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TOPIC: Treatment Started today

Treatment Started today 11 months 4 weeks ago #25692

  • vedruss
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From having been shown this site on Christmas eve., To taking that first pill today is surreal.I work in an industry known for intolerance of health issues and have been battling with this on my own for far too long .
Hell, Just having my partner read and understand the effects of this life draining insidious pox,has lifted a layer of guilt/hopelessness that has been huge relief in itself.
I had previously shut the door on medical help after the choices supplied, were worse that the disease.
Thanks to Greg J and Dr freeman that has all changed. The system is changing and we are all a part of that change.
The support from here, from all around the world and for all walks of life with No judgement is gold.
I am blown away to put it mildly. I'm hooked!I'm in!
Will post how it all goes
Cheers All
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Treatment Started today 11 months 4 weeks ago #25693

  • Greedfighter
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Vedruss, I am very happy you got your meds! Chances are you will be cured!

Viva FixHepC and Greg Jeffreys!

The only people who are making a difference in this greedy world
Gt 1a, F0, VL 6.5 million, AST 59, ALT 62
Started Twinvir 1/15/16
6 wk. labs, VL UND, AST 27, ALT 20
EOT labs, VL UND, AST 23, ALT 19
SVR 16, VL UND, AST 28, ALT 17
SVR 24, VL UND, 10/8/16
SVR 125, VL UND, 9/22/18
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Treatment Started today 11 months 4 weeks ago #25695

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Hi Vedruss,

I see you've got your meds now and have started taking them, which must feel brilliant. Very pleased for you.

Meanwhile, I was looking at your profile a moment ago and see that you had a biopsy in 2002, which showed some relatively mild damage. There is now a procedure called a fibroscan which is non invasive and gives a good idea of the state of the liver. It measures the elasticity of the organ from which can be deduced the degree of fibrosis (which is expressed in Kpa) because fibrosis makes the liver stiffer.

I wonder if you've ever had one done? If not, you might like to consider it. I say this knowing nothing about what tests are available where you live and whether or not you have to pay for them but if this test was done soonish and then when you get to SVR 12 as you almost certainly will, you would be able to see the current condition of your liver and to what extent it has repaired itself after you are clear of the bug, although the repair process goes on after that very often, if it needs to do so.

Obviously having the test will make no difference to your health but it would mean you were better informed about it. Clearly this assumes that you haven't had it done already so if you have please forgive me for boring you!


All the best,

RSF

In my own case there was significant damage before treatment - the initial reading was 9.5 Kpa - but I now have an entirely normal liver and knowing that makes me feel very good! You can find out much more about this topic elsewhere on the site and in the forum, if it is of interest. R
G3a. Probably infected 40 years ago.
Diagnosed July 2015
7/7/2015: ALP 69, ALT 209, WBC 5.8, VL 40,000. Fibroscan 9.5 Kpa.
Commenced treatment Sof/Dac (Natco Pharma) 24 wks in Feb 16
VL UND @ 4 wks, 12 wks

EOT 6/7/16
SVR 12
SVR 24

PHEW! Thank you so much Dr James, Monkmeds and all at Fixhepc
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Treatment Started today 11 months 4 weeks ago #25699

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Hi Fred
I wasn't going to do the fibroscan, just a VL at 4weeks. That would give me a heads up on if I wasn't clear at that time, then that would suggest fibrosis or mutants. In which case then look at maybe extending the treatment. That is if it dragged on out closer to EOT. Plenty of time for all that. That was just my thinking based on the info from this site and its people.
After your message though, I figured its not such a bad idea. Seeing positive progress has got to be good for the soul. So thanks, your definitely not boring me mate.
My usual doctor is still away on holiday so I do still have to run the whole generic thing by him. He's a good bloke so I don't see a problem there. Have to finish here as its been a long day and more of the same tomorro. Bye for now.
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Treatment Started today 11 months 4 weeks ago #25706

  • Ariel
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Wishing you the best outcome for your tx Vedruss so pleased to read you have your meds and are starting already.
I’ve always had an F0, but I read that some people have had higher readings pre tx then much healthier readings post tx. I’m no doctor just another lucky person who got generics and they worked, but I am pretty sure there’s a couple of people on here over the past years who have experienced this Miracle too
Good luck with the fibroscan you’ve been through plenty already reading your signature
Happy Splashes for your tx
From Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Treatment Started today 11 months 4 weeks ago #25707

