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18 January 2016 at 2:25 am #9564
OK so I’ve wanting to ask this for a while but have been a little shy to do so.
After reading Archer’s post it gave me the courage to put this out there so thank you Archer
Since I have started treatment I have noticed significant changes in my womanly cycle…. has this happened for anyone else? If so please can you pm me. I have also notified my aftercare team and have advised them that I am posting this query as I feel that the information we can collate will be valuable for other ladies about to start treatment.
Tina
SVR 24
18 January 2016 at 5:45 am #9589Hi Tina
I can’t help. I had a hysterectomy 20 years ago Probably too much information but I didn’t want you to think I was ignoring your question.
YMMV
18 January 2016 at 6:16 am #9591Thanks Lynne
SVR 24
18 January 2016 at 7:07 am #9599Hi Tina, I am menopausal and had frequent flushes, hot as Hades. I was dreading summer. Realised a couple of weeks into treatment they were stone cold dead.
18 January 2016 at 7:38 am #9605Hi Tina…..Ditto…..Past it…Unfortunately there may be few of us “ladies of a certain age”
18 January 2016 at 10:05 am #9616Debs, Lynne & Joy thank you for getting back to me and for putting a smile on my face. My nurse specialist has been in contact and advised me that cycles can become a little messed up whilst taking DAA’s. If things haven’t resolved in the next few days I will be going to see her. For now at least until I start nightshift tonight its the couch and cuddles with my dog.
Tinaxx
Oh Joy on another note that’s awesome about your flushes going since being on treatment, makes me wonder if treatment has an effect on oestrogen and estrogen?? mmmm interesting.
SVR 24
18 January 2016 at 11:24 am #9630Wah, at 51, I get both, heavy period and hot flushes, for the same week. Was the same before treatment though.
Genotype 3 30 years, 2x treatment interferon/ribavirin non responder. Cirrhosis 17 years. Fibroscan, decompensating, 40 down to 22 by 29/3/16- now down to 6.5, normal, no cirrhosis. Started Buyers Club Sof/Dac 14 Nov 15. SVR 12 29/0716
18 January 2016 at 11:39 am #9632Hi Tina, My ‘womanly cycle ‘ left the building some years ago. Early. I have read this could be attributed to having virus and I do think it would help to offer these details up to the powers that be, IF they’re interested (!) However, in my experience, most if my Drs are not interested in symptoms, my last one announcing haughtily – ‘We are only interested in the liver’ . Hoping my new fantastic female consultant may show an interest, I will try to remember to ask her / offer her this info. Of course the HepC virus could affect women in a different way to men – we have different bits! – and as a blood born virus which gets everywhere, like the meds – It makes total sense, to me anyway.
Another lady who has done tx and cleared, warned me of hormonal changes before I started saying tx was rather ‘intense’ – So some of us are picking up on this for sure.
Meanwhile, last night I woke up at 2.30 am in a hot sweat and threw all my clothes off – that’s with ‘no hormones’ to speak of. First time it’s happened since starting treatment. Those in UK & Aus are experiencing extreme weather ie hot and cold, so this may contribute also?
Well done for posting .(edit) ps I have also suffered multi-miscarriage in the past & baby born early. Have also read the virus can cause this.
Who knows, maybe these sx are ‘putting hormonal balance back on track ‘ – Now that would be good
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 January 2016 at 12:13 pm #9638ps I have also suffered multi-miscarriage in the past & baby born early. Have also read the virus can cause this.
Wow LG, exactly what I wondered when I had many miscarriages & had J early.
I often wondered if the virus was to blame?
My liver specialist at the time said they just didn’t know.Also, one particular horrible tx I went through , the second one, sent me into early menopause.
So obviously some meds can do this.
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!18 January 2016 at 12:20 pm #9640Wow LG, exactly what I wondered when I had many miscarriages & had J early.
Sorry to read this CJ – I do hope some Drs read this and I do feel it could be beneficial to report this.
xx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 ‘In the slow lane’
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC18 January 2016 at 12:31 pm #9642Yes, maybe it would.
I wonder how many others this has happened to?
Maybe there’s lots out there?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results….pending….
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!18 January 2016 at 12:34 pm #9645past all that too sorry
G1b since “87 This is first treatment VL 1,100,000 F4
24 wk Sof+ Dac started 17/12/2015 Riba 06/01/2016
HB 145 WCC 4.1 Platelets 1078 wk UNdetected
18 January 2016 at 1:09 pm #9654I haven’t noticed any changes but may not be far enough in to know yet.
I hope things settle down for you.
I had 2 overdue bubs and no miscarriages just for comparison sake.
3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/DacPre Tx – ALT 71 AST 40 V/L 9 million
Day 11 – ALT 12 AST 15
4 week – LFTs normal – detected (same sample sent for v/l showed undetected) :/
6 week – UND
12 week EOT – UND
SVR4
SVR1218 January 2016 at 2:49 pm #9660I also experienced early menopause and I did wonder if it was due to the virus. When I had my hormones tested a few years ago I had very low levels of oestrogen etc. and as the liver regulates the balance of hormones I guess it makes sense that levels can be erratic and we get all the wonderful side effects of early menopause, low hormone leves and Hep C. Fabulous!
Sorry to hear about the miscarriages that others have suffered. Like Jaz I also had two overdue babies and no miscarriages.
On another less serious matter has anyone else had really dry, thinning hair? I had to have quite a bit cut off last week due to dry split ends and I can’t think of anything that I’m doing differently except the medication. Understand it’s way down on the list of serious sx.
18 January 2016 at 3:39 pm #9666Hey ladies thank you for your input its good to have opened dialogue about this. I also think that HCV has a lot to answer for when it comes to the issues and symptoms that have been covered in this thread – in particular your comment Coral and how the liver plays a substantial role in hormone regulation.
I also strongly suspect that HCV could be a key factor contributing to premature babies and miscarriage (I know that’s a bold statement to make without any evidence) however with that in mind the liver plays an enormous role in all body systems. Im going to have a chat to my specialist about my suspicions and will report back.
I have not yet had any kids (just a big white fluffy dog so far). I am sad to hear of the miscarriage’s I cant begin to fathom how rough that would of been for youLG, gotta say that last consultant who dismissed you how bloody ignorant. Makes me annoyed that specialists are sometimes guilty of concentrating on the area of their expertise and don’t look at a patient as a whole. I’m happy for you that you didn’t settle for the status quo & had the guts to go out there and find a consultant that took your health seriously. Go you
SVR 24
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