Just read this and it blows me away as when first told I had a problem was Dec 2012 and the Doc who was relieving was from Africa, nice guy but I couldnt understand one word he said. He gave me a letter to take to Perth and I was sent to a Plastic Surgeon who just laughed at first.
I told him i was having trouble swalloowing and sore around the throught area and Had read where Chris Munce and my Bro in law had cancer of the throught both very fit. He said his Secretary was phoning allk around Perth trying to get me in to see someone as he said the Scans showed trouble in the liver.
He then prescribed me Pantaprozille and I have been on it ever since, last 18 months twice a day. Should I just stop taking them and see how it goes.
I am on the least meds atm for years as at one stage I was taking 25 tablets and peg injections per day. now down to Sof / dac, 1x pantaprozille, 1x Rifaximin, 2 Fruisemide am and pm same except no sof/dac. I was given till March to live but I dont think they have a clue, even though I have been in a coma twice and hospitalized 6 times this year. Got so bad I was unable to dress myself make a cup of tea, put a seatbelt on unlock a door, shower. change a toilet roll make a sanga, fuk I felt useless. Lucky I didnt have Doc Nitchke phone #
Been feeling good last 2 weeks and due down again on 23rd June for clinic, which is an absolute joke. You see someone new each time and they spend the first 10 min finding out what meds you are on etc then say see you next time the front desk will make an appointment for you.
First diagnosed Nov 2012 with Hep C 1a End Liver disease
Failed peg and Sof/dac
Given 18 mths to live Aug 2014
Failed sof/dac July 2015
Sep 2015 given till March 2016 to live as nothing they can do
Sourced a supply of sof/dac from India told I was a fool by staff at SCGH
Been in a coma twice 2016 6 stays in Hospital
Last 4 weeks have been unreal back into life again
Hope No One else is treated like Shit by Med Specialists as the Nurse are UNREAL The Good Doc Freeman is genuine Barry Ashton