English
×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Main Forum
Patient Stories
'In which LG seeks Redemption & makes new friends'

TOPIC:

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #14734

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Ty LG well my flippers and fins are all crossed for you #duck #love
Yup the weeks are dragging on omg. Less than two weeks to my SVR4 blood pull now. Seems like 2 years haha
Ve vill get zere :evil:
:blink: :silly: :woohoo: :( :unsure: :whistle:

Ty very much xxxx
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #15165

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Hi there London Girl
Just to say I have been thinking of you daily and hope you're going okay on phase two of your tx. The weather must be starting to warm up for you now too :)
Hope all is well and going to plan lovely lady xxx
Splashes from Ariel #flower #flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: pat1, Gaj

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #15169

  • LondonGirl
  • LondonGirl's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1366
  • Karma: 17
  • Thank you received: 2124
Me too dear Ariel, thinking of you .
Plodding along...plod plod.
Feeling ok but worrying!
I hope all is going well for you too #flower
lg xxx

ps It snowed today!!
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Ariel, Gaj

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #15171

  • pat1
  • pat1's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 340
  • Karma: 15
  • Thank you received: 977
Hey LG #love
I think of you also and sincerely wish you all my best wishes for Tx. I wondered if you had noticed any significant difference between dac and led? #flower
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
The following user(s) said Thank You: LondonGirl, Ariel, Gaj

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #15175

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
LG..SNOW!
Gosh that is late in the season.
We are enjoying an unseasonably stunning Autumn. It is over 20 Celsius every day and warm winds. Great for drying the clothes...that is unless you fall asleep in the afternoon and leave them on the line :P :silly: :lol: :whistle: :idea:
Keep us posted babe xoxox
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: LondonGirl

'In which LG seeks Redemption & makes new friends' 7 years 7 months ago #15207

  • LondonGirl
  • LondonGirl's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1366
  • Karma: 17
  • Thank you received: 2124
Yes - It was sunny, but 'crisp' as they say... then all of a suddent - snow - Bonkers!
Me, I'm waiting for the heatwave ;)
More bloods next week, we shall see.
Lots of #love

Hi Pat #flower
I am much the same on the Sofo/Dac in the way of sx - ie hardly any.
However BMs are back to normal :+1: but this could be the digestive enzymes I am taking with evening meal.
I have had days of alot more energy, quite a few glimpses of my old self (high energy).
Brain fog has definitely improved, without a doubt.
Instinctively, I feel better on the dac but it's hard to pinpoint exactly how.
With both meds I get this strange taste, weird woody, damp grass, yucky kind of thing in my mouth, throat and oddly, nose. I can smell it on me.

Sometimes, I even wonder my first messed up hospital may have even typed my GT wrong, a strange thought but not as crazy as it sounds as they typed alot of other stuff wrong !

In week 4 of Sofo//Dac currently, still detected at week2 but <12 unq - We shall see.
Trying to get a qualitative VL test, seemingly impossible in this country or extortionately expensive and packaged in with HepB, HIV and other tests. GP says not available on NHS. All I can do is keep on keeping on B)
Lots of #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: pat1, Debs, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15871

  • LondonGirl
  • LondonGirl's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1366
  • Karma: 17
  • Thank you received: 2124
Hello everyone, Here's a little song for you all :



Week 4 1/2 of Sofo/Dac :

pL ASSAY(s) REQUESTED VIRAL LOAD
pL Assay(s) requested HCV viral load ONLY
pL Hepatitis C RNA (V. load) <12 IU/mL
nL Hep.C RNA (Last sample result)
nL Laboratory comment
pL Laboratory comment UNDETECTABLE HCV RNA at the lowest detection limit
pL of the assay.
nL Clinician comment
pO Saved in Location Freezer-A,Yellow No.43(D6)

;-)
Big #love to all
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: DrJames, Joy, pat1, mgalbrai, Debs, Ariel, beaches, IRMA88, isaing4, Hieupham, Hazel, Juen, GT2

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15873

That UND has been a hell of a long wait for you LG, I am really happy for you #love

#flower CONGRATULATIONS #flower
SVR 24
The following user(s) said Thank You: LondonGirl, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15875

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
It's early dawn
The skies are grey
My coffees made
I'm starting my day
Each morning check in
To see how the friends
Are going today
And this is HOORAY
To you London G
At last UND
My heart sends you love
You've been through enough!
I'm stoked at this post
From this lassie down under on the coast
Hooray And hurrah
You have come so far
I feel your release
I'm sensing great Peace
Fantastic my friend
Now onwards to the end!
Smiling all the way
It's a BRAND NEW DAY!

Yay LG
You whipped a quick poem out of me! I must be emotionally affected, and coffee tastes even yummier now
Splashes of happiness to you babe
Ariel #love #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: LondonGirl, pat1

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15878

  • Debs
  • Debs's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Posts: 251
  • Karma: 3
  • Thank you received: 437
Hallelujah Chorus, Love it LG, it sure has been a long time coming, and all the sweeter for it #love
Congratulations and loads of love #love #duck #flower :) :lol:
Debs xxxx
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
The following user(s) said Thank You: LondonGirl, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15881

  • Ariel
  • Ariel's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Cured, SVR 24
  • Posts: 1064
  • Karma: 31
  • Thank you received: 3084
Hear hear Debs and loving LGs new signature :+1:
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
The following user(s) said Thank You: LondonGirl, Debs

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15882

  • LondonGirl
  • LondonGirl's Avatar Topic Author
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 1366
  • Karma: 17
  • Thank you received: 2124
Thank-you my lovely friends #love #love #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: pat1, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15892

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
:woohoo: Fantasic news LG! :+1: :cheer:

It's so good to see that UNDETECTED in your signature at last. #flower :) #flower #duck #duck #duck
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: LondonGirl, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15894

I second, third, fourth and fifth that emotion!!!
Happy for YOU!!!!
Your and Em's news continues to make this wonderful spring day better and better!!
m
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: LondonGirl, Ariel

'In which LG seeks Redemption & makes new friends' 7 years 6 months ago #15900

  • coral
  • coral's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 606
  • Karma: 38
  • Thank you received: 1812
Hallelujah indeed LG! A little bit of a longer path but you made it! So so happy for you. #love #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
The following user(s) said Thank You: LondonGirl
Forum
Main Forum
Patient Stories
'In which LG seeks Redemption & makes new friends'
Time to create page: 0.087 seconds

Copyright © 2015-2020 FixHepC

Delivery Guarantee Privacy Terms of service
Back to Top