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TOPIC: discomfort in liver after tx

discomfort in liver after tx 3 years 5 months ago #17836

  • GT2
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Thanks Beaches and Dr James

Beaches, it definitely didn't taste like any lolly that I have ever eaten. It worked however ... I doubt that it was from a placebo effect.

But more seriously, I do take your point ... the fresh ingredient of anything is better than something manufactured.

Next time I will try your ginger & mint drink (mint grows wild in my garden).

For a ginger hater, however, Dr James' apple juice, celery and ginger sounds pretty good.

Thanks for the tips.

:)

P.S. Just looked on the back of the Buderim Ginger pack ... 86% sugar ... so, it probably was a placebo sugar pill ... but, a palatable one for a ginger hater. :)
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
Last Edit: 3 years 5 months ago by GT2.
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discomfort in liver after tx 3 years 5 months ago #17857

"Lollies" are "candies" in Oz slang! Well, you learn something new every day. A lolly in the UK is a certain type of ice cream, and a candy is called a "sweet". Cultural differences, eh!
45 yo male; UK; HCV since 1996; G4; F2-3 (fibroscan score 9.1);
Null responder interferon/ribavirin 2008;
4/16 Harvoni 8 weeks; Pre-tx VL 2.1 million; week 4 VL 269; EOT UND; but...
6/16 Tx extended w/ generic sof/dac x 12 weeks due to concerns around my slow response to Harvoni. UND at end of 2nd round of treatment and EOT+4.
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discomfort in liver after tx 3 years 5 months ago #17861

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And what you refer to as a sweater we call a jumper. And your French fries are chips here (in New Zealand they are chups as in fush end chups).
And we wear thongs on our feet. Not in NZ though, they wear jandles.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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discomfort in liver after tx 3 years 5 months ago #17878

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For this lil duckie during my delightful 40 plus weeks of loo hugging on peginf I discovered that for me Ginger was the new Black
I'm still using ginger
There's always buderim ginger of some description in my pantry and fresh ginger in my cooler drawer.
Try it grated into dishes and squeeze lemon juice over it to take away some of the bite if you don't like the bitey flavour.
I'm a convert. Celery with the juice cocktail too makes it cooler on the mouth
My mouth and I are just beginning to make friends post DAAs lol ;)
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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discomfort in liver after tx 3 years 5 months ago #17892

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Good tip Ariel

I didn't want to carry on with it last night ... but that's what we do ... when I'm feeling crook that is ... add ginger to our meals ( :sick: ) with lemon juice (have a big eureka lemon tree out the back) ... always loaded.

The moral of the story ... ginger and lemon juice is good for a crook liver ... in my experience.

#love
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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discomfort in liver after tx 3 years 5 months ago #17927

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mUST GIVE it a shot
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 3 years 5 months ago #18139

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A week and a bit out of EOT, not having any abdominal issues but am definitely feeling tired.
Also I notice my resting pulse first thing in the morning (my phone alarm app tells me so) has jumped up a bit, from around 60 to between 64 and 75.
My poo habits are returning to normal which is a Good Thing
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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discomfort in liver after tx 3 years 5 months ago #18143

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Good morning Beaches
My heartrate was up a tad around the same time but it's normal again
X
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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discomfort in liver after tx 3 years 5 months ago #18179

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I thought that it was just me. I have had a funny feeling in my chest/heart area for the last week now. I thought that I may be overdoing the exercise. I borrowed a Omron automatic blood pressure monitor from a neighbour to check out my blood pressure and hear rate. My blood pressure is near enough to normal, 124/72, but my resting heart rate is up around 69 -72.

Not sure what's going on. Only 2 weeks until EOT, so I think that I will take it easy for a while now.

:)
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
Last Edit: 3 years 5 months ago by GT2.
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discomfort in liver after tx 3 years 5 months ago #18180

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GT2 wrote:
I thought that it was just me. I have had a funny feeling in my chest/heart area for the last week now. I thought that I may be overdoing the exercise. I borrowed a Omron automatic blood pressure monitor from a neighbour to check out my blood pressure and hear rate. My blood pressure is near enough to normal, 124/72, but my resting heart rate is up around 69 -72.

Not sure what's going on. Only 2 weeks until EOT, so I think that I will take it easy for a while now. :)

I had a stack of energy throughout Tx. HR was nice and low (never checked BP but I'll ask one of the trainers at the gym tomorrow morning)

Then half way through last week started feeling tired again and thinking o shit is it coming back. Got a bit of a shock half way through the week and maybe it took a bit more out of me than I originally thought

My alarm clock app takes resting HR and since EOT it's gone up from around 59-60 to high 60s or low 70s.

Ariel says that happened to her as well so I won't worry just yet and will wait for my appt next Friday for the EOT VL
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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discomfort in liver after tx 3 years 5 months ago #18182

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Hi Beaches

I have had virtually the same experience as you. I felt progressively better every week for the first 8 weeks and have plateaued over the last two weeks, despite getting fitter. I lost 4.5kg over the first 8 weeks and 2kg over the last 2 weeks, so in theory I should be feeling even better, but I’m not. As I said, I could’ve been overdoing it lately. But my gut feeling is that if HCV RNA is undetected at 4 weeks, we probably only need 8 weeks of treatment. We may be feeling the effects of over treatment. In any case, it is always better to be safe than sorry.
1983: Hospitalised with Acute non-A, non-B Hepatitis after ICU blood transfusion 3mths earlier => HCV GT2
22/02/16: (pre-tmt) ALT 61, VL 2.48 IU/ml Hepascore 0.32 (F1/2), fatigue, brain fog, bloating (Treatment Naïve)
10/04/16: (Start tmt) Sofovir +DaclaHep (SOF + DCV) by Hetero Labs in India
09/05/16: ALT 34, VL: NOT Detected :cheer: :) , FBG 11.9 :huh:
17/6/16 FBG 5.7; PPBG (@14.22) 6.9 (@ 20.45) 7.1; BP 124/72
:) (Accu-Chek Mobile & Omron Auto BP Monitor) :)
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discomfort in liver after tx 3 years 5 months ago #18200

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Hi Beaches and GT2. My heart rate and BP was elevated post week 8. It helped that I stopped drinking coffee and rested more. After EOT and at SVR4 my heart rate returned to normal. Even at SVR12 some path results were a point here and there outside the reference range but I am not concerned about it. #flower
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
Last Edit: 3 years 5 months ago by pat1.
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discomfort in liver after tx 3 years 5 months ago #18206

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My BP was up when I got someone at the gym to test it today but I'd been for an ocean swim, had a coffee and done a weights session so I'm not worried. It was in normal range (systolic ws borderline) but my normal is around 120/75
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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discomfort in liver after tx 3 years 4 months ago #18450

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James-Freeman-facebook wrote:
If you like juice apple, carrot, celery and ginger (about 1 inch of root) is not a bad drop.

My wife makes a similar thing but I can't stand the ginger :)
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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discomfort in liver after tx 3 years 4 months ago #18519

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Paul-Jarman-facebook wrote:
James-Freeman-facebook wrote:
If you like juice apple, carrot, celery and ginger (about 1 inch of root) is not a bad drop.

My wife makes a similar thing but I can't stand the ginger :)

Can u stand beetroot? It is good too
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