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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19868

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Hey London Girl,
I salute you!! :cheer: Glad I ran across this thread, I didn't know you were a "generic rebel" from the Redemption trials. Good for you! WTG!!


G1a dx'd in 1992, Biopsy F2 VL 8mill +. Tried tx with Interferon/Riba, back in 2008 didn't last long it felt horribly ugly!! I stopped tx, after 5 weeks!!
Started tx 6/1/16 with Harvoni.
12 Month Labs= UND
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #19871

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Hey FB :+1:
Yep , I was an 'early-bird' for the Indian generics.
It's in my profile btw ;-) but my profile is running out of space due to extending tx and I don't blame you for not making much sense of it!

Am just over 2 weeks EOT and in the 'big wait'
Hope you're doing good,
LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 6 months ago #20260

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Hey all, just a little update.
So 3 weeks+ since EOT, felt totally knackered for the first two weeks but feeling alot better week 3 :)
I've been told by many fellow patients this is the norm, so thought I'd update my thread to mention.

Haven't had any post tx tests yet, hospital only offers 12 week testing post tx, but very full testing. Having a little holiday from it all but will probably ask GP for 'poor mans VL' after some ' time out'.

Back on the supplements, VitD, B12, Folic Acid, Alpha Lipoic Acid and maybe Liv52 from Himalaya Herbals.

Big #love to all.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20317

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Hey LG I was sooo tired after EOT too and my timing was almost exactly as you recount. I am still having interrupted waking and am SVR18plus. I think it will take a while for my little body to get used to not being on meds as it has been a variety of prescribed cocktails over almost five years. I think you did a long haul and have taken a lot of DAAs (the first one was really rough on you too) and will also need a good break until you feel okay and routines start up in your internal body clock, at least that is my experience for what it is worth. It is very stressful after EOT, well it was for this old relapser here despite my labs during tx being so good and all the praise on the forum I still was anxious my friend, so I can only send you loving empathy at this time. I pulled bloods every 4 weeks I was so scared because of my previous experiences. Being a slow responder are you seeking out LFTs and so on more often ? I am not trying to scare anyone ever, I am just wondering how you are feeling inside. (I am sneaking off for LFTs recently for my own peace of mind, just haven't blogged)
I only want the best for you come on LG cross the finish line I am so backing you. #love #love #love #love

#flower #flower #flower #flower #flower #flower #flower #flower Love always, Hugs Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20325

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Hi LG. I know you're having a bit of a break so relax and enjoy please. I relocated across the country just before EOT which was great for taking my mind off the anxiety.

I think that if you want to have an earlier blood test then go for it. Having managed this disease for so long we have probably earned the right to some anxiety and extra blood tests to alleviate it. You couldn't have done more to help your body fight this and I'm so hoping for the best result for you. #flower #flower
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20329

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Thank-you Ariel and Coral,

Yes Ariel, my sleep pattern is messed up. I seem to be staying up too late, but not sleeping late enough in the morning to make up for it and waking up grumpy.

I am mostly fine, but have moments of panic if I get any symptoms that my memory associates with the virus. These are usually overcome without too much stress as I am also have some lengthly periods of feeling more 'normal'. Not sure what 'normal' should really be at this age as Coral says as been managing & living with this disease for so long, but I am having spells where I am 'interested in life again', so I guess it's a thing of the mind. Having said that, I'm not feeling very sociable regarding people at all, feeling hermit-like and just want peace, quiet and rest, I'd be happy if I didn't have any responsibilities at all for a few months and just well, be free ! Do you know what I mean? I'm sure you both do ;-)

Dear Coral, I am thinking of you and whatever the outcome of my next tests, will be around here to try and support you in your next journey. I hope you're not feeling too bad physically and are keeping your spirits up as much as you can. From what I'm reading, there are some very hopeful new options on the horizon. We are so lucky to be in this new super-duper phase of new medicines and having access thanks to good people like MonkMed & Dr Freeman. as poor Ariel had to experience before. Also I feel blessed to have my treatment buddies on this unique forum, what would I have done without you guys #love

Still hoping to keep away from testing until after my little break, but the curious, impatient me is battling with my sensible me. I know I need a few more weeks rest from the whole damn thing, mentally, you know?

We shall see which one of me wins, hey B)

Big #love to you both.

LG xx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20337

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Hi LG
I'm reading your post and having little chuckles because the way I'm feeling post Tx is almost exactly the same as you.

Realised recently that this condition has been with me for 2/3 of my life :ohmy:

Pretty much as soon as I started Tx my sleep patterns became so wonderful,omg that made me so happy!

I'm more tired than I was on Tx and sometimes feel a bit vague, which freaks me right out. Twice in t he past week I've opted to sleep in rather than do the morning swim that I love so much, and this morning the group had a friendly dolphin for company, bugger :(

Never used to have liver twinges but now occasionally I do, and this causes what I call o shit moments.

Since EOT I've been craving carbs.Now carbs are not my friend although I wish they were. Normally I can ignore the call of the carbohydrate but I guess I have been in celebration mode and cutting myself some slack. Will have to go back to being serious about the nutrition again dammit

I was treated at a public hospital clinic and will be tested at 12 weeks, on 02 September, but who's counting. No point at all in getting tested before this but I wish that date would come quickly. Things don't stress me too much but this is at the back of my mind most of the time.

There is a very helpful Yoga sequence for emotional stability on the internet, but I'm reluctant to post it- it's a "don't try this at home" thing. Some of the postures can be done with little instruction but if you aren't accustomed to supported inversions you should get some expert assistance.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20360

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Thanks beaches, Trying to answer but connection is on go slow. Anyone waiting for replies from me, I'll brb once on other comp.

