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Young J the dragon slayer 7 years 3 weeks ago #2879

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Thanks Paul,
it means a lot to me, you've supported me all the way, appreciate it :)
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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Young J the dragon slayer 7 years 3 weeks ago #2880

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Hi Alsdad,
Thanks, I wouldn't go that far. :ohmy:
It'll be right.
I'm staying put here , & focus on getting J well ;)
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 7 years 3 weeks ago #2881

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It'd be fun to see her exposed and having to apologise in real life though, wouldn't it? :lol:

Your focus is on your boy, though, that's the important thing. Sticks and stones and all that.....

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Young J the dragon slayer 7 years 3 weeks ago #2931

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Dear Cindi, After all our years as fellow travellers, it is great to see that J is finally receiving treatment. You endured painful years of IVF & four cruel HCV treatments - I always admired your courage & spirit. Nevertheless; across two previous forums you always treated people so kindly. Any harrassment from the previous forum appears conflicted & self serving. Don't credit it with any further thought. Life is too precious.

J was just a munchkin when we sometimes talked on the phone & laughed ourselves silly when he shared with me how he had hidden your computer because it had turned to spaghetti - and he couldn't fix it. Cherished memory. Now he is a bigger lad and finally receiving HCV treatment. Hopefully, you will soon be finally free of this burden so long carried - though you were innocent and deserved no reproach. Let us hope for sweet freedom and a richer future.

Tell J to keep his big boy pants on (joke) - cause he's shown a new maturity in how seriously he has taken his tx decision. Archer xx
Fem. Gen 1a.18.4 kPa. IL28b - CT. Cirrhosis 4B/c. MELD 11. Portal Hypertension. Ascites. Varices. (Gr.3). post surgical Coma 2011- Tx denied. 15/09 - INR 1.2 platelets 58 (150-450) albumin 32 (35-50) bilirubin 40 (2-20) ALT 183 (0-45) AST 281(0-41) GGT 39(0-45). Liver lesions AFP 16 <8.
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Last edit: by Archer. Reason: Correction

Young J the dragon slayer 7 years 3 weeks ago #2932

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hello Archer,
Thank you for the kind thoughts.& for sticking up for me.
Yes, strange things happening over there on that forum, she's acting a little crazy.
J's good again today & tomorrow he has to go do "work experience", so thank goodness these wonder drugs have no bad side affects on him :)
Hope you're ok, hope you're getting closer to doing what you know you should........
....big decision, but big results ! ;)
love Cindi x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Last edit: by CJ.

Young J the dragon slayer 7 years 3 weeks ago #2938

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Hi Cindi,

So pleased your son is doing well. There are a few of us travelling down the path with him at the same time so he's in excellent company!

I am the mother of two sons although they are a little older that Young J. We are waiting for the results from my oldest son's blood test to stop a niggling worry. He took a bit of convincing but I think the fact that I am taking the generics has made it a bit easier.

Wishing you both a good week (and well done for removing yourself from negative influences).

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Young J the dragon slayer 7 years 3 weeks ago #2962

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Oh good luck Coral, I can understand how you're feeling.
I so hope the results for your son are negative.

My J had to go to work experience for school this week.
He is working with an agency that rescues animals.
He keeps texting me what's happening, he's had to rescue a Cockatoo & a ring tail possum so far this morning & he sounds full of energy.

These drugs are amazing! :)

He has his first bloods done tomorrow, so exciting!

So Coral, try not to stress, even if your boy proves positive, these new generics are nothing like the old drugs.
He will be ok :)
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 7 years 3 weeks ago #2983

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Let us know the results of your son.

Really no sides at all? No disturbed sleeping from meds?
Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured

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Young J the dragon slayer 7 years 3 weeks ago #3002

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Hi Enkel,
Thanks & the answer is NO he says he feels nothing!! except a bit more alert :)
He seems a bit less "moody" to me, smiling more.
His VL ( viral load) was 2 million, so not much different from yours, really.
Mine got up to 19 million at one time, it can fluctuate a lot I think.
When do you start tx?
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: Paul-Jarman-facebook

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Young J the dragon slayer 7 years 3 weeks ago #3012

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Hi Cindi,

I am so pleased with how things are going for your son. Having survived the teenage years with two sons "less moody and smiling more" sounds like an outstanding result! Fingers crossed for the blood results.

I am still doing fine on my 6th day although I just mentioned to 2b that I have a bit of a history of 4 - 5am awakenings which I thought may be due to the Hep C virus. I've had a few early starts this week but not quite a pattern yet. Not complaining though.

Whatever the outcome of my son's test I agree that the generics have made this so much easier for us all to face. Thanks for your support.

Coral
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24
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Young J the dragon slayer 7 years 3 weeks ago #3020

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Great to hear that J is doing so well Cindi, feeling better physically and mentally (no small feat in a teenager for sure!)

I would definitely say the recuperative powers of youth are on his side too, now the meds are giving his immune system a more than fighting chance. Really pleased for you both :)
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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Last edit: by zhuk.

Young J the dragon slayer 7 years 3 weeks ago #3055

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CJ wrote: Hi Enkel,
Thanks & the answer is NO he says he feels nothing!! except a bit more alert :)
He seems a bit less "moody" to me, smiling more.
His VL ( viral load) was 2 million, so not much different from yours, really.
Mine got up to 19 million at one time, it can fluctuate a lot I think.
When do you start tx?
x


I hope start soon. Do you have any symptom from hepc? Did you started for yourself the treatment?
Male, Fibro F1. Geno 1b. ALT 67 before treatment Viral load 5 million. My huge viral load replicates in my nervous system as I suffer anxiety.
Started Twinvir 12/12/15.
Two weeks
ALT 17 at 2 weeks
Viral Load UND at 2 weeks
ALT 13.5 at 7 weeks EOT
ALT 10.5 at 15 weeks EOT
ALT 13 at 27 weeks EOT, VL UND, Cured

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Young J the dragon slayer 7 years 3 weeks ago #3078

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I've posted a link to an encouraging article on new research into treating adolescents here CJ:


fixhepc.com/forum/media-news/334-new-res...ing-adolescents.html
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Young J the dragon slayer 7 years 2 weeks ago #3092

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I think I spoke too soon, I just had to go pick up J from his work experience place as he was feeling sick & has bad headache.
It may be associated to the heat as it's 34 here today?

Anyway, he lasted there half the day.
He's home now resting.

I wonder if you can have headache pills on the generics?
Ibuprofen or panadol or something.

Anyone know?
Thanks
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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Young J the dragon slayer 7 years 2 weeks ago #3094

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Thank you Alsdad, that really interesting.
Appreciate it :)
x
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

Please Log in or Create an account to join the conversation.

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