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Countdown begins for the Magpie 6 years 10 months ago #9322

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Today there was a parcel in my letterbox, it was the ribavirin! I was surprised that I didn't get notified that it was coming. Won't be long to wait now for the others I guess.
Can anyone tell me if dose instructions are included in the Sofosbuvir and Ledipasvir package when it arrives?
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 10 months ago #9325

I take one capsule of each a night (Led/Sof)......(I'm not on Riba) good luck with your treatment.... :cheer:
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
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Countdown begins for the Magpie 6 years 10 months ago #9329

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Hi Magpie,

The dosing should be on the containers similar to any other pharmacy supplied medication. The Sof and Led are one each per day, with or without food, whenever best suits at approx. the same time each day.

The Ribavirin is per Dr James post but take those with food, preferably with some fat content.

James-Freeman-facebook wrote:
Ribavirin is given in 2 divided doses - one in the morning, one at night. Because it comes in 200 mg capsules it looks like this:

< 75 kg - take 2 x 200 mg in the morning, 3 x 200 mg in the evening (or 3 in the morning and 2 at night)
> 75 kg - take 3 x 200 mg in the morning, 3 x 200 mg in the evening (or 3 twice a day)

G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Last edit: by Gaj.

Countdown begins for the Magpie 6 years 10 months ago #9344

Hi Magpie - Here are the Sofo/Led 'instructions' :

www.gilead.com/~/media/Files/pdfs/medici...rvoni/harvoni_pi.pdf

Hope your meds arrive soon? Which make are you taking?

Best wishes for an easy and successful treatment
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Countdown begins for the Magpie 6 years 10 months ago #9345

  • Ariel
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Good luck Magpie with your tx
Wishing you a good outcome #love #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Countdown begins for the Magpie 6 years 10 months ago #9365

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Londongirl,
not sure what make it is...does that mean where the meds come from?
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 10 months ago #9367

Do you know the name of the medicine you are getting Magpie? Or yes, maybe where it came from?
I have looked in my Hepcivir-L (made by Cipla) box and yes, there is a folded sheet of instructions in each box with the bottle . The link above is the official Gilead info.
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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Last edit: by LondonGirl.

Countdown begins for the Magpie 6 years 10 months ago #9370

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It's called Harvoni and I think it comes from China.
Thanks for the link too Londongirl
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 10 months ago #9371

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Hi Magpie,

I suspect from your other posts that you have authorised the Buyers Club to source the meds on your behalf? If so then you are most likely getting generic APIs sourced from China, tested and encapsulated in Australia. So you will receive the two active ingredients used in commercial Harvoni but as two separate capsules rather than in a single premanufactured pill.

Assuming the above is the case then they work just as well as branded Harvoni and the instructions that LondonGirl supplied are still valid. So very much a case of "same difference". :+1: :+1: :+1:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 10 months ago #9476

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And YAYYY!!! My second twelve weeks of treatment just showed up at the front door.

Huge thanks to Dr James and all the rest of the team at FixHepC and the Buyers Club who make this all possible.

Gaj
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Last edit: by Gaj.

Countdown begins for the Magpie 6 years 10 months ago #9488

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Hi Gai
Glad to hear the system is going smoothly for you.
Yes I agree, thanks to all at the Buyers Club!

Did you get a tracking number before the meds arrived?
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a

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Countdown begins for the Magpie 6 years 10 months ago #9502

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Hi Magpie,

I did, but on this occasion it arrived about 10 mins after the meds. :lol:

Either public holiday or clunky Internet connection?
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Countdown begins for the Magpie 6 years 10 months ago #9509

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I just read a post about stigma and it reminded me of the last occasion I was asked if I knew how I got the virus by the gp that was writing my script for Harvoni.
I replied how does my answer effect you writing my script?
it didn't.
I guess it's just human curiosity/noseyness.

so glad when the meds come and the virus is gone....
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 10 months ago #9550

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I love surprises! Guess what was sitting in my mailbox this morning!!!!!!!!!!!!!!!
Omg so happy!
Thankyou buyers club #love
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
The following user(s) said Thank You: Ariel

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Countdown begins for the Magpie 6 years 10 months ago #9552

Hooray :-) :+1:
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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