LG xx
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 5 months ago #20499

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Hey Beaches :)

Pretty much as soon as I started Tx my sleep patterns became so wonderful,omg that made me so happy!

I know how that felt, I slept like a dream on the meds - and now a little erratic in sleep patterns again

I'm more tired than I was on Tx and sometimes feel a bit vague, which freaks me right out.

Yes, vague here too, very vague - I am thinking my brain wants to shut down about it all, ie have a rest, am hoping this is the reason. Short term memory loss and not interested in anything 'organised' or 'necessary to do' etc almost like I was when very young with no responsibilities ! Could do with having nothing to do , listen to music, gardening, walking in beautiful places, that kind of thing - Trying to do this as much as possible. Shame to miss the friendly dolphin - I would have loved that!

Like you I believe I carried the virus a long time, through all its ups and downs, not wonder we're tired

Since EOT I've been craving carbs.Now carbs are not my friend although I wish they were. Normally I can ignore the call of the carbohydrate but I guess I have been in celebration mode and cutting myself some slack. Will have to go back to being serious about the nutrition again dammit

I hear you - What else can I say :lol:

will be tested at 12 weeks, on 02 September, but who's counting. No point at all in getting tested before this but I wish that date would come quickly.

Not so long now Beaches, I have until end Oct , but may test a little sooner, but not just yet.

Not crazy on the yoga this end, but into the beaches and swimming big time - Hope you get some more in #flower

Well, as I sit here munching on a coffee and a BIG FAT pastry :whistle: I send you big #love and you know where I am if you ever fancy a natter.

Love LG xox
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
The following user(s) said Thank You: Ariel, beaches, fitz

'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22019

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Dear all,

Sitting here trying to keep busy, waiting on my SVR12 result to come back from the lab.

Since I started tx early Jan until now, some weeks flew by and some weeks dragged. Post tx went quite quickly for the first 10 weeks, but the last fortnight has been on go slow - and these last few days are positively crawling!

I've been catching up with all the newer folk and reading some old posts remembering those early birds fondly, as someone else said, every SVR has been a joy and triumph to me and the few relapses I feel from the bottom of my heart.

Whatever the outcome for me personaly, I would like to wish everyone here my best wishes for good health, especially those who have had to take on another treatment.

You are all in the best possible place to beat this damn virus

I am so much better physically and mentally since embarking on this journey and so grateful to Tim, Dr Debasis at MonkMed, Dr Freeman & Fix HepC, Greg J for starting something good and all of the generic rebels here who have shared their advise, support, friendship, empathy and good humour throughout the ups and downs, without you all I would have surely gone mad! You are all awesome! Words cannot express ...

Well, I wasn't going to write a speech ha ha but, sitting here over my morning coffee, waiting for my results and reading a few old posts along with latest news, has kind of made me remember the past year and got me all teary !

I just want to send my warmest wishes and BIG #love and admiration to you all

LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22030

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Fingers crossed for you, LG! Not that you'll need it. Those 10 week LFTs look fantastic! #love
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22034

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Thank-you Fitz,

I have been quite chilled out post tx, but now I just wanna know for sure! I can't seem to process the Alt result really, I want to see the VL test in b & w before I can relax. Hoping tomorrow my sample will be tested... not sure I can survive another weekend ha ha I'll be asking Dr F for a valium script ;-)

It's been quite some time since I took my first pill on January 8th!

#love LG
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22037

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LG since I'm relatively a new comer here you have been a staple of faith for me and us all. Your attitude and enthusiasm are awesome, I love it !
You're test numbers have proved you have dotted all your I's and cross all your T's and you 100% have done everything right I would expect nothing but SVR, you're done!
In ending, thank you for thanking us, it is also the other way around :)

In good health
Contracted HCV 1980's
Geno Type 1a
F3 ( doc says once treated I'll be F2 maybe F1)
Meds shipped 6/17/2016 arrived early 7/2016

Viral count - 3,471,080

4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected)

8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected)

11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected

December 19th 2016: Cured!
Viral count: zero!!!
2018 viral count: still zero!
Cured!
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'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22042

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LondonGirl wrote: Thank-you Fitz,

I have been quite chilled out post tx, but now I just wanna know for sure! I can't seem to process the Alt result really, I want to see the VL test in b & w before I can relax. Hoping tomorrow my sample will be tested... not sure I can survive another weekend ha ha I'll be asking Dr F for a valium script ;-)

It's been quite some time since I took my first pill on January 8th!

#love LG


Hi LG,
I understand what you mean, same thing happens to me too. I have my appointment for the VL test next week. Initially I wanted to be precisely after the 12 week ends, but couple of days more will not have a huge impact, especially if the result will be UND.
Are you going to take generic valium or branded one? :silly: :blush: :woohoo:

These are the last 100 meters in your "Get free fom HCV" marathon. Have patience, you are very very close from the finish line. And be confident you will be fine.

Cheers,
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved
The following user(s) said Thank You: LondonGirl, mgalbrai, Ariel, Gaj, fitz

'In which LG seeks Redemption & makes new friends' 6 years 3 months ago #22047

LG, all I can say is... #love you girl and thanks you for being you.

Matt
GT1a; Got it some time in the 70's; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA "NOT DETECTED"
AS OF 3/20/2017 ,Hep C RNA PCR "NOT DETECTED" THAT'S SVR24!
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