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TOPIC: discomfort in liver after tx

discomfort in liver after tx 2 years 5 months ago #15427

  • tweakmax
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Anyone feeling this? Been 2-3 weeks post tx
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discomfort in liver after tx 2 years 5 months ago #15433

I'm not actually sure what liver discomfort feels like but I have a "burning" sensation on and off above and around my tummy and under (but I have had this for a long time so maybe that's what it is).....other than that feeling pretty good :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!
Last Edit: 2 years 5 months ago by Lynne-Francis-facebook. Reason: Spelling fix up and adding text
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discomfort in liver after tx 2 years 5 months ago #15434

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Take probiotics.

Mine is pain in liver right abdomen
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discomfort in liver after tx 2 years 5 months ago #15435

  • Ariel
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Hi Tweakmax, I had the pain after EOT at exactly the same time as you are now. I cannot recall predominantly where the twinges were some right side some left side, they have gone. My SVR path is excellent so far, my LTFs have continued to drop. Re the twinges, I think it is fine...but I don't know your liver health and I am just another patient, :) :) I am around F0 I also do not know if it is anything to do with fibro score either! Hope you are feeling okay otherwise, Cheers from Ariel. #flower #flower #flower
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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discomfort in liver after tx 2 years 5 months ago #15439

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I have had the same bloated swollen discomfort in my liver area since pre tx, thru tx and now 9 weeks post tx. it's still there, although lately somewhat less. In my case I put it down to liver damage. i went into tx as F3 so obviously my liver has some healing to do.
Some other issues that are still bothering me, mostly gastro stuff, I think come from the same place.
I also believe, but I could be wrong, that healing isn't neccesarily a pleasant process. A broken arm, after being set still hurts even though it is healing. Burns, the same thing. etc etc.
I guess time will tell, but I am only now starting to feel "stable", 9 weeks after tx. I put that down to my liver battling to do it's job properly again...
HCV 35 yrs G1a F3 Tx naive
started Lesovir-C 15/12/2015
pre tx: VL 5,250,000 ALT 374 AST 208
FIBROSCORE 10.4

4 weeks tx ALT 29/ AST 33. VL < 12 UI/mL
8 weeks tx ALT 29/ AST 34. VL UND
4 weeks after tx UND. SVR4. ALT 24/AST 18
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discomfort in liver after tx 2 years 5 months ago #15441

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Hi tweakmax, I had same as you after EOT. Definite pain in liver area rather than discomfort sometimes but fairly fleeting. I haven't noticed it for the past week or so and will be 4 weeks EOT on Monday. Think it's gone! I have heard it said it can be the healing process, and a few people have experienced it, I also remember seeing it mentioned on a uk site. Nothing to worry about I think, though we do worry at EOT!
All the best, debs #flower
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
Last Edit: 2 years 5 months ago by Debs. Reason: Clarify
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discomfort in liver after tx 2 years 5 months ago #15443

  • Price
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"Inflammation, gut dysbiosis persist despite SVR after HCV therapy"

www.healio.com/hepatology/hepatitis-c/ne...vr-after-hcv-therapy
Last Edit: 2 years 5 months ago by Price.
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discomfort in liver after tx 2 years 5 months ago #15444

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Have the same pain on the right side + headaches, a bit of nausea. Its 8 weeks EOT for me. Time will tell I guess
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 2 years 5 months ago #15446

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Same here, plus still upset stomach and lots of gasses after meals. Dunno is it related to liver or it is just stomach upset from tx that need time to settle.
Genotype 1b & 4, F0/A1, failed Peg&Riba TX 2015,
22 Jan. 2016 - Back from Delhi with 12 week Ledifos supply :) Thx to Parag
Started TX on 27.Jan.2016 - AST 41, ALT 59, GGT 39, ALP 74, VL 500.000, Fibroscan 6.8
19. Feb 2016 - ALT 14, AST 14, GGT 19, ALP 107
19. Apr 2016 EOT - Undetected :)
26. Apr 2016 (1 week after EOT) - ALT 14, AST 17, GGT 12, ALP 77
28. Aug 2016 (17 weeks after EOT) - UND, ALT 15, AST 12, GGT 5, ALP 39 :)
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discomfort in liver after tx 2 years 5 months ago #15463

