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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13048

  • Debs
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Thanks LG, you just answered my niggling Qs also,
Glad your plan B looks like it's getting sorted.
Fix hep C, Monkmed and Fed Ex Fast Tracked, they look good in the same sentence!
Lots of love
Debs xxx
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13139

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Hi LG sorry to hear your struggle continues. Ive been away alot and not reading as much on the forum. Sending you Best Wishes. I also have not felt the fibroscan has been something I could trust because of different readings, then add another year on without up to date test .... is what led me to just go the 24 weeks sof / led . Ive got 21 days to go. After awhile you just get used to the extra weeks and it becomes auto pilot. The weeks past quickly. Remember the fat lady's not singing yet. ( i hope you know that expression) coz if you dont its a weird thing to say, especially to a thin person. Anyway my hearts in the right place. Good Luck, she'll be right mate. Jill
Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13168

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Thank-you for your good wishes Poodle #flower Yes, I've heard that saying , haven't got a clue where it came from, but get it :)

My new meds arrived this morning, sent by the wonderful MonkMed Mond night /Tuesd morning, so they took 3 days.- Amazing ! Tracked their journey on FedEx.

The whole journey went smoothly, cleared by UK customs and on the van towards my house. Was up early as didn't want to miss the postman with the blinds open and my big ears on for the doorbell. Then suddenly, the Fedex update said 'delivered' - What??? !! :ohmy: Rang FedEx and discovered after some pushing, they had been delivered to a 'Mr A ' at completely the wrong house :huh: All the way from India no problem and get to the shortest last leg of the journey - England and it's wonderful service minded employees, clearly Mr Van Man could not read properly, didn't know his numbers (name & address printed in block text, perfectly) or tell the difference between the sexes! Legged it up the road in my floral pjs and fluffy slippers, still on the phone to FedEx and thank heavens the people were in and had my parcel. (They had had it for over 30 mins, but didn't think to bring it down). FedEx were trying to tell me they had knocked at my door, but they hadn't and no 'delivery given to neighbour' note either (not really a neighbour either, it was half-way up the street past another road!) - Phew !! This did my BP no good at all! thankfully, had a quick cry and all ended well.

I definitely recommend those who order meds by mail, to buy from someone who uses a tracked service, otherwise, I could've been knocking on alot of doors anxiously and package could've disappeared into the ether , forever ....(and ever amen) !

Anyway, there's another little tale from Blighty for you all ;) All's well that ends well as they say and apart from a rather rude awakening this morning I am feeling loads better. Also got blood requests for week 12 from GP.

Hey ho. #love to all.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13196

Phew LG
glad you finally got that package with a pyjama dash down the street. hehehe
SVR 24
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13202

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Ha ha Yes Tina, I must have looked like a crazy woman :silly:
How are you? Your UND has cheered me up alot :) #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13203

Im well thanks
The UND is still sinking in :) and somewhere not too far off in the future your UND is coming for you too xx

Im getting ready for another night shift which no doubt its going to be busy. The students here have an annual street party in Dunedin (Hyde street) where they get up to all sorts of mischief. last year we had some nasty fractures and cuts come into theater. ED doubles its staff tonight to cope with the influx. Theres nothing like trying to get a drunk to co operate so you can get them off to sleep...ahhhh let the good times roll.

Heres an article from today about the party.......
www.stuff.co.nz/national/78058566/infamo...ay-crowd-wellbehaved
SVR 24
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'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13211

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Yes indeed, you have had an adventure!
I can imagine, the medicine delivered to a wrong address! :woohoo:
Fortunately all ended well!

I wish you UND soon!
#duck #love #flower
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
This email address is being protected from spambots. You need JavaScript enabled to view it.
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13221

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Tina - great news about your UND! :) :lol: #flower
Fantastic news for you!
LG will be there soon also #love
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 8 years 4 weeks ago #13227

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Damn LG - I'm not complaining about Aust Post again anytime soon :p Wrong address, egad! AP successfully made a trek up many stairs (out of sight of the road, something which has confounded generations of meter-readers lol) to deliver my meds - and all on a day where it was about 35*C so they weren't left cooking in the heat somewhere lol

Great to hear you finally have them...looking forward to your UND now. All the best :)
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13758

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Just got VL back <12 - 'detected but unable to quantify'

So in that 'grey area' that quite a few have been before - This has given me the momentum to swallow my Sofo/DAC with gusto. Hope it gets those last few stubborn stragglers. Feeling more confident now.

Meanwhile, attached a nice colour image on my insides taken with the amazing LiverMultiScan (don't say I don't share everything with you guys :lol: )

It's a comp all all four images and gives me a reading of 1.5 which apparently, is not bad at all and pretty good for someone with HepC.

Onwards and BIG #love to all.




ps My psychedelic insides : Green is good, red is bad (only within the liver). I was told those yellow squggles were 'vessels'. This was taken 'as if chopping across' - So the red / blue band at the bottom would be my front I think. It shows us just big and important the liver is!

More here : perspectum-diagnostics.com/products/livermultiscan/ These guys are doing innovative & amazing work. If you are in the UK, you can contact them if you would like to request being part of the ongoing trial. You also get a fibroscan to compare. Dr Banerjee is the inventor & is a warm , friendly personality who doesn't patronise and is doing great work for us. He is in a video here : perspectum-diagnostics.com and you can apply if you wish here: perspectum-diagnostics.com/latestnews/
This could do away with the need for many biopsies.

(Edit) Have added 2 more images, hopefully more explanatory?




GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
Attachments:
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'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13759

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Hey LG!
Go get em!
3 months sof/dac should see em off!
#love #duck #flower
Debs xxx
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13760

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That's excellent LG next bloods will be UND I feel given the unq you have and an assay from 12 is excellent path. Good luck with the sof/dac I guess you have to stick out the full three months?
It flies by doesnt it look at us already done with sof/led and it seems like we just started, blinked and now done! Well I have two pills here to take lol.
The worst sx are done now too bodies used to it so that should make your next leg of tx easier I hope
Wishing you the very very best
Onwards to UND that's great to read the unq result very happy for you
Splashes from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13761

HI LG

Fantastic VL of <12 (thats what I was at EOT) there is no doubt in my thinking that your next one will be a long awaited UND #flower .
SVR 24
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'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13763

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Exactly Tina! I had an unq <30 and in a week it went to UND <15
<12 we can't get here in Victoria Australia LG that's just excellent news
So close just a weeeee lil smudge
I'm so happy for this news
Flippers crossed
Do you get next bloods in a month?
Or are you gonna go sooner now you have that unq
Cheers good luck again
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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'In which LG seeks Redemption & makes new friends' 8 years 2 weeks ago #13767

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Thank-you so much Debs, Ariel and Tina #love #love #love
You guys - hey :)

I take it none of you are interested in my psychedelic liver then ? :P

ps 1 x Sofo/DAC down the hatch & catching any evil stragglers by surprise.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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