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Hi again Vedruss you may already have found this section of the support forum however if not there’s info about fibrosis here

fixhepc.com/forum/fibrosis-and-cirrhosis.html

Happies from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Treatment Started today 11 months 3 weeks ago #25712

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Thanks Greedfighter and Ariel, Day 3 and all Ok ! Bit too early to tell but energy levels seemed better today . Very hot and humid all day but body not so draggy as it has been. Ariel,Using the the calculator you sent I scored a 0.745 on Sept 2016 and 1.019 June 2017 .That is using 40 as the upper limit of normal. It'll be interesting to see how the results of the scan go. I was Also made aware to change out my tooth brush and razor a few times during the beginning of tx to limit reinfection. Makes good sense too.
Cheers All
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Treatment Started today 11 months 3 weeks ago #25720

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I hear you Vedruss. I was diagnosed in 2004 and oh so politely declined the treatment of the day. That quite possibly saved my life.
I believe Gen 2 is easy to treat. May it be so for you.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Treatment Started today 11 months 3 weeks ago #25742

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First packet of six Sof/Dac and its been pretty good . First few days energy was up. Ive had a few days where I could feel something going on in my liver. Being cleaned out of dead bugs is the thinking. :evil: This Possibly contributing to some heavy fatigue on the forth day. The fifth day was fine. I had added a pinch of sea salt to my water bottles so mainly I think due to low electrolytes. Feeling upbeat and positive.
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Treatment Started today 11 months 3 weeks ago #25746

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How's your sleep quality since starting treatment? Mine went from cr@p to amazing very quickly
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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Treatment Started today 11 months 3 weeks ago #25747

  • Ariel
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Thanks for the update sounds good! I recall sweating the first week and had a headache even though I drank like a camel about to cross the Sahara. I’m pretty sure I took electrolyte drinks too and it helped a lot. My blood pressure went up that was my only sx that we had to watch! I’m so glad that you are already feeling the benefits it’s a miracle isn’t it!
Happy Splashes from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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Treatment Started today 11 months 3 weeks ago #25751

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Nice , Ariel, I can relate to that thirst ,ha
Yes,I sup away on water most of the day and have been that way for so long now. Since I no longer drink alcohol, I have the odd glass of kombucha or do juices at the end of the day . That's a good boost when I need it.
I've had broken sleeps for ages too Beaches. That hasn't changed yet, and the crickets are getting louder so looking for a remedy for that. I thought it may be related to blood pressure but no.Well not for me anyway.

One of the up 's is the fog is starting to lift :woohoo: Also a bit early to tell but my sense of smell and taste seem to be returning. Will keep you posted
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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Treatment Started today 11 months 3 weeks ago #25754

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Hey Vedruss, me too so far as the crickets go so far this summer! I can only get to sleep with ear plugs, and I'm HCV-cured so cannot blame side effects.
It's kind of funny 'cos with me its crickets whereas most of my friends are being kept up by the Cricket :lol: :lol: :lol:
G2, infected maybe in 1971?
Diagnosed HVnon-A non-B 1980s, revised to HVC 1990's.
Treatment naive. Fibroscan & bloods all normal ranges.
Viral load 7million,
began Redemption trial4, 12-week generic Sof/Vel (Incepta) 2017. Week 4 UND, Week 12UND, SVR24
Thank-yous to my doctor for the script, to Jan at FixHepC for wrangling, and to Dr Freeman for courage.
Kia kaha e hoa ma!
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Treatment Started today 11 months 3 weeks ago #25759

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Oh yes! Vedruss and Mnemonic the ringing in the ears! I have those nasty lil crickets whistling too. Love Kombuncha yum. Great drink that.
I think quite a few people have mentioned the tinnitus ear sx. I’m not sure why mines hung around still, only because interferon trashed my hearing so I don’t know what to blame! I think the long term is the interferon because I had the audiation problems starting during that. I bet that on DAAs it will slowly go away, anyway it’s worth it! Being HCV free is the goal hey.
Looking forward to your updates
Happy Splashes from Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
Last Edit: 11 months 3 weeks ago by Ariel.
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Treatment Started today 11 months 3 weeks ago #25767

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Hey Mnemonic and Ariel, Naught to report today .Doing fine,Just wanted to say thanks
G2 non A non B
Diagnosed 2002 biopsy grade1,stage1
LFT 2002 2004 2011 2015 2016 2017
AST 76 69 34 46 45 64
Alt 185 175 67 103 84 129

2017 VL 1,600 000
march 1 4 week tx VL undetected
AST 18, ALT 15

8 week qualitative undetected
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