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darbara wrote:
Have the same pain on the right side + headaches, a bit of nausea. Its 8 weeks EOT for me. Time will tell I guess

Yes headache and a bit nausea too
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discomfort in liver after tx 2 years 5 months ago #16412

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Its 11 weeks now and next week I go for the 12 weeks EOT bloods. The feeling is the same since last I posted in the thread. Need to take a pain killer to get that discomfort away. Sometimes the brain tells me its back but will see. Someone suggested milk and vitamin D
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 2 years 5 months ago #16420

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Hi tweakmax,

I am 5 + weeks EOT and have some indistinct feelings as well.

The first is some tiredness and the second is a sometimes pain in my right side where I would expect the bottom part of my liver resides.

Due to see my G.P. about follow up anyway and will ask about the pain.

Since treatment there is more energy and hence more heroic gym stuff - the tiredness at times seems to be a 'good tiredness' rather than just not wanting to get out of bed.

The pain is around and in a dirty great big scar from surgery which appears to have reddened and got angry looking after all the gym heroics. I think I have strained something?

I suppose the point I am trying to make, is that for me this virus will sometimes do your head in. And now hopefully it is dead and buried, it's ghosts will attempt to do the same.

Yours


Jeff
GT3a 1990 Failed Inter 1998, comb in 2000. HCC 2012
Started 24/52 Sof/Dac 27th October 2015.
1. Bloods 2 October 2015: AST - 165 (20-40), ALT - 265 (5-40), GGT 189 (5-50)
2, Bloods 20 November 2015: ALT etc normal; VL 19
3. Bloods 8 January 2016: AST - 40, ALT - 59, GGT 48 VL RNA UND
4. EOT 12 April 2016 - blood tests: all is well, CT scan: okay
5. AFP 11 June 2016: 4 ref< 11
6. VL July 2016: DET
7. Oct16 start treat - June17 UND
8. Jun 18, lfts okay, platelets a bit low.
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discomfort in liver after tx 2 years 5 months ago #16422

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I can feel it too

Esp the part the fibroscan reading is the highest out of ten tries
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discomfort in liver after tx 2 years 5 months ago #16425

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For me now its nearly all the time since the last 4 days. Its from the right side just below the liver right till the back. Its not sharp just strong dull pain, more like a swelling. Feels like a sprain or muscle twist. Hoping it goes away. But it was gone on treatment but now back. Crap!
Treatment naive
F 3/4
Genotype 1 a & b
V/L 17 MILLION
Started Harvoni 11th Dec 2015 for 12 weeks
4 weeks VL UND
6 WEEKS ALT 32, AST 34
EOT 03/03 2016 ! UND
ALT 34, AST 26
04.04.2016 SVR 4
26.05.2016 SVR 12
16.08.2016 SVR 24
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discomfort in liver after tx 2 years 5 months ago #16427

  • Meg
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Hi I am sorry to hear you still feel discomfort in the liver after tx. I hope it goes away soon.
I heard that we are supposed to drink at least 64 ounces (two litters) of water/fluids a day to both keep hydrated and help the body flush toxins out. Are you all drinking lots of water? Wondering too what pain relief could be taken to alleviate the pain and discomfort. Besides the actual " healing process" some of you mentioned, what could possibly be the causes of pain after tx?
Blood transfusion in 1992 - Diagnosed in 2007
Tx naive -G1b - F1
VL 2.270.000
ALT 40
Start tx June 4th/2016 with DAAs - Sof/Led from India
Bloods on two weeks of tx (June 18th)
AST 17 - ALT 10 - GGT 19
Virus UND
Bloods on six weeks of tx (July 16th)
AST 17 - ALT 8 - GGT 12
Virus UND
EOT on August 8th (did 9 weeks and 3 days)

SVR 4 Virus UND (September 7th)
AST 13 - ALT 5

SVR 14 Virus UND (November 12th)
Last Edit: 2 years 5 months ago by Meg.
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