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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20066

  • Gaj
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Hi all, as it is World Hepatitis Day around the world today, here's somewhere we can all post news stories from our own countries.

worldhepatitisday.org
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20067

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G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20073

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Greediad had the unmitigated cheek to tweet about it. I admonished them most severely. How dare they! :angry: :angry:
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20083

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Here's one from the US White House. Comments allowed.

www.whitehouse.gov/the-press-office/2015...d-hepatitis-day-2015
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32
4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35
6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15
8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND
12 Week Results 31 August, 2016 LFTs Normal, VL = UND
EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4"
SVR12, 21 Nov 2016. CURED!!!
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20084

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Not a word about treatments. Plonker.
Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
The following user(s) said Thank You: fitz

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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20085

Could do with some handy, quick find links in one place for Twitter, eg Dr Freeman's EASL presentation, results with generics etc?

A bit busy today, but am linking to a couple of pages eg :

fixhepc.com/

fixhepc.com/blog.html

fixhepc.com/blog/item/73-fibrosis-score-hepatitis-c-drugs.html

etc ...
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20089

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NOhep is also launched today.

"NOhep is a global movement aimed at uniting those working in the field of hepatitis and others from across the world around one common purpose: the elimination of viral hepatitis by 2030. NOhep is calling on individuals and organisations across the world to sign-up to be part of the next greatest achievement, the elimination of viral hepatitis."


You can find out more and join up here:

www.nohep.org
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Ariel, fitz

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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20090

Gaj wrote: NOhep is also launched today.

"NOhep is a global movement aimed at uniting those working in the field of hepatitis and others from across the world around one common purpose: the elimination of viral hepatitis by 2030. NOhep is calling on individuals and organisations across the world to sign-up to be part of the next greatest achievement, the elimination of viral hepatitis."


You can find out more and join up here:

www.nohep.org


2030. One year after sofosbuvir patent expire
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World Hepatitis Day - July 28th 2016 6 years 2 months ago #20094

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Hi Tweakmax, they are not just talking about Hepatitis C but all viral hepatitis types. Targeting about 400 million people over the next 14 years.
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: Ariel, fitz

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World Hepatitis Day - July 28th 2016 6 years 2 days ago #21878

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When talking about the treatment of hepatitis, many people seem to lock their brain in the classic "Chicken or the Egg" philosophical question, i.e. prevent&diagnose first or treatment first ... Unfortunately this "lock" means delaying the treatment which on its turn lead to people getting sicker and sicker.
Big Pharma seems to use this approach, placing the priorities alternatively:
- setting as high priority the actions of prevention and diagnosis in order to gather as many patients possible.
- then setting as high priority the treatment pretending to provide big discounts for their drugs, which in any case remain very expensive.
This is my understanding when reading the strategy to eliminate hepatitis by 2030...there is too much "talk" and less "facts" and I see this as a simple effect of the "Chicken and the Egg" debate.

As (former) patient, I say this is a completely wrong approach.
We should better think on the spinning wheel approach:
- for sure, diagnosing the patients gives a certain impulse making the wheel spin faster
- for sure, prevention has the same effect on the spinning wheel,
-however treating peoppe with effective drugs (DAAs) gives by far a real boost that makes the wheel spin much faster. If we add generic HCV drugs into equation, we have a turbocharger boost.

The more the healthcare system talks about the efforts being made to slightly increase the number of treated people while continuing to have waiting lists, the more discouragement and lack of interest towards HCV will exist among patients. Not to mention the stigma which will continue to exist.

By contrast, the more people will know that the treatment is really affordable and effective, the more people will seek to get checked, diagnosed and treated. So easy access to treatment will boost not only the treatment rate, but also the rates of getting diagnosed.
In the current political context, only the generic drugs is offering the promise of affordable treatment. So sad that by compare with the number of worldwide patients (~200 millions) only a few know about the path of generics.

BR
RHF
In fiecare an HCV ucide peste 500000 oameni.Medicamentele generice pentru hepatita C functioneaza. Nu deveni statistica! Cauta pe Google “medicamente generice pentru hepatita C”.
HCV kills more than 500000 people every year. HCV generic drugs work. Don't become a statistic.
By sharing this Youtube video you might save someone’s life!
My TX: HEPCVIR-L[generic Harvoni]-India
SVR52 achieved

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Last edit: by rohcvfighter. Reason: More clarifications provided
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