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Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17890

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Velkommen Sven ... a new Svenks bro :)
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: Matt-Kenney-google, Meg, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17891

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Great to have you on board Sven!

Waiting for the prescription to arrive was way tougher than the first few days of (relatively mild) side effects. I watched the tracking information like a hawk (USPS tracking is not very detailed), and after the package cleared customs, I actually stayed home one day to wait for the meds after having a very intense dream that the package had arrived. A few days later (four actually), the package actually had arrived, and I was at the post office with a print out of the tracking information in my hand hours before the notice came later that day.

I spent a lot of time on the forum during the 16 days that the package was in transit, reading, learning, and getting up to speed on the latest. Time well spent!

Please give me a shout anytime! If you find yourself needing something to do, you are welcome to help me post Public Service Announcements - 'PSA's'. I don't call them 'ads' because the forum is all about community, friendship, and support - and we don't sell anything here.

In fact I think I see a shameless 'plug' coming at this very moment, and here it is....





Fitz
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
Attachments:
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17893

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:cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: Meg, fitz

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17894

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Hello Sven and welcome! Great to see you on board and on the first steps to recovery through REDEMPTION. Let us know when your meds arrive and you start annihilating those C critters. You're exactly where you should be - right here.

Coral #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: Meg, GT2, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17901

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The warm shivers just ran up my spine and into my brain as I think of ridding this disgusting disease from my system! I am so seriously over joyed at the companionship here and all whom have and will have success. I will help in any way can to make awareness a reality to those whom this disease has ran them out of gas and left them thinking there was no hope. :)

This disease has taken the life of my 3 brothers who were my best friends and threatened to wreck mine and waylaid my hopes and dreams for years. So for them and me I am grateful to an extent only those who've been there know, all of us.
Thank you all for accepting me, I am so thankful, a bit scared and happy all at he same time.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: coral, Ariel, Tina-Hill-facebook, beaches, Hazel, Matt-Kenney-google, Meg, GT2, fitz

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17903

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Hi Sven

When you feel ready to add your HCV genotype etc to your signature profile, this is how to do it:

How to add a signature to your profile

Scroll to the top of any forum screen, click on the 'Profile' tab.

- Then click the 'edit' button on the right of the grey bar at the top of your profile.

- Enter your password in the required field, repeat to confirm, then click the 'Save' button.

- Click on the profile information tab and scroll down to signature panel and add what you want. There are also other fields in the profile page that you can edit if you want.

- Click on 'Save' when finished. That will take you back to your user account page. Click 'Save' again.

Hope that this helps

GT2
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
The following user(s) said Thank You: Ariel, Gaj, Matt-Kenney-google, Meg, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17906

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Sven wrote: I don't know where to post my thoughts?


Welcome Sven! :)

How to start a new post.

fixhepc.com/forum/technical-support/1091...the-forum.html#17905
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17914

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Welcome Sven and a big heartfelt hug
It will get better with these meds you can be cured
Hugs
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17939

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June 16, 2016:

Went for a power walk this morning, and was completely taken by surprise with the amount of energy at my disposal. I hadn't felt like that in years.

ETA: Brain fog settled back in this afternoon. I suppose that is the Yin and Yang of DAA treatment. This is powerful stuff, and every now and then, I'm reminded of that.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: beaches, Hieupham, Hazel, Matt-Kenney-google, Meg, GT2, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17950

Hey Fitz, I'm right there with you brother. A lot of ups n' downs, (mostly ups for me) but, yeah they're there. New for me in the last few days, is itchy spots. Not too bothersome for now, but noticeable at times. For the most part, so far, Im feeling better and better. Many of my close friends have commented how I look better, my "color" looks better they all say, and as GT2 noted on his post, I'm losing the belly fat. Yay! :woohoo: All it took was these DAA's! Go figure :lol:
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: beaches, Meg, GT2, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17953

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:) :woohoo: #flower
I'm so happy to hear how much better you're both feeling.
I know that feeling.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2, fitz

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17954

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Matt-Kenney-google wrote: Hey Fitz, I'm right there with you brother. A lot of ups n' downs, (mostly ups for me) but, yeah they're there. New for me in the last few days, is itchy spots. Not too bothersome for now, but noticeable at times. For the most part, so far, Im feeling better and better. Many of my close friends have commented how I look better, my "color" looks better they all say, and as GT2 noted on his post, I'm losing the belly fat. Yay! :woohoo: All it took was these DAA's! Go figure :lol:


Ditto on the midsection changes. Maybe four days ago, I started whizzing like a Russian race horse (urinating often and in large volumes.) I eat pretty clean, and haven't changed my diet, but noticed yesterday that my pants were considerably looser around the belt line.

Guessing I was retaining some water there (and probably everywhere else) due to the state of my HCV ravaged liver. Anyway, I'm drinking plenty of water, and whatever the reason, I seem to have lost about an inch around the midsection since starting generic Sof/Led.
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: Matt-Kenney-google, Meg, GT2

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #17956

Sven. I wanted to add my congrats to you on getting on board the train to HepC freedom and add that I'm sorry you lost, not one but THREE of your brothers to the "DISEASE". Tragic.
I lost my older brother to the disease of alcoholism before this other one, (HepC) could take him. He died in a single car accident while on the tail end of a 4 day drinking binge. Before that he'd been clean and sober for 5 years but was facing having to deal with cirrhosis of the liver. He too had been diagnosed with HepC and was wrestling with whether or not to go the peginf ribavirin route. He was scared of it and rightly so. In the years since his death, I've often wondered if his accident was really no accident ???
That aside, the positive aspect of his death was that it woke up our two younger brothers to the need to seek help with their addiction problems. They did so and have stayed clean and sober themselves for over ten years now. My brother would be proud of that.
Since my finding Fixhepc and then starting the Redemption trial, I've been able to get both my brothers, who also have HepC, excited about getting treated. :woohoo: .. As, you've already experienced on this site Sven, we're not alone on this journey.

Best wishes on a successful treatment and we're ALL looking forward to seeing you get posting on your own topic. Just follow Gaj's direction to that url he posted here and you'll be on your way in no time. Oh yeah, WELCOME to the fray! :lol:

MK
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
The following user(s) said Thank You: coral, mgalbrai, Gaj, Tina-Hill-facebook, beaches, Hazel, CC2B, Meg, GT2, fitz, Sven

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #18145

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Thanks!

Fitz I hope your treatment is going well. Do you have a topic site that will doc the progress, if so let me know how to find it....unless this is where you'll tell us all how you're doing.
Take care, eat well drink plenty of water.
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
The following user(s) said Thank You: beaches, Meg, GT2, fitz

Fitz starts REDEMPTION 3 Trial 6 years 7 months ago #18149

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This is it Sven. I've got labs (bloods) coming up next week, and will post the results on this thread when they are available. Thank you for the well wishes. I can't tell you how stoked I am to learn about your progress!

That is a handsome dog my friend! Malamute?
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
The following user(s) said Thank You: CJ, beaches, Meg, GT2, Sven
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