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Countdown begins for the Magpie 6 years 7 months ago #10191

  • magpie
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Thankyou Ariel
i will try sorbolene because I have some and if no relief then Dermaveen.
What type of body oil did you use?
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #10199

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ok the itch is getting worse so I have checked the drug interaction with Cetirizine and it is ok, so one a day for a while then I'll see if it has disappeared.
Thanks for everybody's advice :)
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #10201

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I'm popping in a photo for you Magpie
Hoping it is only a minor issue for your tx sx
:)
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Countdown begins for the Magpie 6 years 7 months ago #10255

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Hi Magpie, I too have had the skin reactions as described here, not on Riba, just have sensitive skin and it's more so on Tx and in the sun - even minimal exposure gives me red blotches or those little bumps.

If I have only minor ones on arms I rub in Lavender Essential Oil -it stops the inflammation and itchiness.
I personally wouldn't advise using Sorbolene - it is made from mineral oils e.g. paraffin oil; it is not a moisturiser but a barrier cream. This means the oils sit on the surface and create a layer on your skin that traps any moisture there and this can give temporary relief of dryness. But it doesn't penetrate the skin to moisturise it and hence the problem returns and in the long term it's believed to affect the skin's natural barrier reaction to environmental effects.

Moo Goo products, as Ariel suggested are good as they don't contain mineral oils.
Rubbing in Coconut oil, which a great for hydrating skin as it penetrates deeply, moisturises and softens skin. Also Jojoba, Rosehip, Sweet Almond (Cold-Pressed) or Avocado oils are all fantastic for dry, itchy skin problems and especially for sensitive skin issues.

I've been using an Organic Product - 'Natural Instinct' Body Lotion with Jojoba, Rosehip and Avocado oils. It has NO Petrochemicals, Parabens and PEG's, Silicones or Mineral Oils.
I got it from a Chemist - one that carries lots of usual Health Store products.

Good Luck finding what works for you :) #flower
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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Countdown begins for the Magpie 6 years 7 months ago #10406

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Wow sorbolene isn't as good as I thought it was!
looks like I'm going shopping today for dermaveen!
The itch is there but mild and I haven't taken a Cetirizine for 2 days.
Thankyou Ariel and Chejai.

Today I went to a gym class and the instructor came over and asked me what was wrong and why I wasn't keeping up...I think it's time to stop the classes, the fatigue is starting to show and will probably get worse over next few weeks. I have been going to the gym now for 2 months because I wanted to be as strong as possible before starting on this treatment.
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #10410

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Hi Magpie,

The Ribavirin can make it feel a bit like you are experiencing extra gravity so I understand having issues with keeping up in a gym class but I do feel that excercise at your own pace is still beneficial. I try to walk twice a day and while the mornings are usually at a good pace I often feel fatigued in the evenings and have to slow down a bit. Helps the sleep though! ;)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

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Countdown begins for the Magpie 6 years 7 months ago #10411

I have found lately exersise during tx to be very taxing. It leaves me exhausred and makes my muscles even more achy. I keep hoping that it is a stage that will pass because the first few weeks of tx i felt great :(
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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Countdown begins for the Magpie 6 years 7 months ago #10413

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Hi Ken,

I also noticed a huge improvement during the first few weeks that has dropped away to some extent now but I wonder how much of that was due to the massive and sudden reduction of the virus causing a significant contrast for our bodies and minds? A bit like turning on a bedside lamp which is blinding at first but after a few minutes you realise still isn't quite bright enough to read comfortably by.

I'm also reminded of a comment I saw on another site which can be paraphrased as:

Many of us being treated are in our 50's and 60's with all the issues that go along with growing old. The majority of us have been infected for decades and have had symptoms that hide the effects of ageing. Those little niggles are minor compared to the systemic issues that HCV causes. After treatment the HCV symptoms dissipate making the normal aches and pains of aging more evident. We get to start feeling for the first time in decades. We start living again and will now notice things that have always been there, but were minor compared to the Hepatitis.

Now personally, I'm affronted by that suggestion as I'm still a good couple of months from turning sixty and have no intention of getting old! :P



.....but I do plan on doing a lot of living from now on. :woohoo:
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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Last edit: by Gaj.

Countdown begins for the Magpie 6 years 7 months ago #10638

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Hey Ariel
I love the Dermaveen shower and bath oil!
The only downside for me is that it smells like pecks paste - from childhood.
It will be great in winter too.

Exercise wise, I skipped a class yesterday but went for a swim and today I went to a pilates class which is very gentle.Tomorrow is my favourite class- boxing but I feel like I can do it. I go for a walk each morning just around the block (2.7km) which I enjoy.

Yes Gai, I agree the age factor is very real. B)

Kenbasman, my muscles get sore too but I sleep really well. The mornings are draining, getting up, arms feel like lead weights, sometimes a headache, I push myself and eventually getup for my walk.

Milestone today - 2 weeks on tx :woohoo:
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #10648

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Hi Magpie,

Happy that you are on tx and sides are manageable.
Wish you all the best #love #flower #love

Only 17 magic pills left to EOT for me! B)
HCV since I don't know. Diagnosed in 2010.
GT1b, F0/F1, VL 9M, ALT 44, AST 42, Tx naive,
started 12 wks Twinvir on 06.12.2015. Feeling great and grateful :)
virus not detected 06.02.2016 & SVR24
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Last edit: by isaing4.

Countdown begins for the Magpie 6 years 7 months ago #10658

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Thanks isaing4
so jealous - only 17 left!
I look in the big pot of riba and think I'll never get to the bottom but I've waited this long , I can wait another 70 more days :cheer:
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #11417

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Hello everyone, thought I'd give you an update rather than lurking around the site and reading everyone else's news.

Today is 3 weeks and 5 days into treatment.
Things I've noticed re sx:
#flower irritability at times
#flower headache on and off throughout the day
#flower fatigue gradually increasing as the day wears on
#flower increasingly unable to keep up at the gym
#flower itchy skin - dermaveen wash is great solution for this
#flower pink lumps on skin
#flower concentration lapses and forgetfullness

4 week bloods in 2 days.
How long do I really have to wait to get a VL result?
Last time I waited 2 weeks and it was so hard.
EOT UNDETECTED
Week 8 all bloods within normal limits
Week 4 Undetected
2016 - 28 January started Harvoni & Riba treatment
VL pretreatment 639,000 alt- 77
2015 fibroscan - 6.6
2 x non responder peg interferon & riba
geno 1a
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Countdown begins for the Magpie 6 years 7 months ago #11419

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I had most of those symptoms before treatment.
M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
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Countdown begins for the Magpie 6 years 7 months ago #11429

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Great to catch up with you Magpie, I hope the rash is not too nasty on you. I am waiting for my second 'back up' VL here...seems to take longer this one is a better one than my first path, will look closer than the assay they did first up. I hope you get what we all want. Lots of love from Ariel... It seems to be taking ages doesn't it when we wait for results! Ticking clocks in brain sound yup so relate to it....
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Last edit: by Ariel.

Countdown begins for the Magpie 6 years 7 months ago #11431

Hi Magpie & Ariel, Wishing you both great results / rash subsiding and sending BIG #love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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