on here….good idea the photo! Going to look at your thread now -think I spotted it on the way in!
Deb X1 January 2016 at 5:52 pm #7723Am most happy for you Deb, what a great way to start the New Year!
& with NHS monitoring in place, congratulations!
Welcome to the party!
Geno 3, Fibro 8.7 pKA, tx experinced in 2005 – Peg/Riba, relapsed.
Started tx 1/12/2015 with Indian Sofo & Chinese Dac.
5 weeks result all normal, ALT 18 – down from ALT 73 at the start of tx.
5 weeks HCV PCR RNA – UND. – down from 2 ML
9 weeks HCV PCR RNA – UND. -
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