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Ariel takes the Plunge 7 years 4 months ago #22932
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Ariel takes the Plunge 7 years 4 months ago #22933
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Dear Ariel, ... So sorry to hear about your daughter;...my hopes and prayers are with you and your daughter.
You' have been such a positive support on this forum with your responses and lovely pictures...Wishing for health and happiness for you and and your family. .......Fara  HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16 4wks VL <15 9 weeks VL UND, ; Alt-15,Ast-13 16 weeks VL UND Alt-20, Ast-22; EOT 24 wks UND SVR 4 UND SVR 12 UND, Alt.15, Ast. 17 SVR 24 UND |
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Ariel takes the Plunge 7 years 4 months ago #22983
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Dear Life, Fara, Lynne, LG, Fitz, Sven, CJ, nads, Sabre, Coral and I hope that I haven't left anyone out Thankyou for the kindness
Coral I send you big love for taking time out to think of us while you go through another tx I am very humbled by your kindness. I am thinking of you always and wish you the rightful cure you deserve. Thanks for the loving wishes for my child everyone it's going to be a long inpatient stay, but enough details here just thanks so much for your kindness. Me? I'm recently diagnosed with severe TMJ and have meds if they aren't working in a couple of weeks then check up for something else. However the symptoms are classic apparently. Not that I had ever heard of TMJ but it sure is a beasty to have. It presents with similar symptoms to mild stroke, numbness in one side of face, hot nerve type pain that radiates, extremely sore neck and around the ear to the eye, migraine and if it's even possible increased tinnitus! The tinnitus was intense before but for the past three weeks it's ridiculous! Not whinging please don't take this as seeking sympathy but it may be something to be mindful of for those of us who have had a lot of invasive tx, who knows where this came from huh! The meds regime for it is just pills haha more pills just when I had kissed them goodbye apart from the BP pills which I need now also after so many tx experiences and I am aware others are also in this category. Well the suns finally out, the surfs up, there's no wind for a change and I may get respite from the four hours of travelling to and from the hospital today. I think someone else is doing the caring today it's Saturday here in Oz. I might just get lucky and get a few glassy waves yay! Flippers and fins crossed. Sending my love and happies to all Thinking of our GT3 friends who are retreating or waiting. Goodvibes from Ariel Here is the sunset on the way home from da big smoke after hospital visit isn't it inspiring 
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
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Ariel takes the Plunge 7 years 3 months ago #23368
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The beautifully written personal statement above brings goose bumps up on my arms, that was from the heart straight up. I'm with you even on the landing!
 In good health and may God be with you forever. Contracted HCV 1980's
Geno Type 1a F3 ( doc says once treated I'll be F2 maybe F1) Meds shipped 6/17/2016 arrived early 7/2016 Viral count - 3,471,080 4 week quantitative bloods: August 17, 2016. I have been diagnosed as <15 (told undetected) 8 week quantitative bloods: September 14th. I have been diagnosed as <15 (told undetected) 11 week PCR RNA Qualitative bloods: September 26th 2016 - Undetected December 19th 2016: Cured! Viral count: zero!!! 2018 viral count: still zero! Cured! |
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Ariel takes the Plunge 7 years 3 months ago #23404
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Dear peeps
Thanks for reading and supporting my statement about getting tx asap and about how easy and professional this ordering and treating business is. The last three days have been great for surf and I have paddled every day in a row which is remarkable because well, if you could see the carcass that I was from peginf and how hard I have had to work to rebuild what was left of me and my life. I'm a cheerful person whose profession was robbed by peginf riba for no reason at all and I have got through all this time. I'm private about my old status because of my career. And I am a mum of adult kids. Anyway It's up to you At the end of the day we need to become our own messiah in this game of Russian roulette So here's some pretty pictures of our changeable Summer waves and weather anyway to celebrate freedom PS I still need naps Ariel 
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas. pre sof/led VL 240,000 Fibsc F0 Day 25 <30 Day 32 UND Week 10 UND EOT UND ALT11AST17GGT19 SVR4 UND ALT10 AST16 GGT13 SVR8 UND ALT <9 AST16 GGT15 SVR12 UND ALT14 AST19 GGT12 Bili 5 EOT +18 ALT13 AST20 GGT9 Bili 5 EOT +21 ALT11AST15 Cured SVR12 Dysplasia Adenomas RemvdAug '16 SVR24 UND ALT11AST16 ColonoscopyClear Nov17 LumpectomyClear ‘18 LithotripsyCytoscopyBiopsy 4/18 |
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Ariel takes the Plunge 7 years 3 months ago #23425
Ahhh! I want to be there right now. Toes in the surf, warm breeze, washing over me, a cool beer in my hand - watching the surfers riding the tide... Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! |
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Ariel takes the Plunge 7 years 3 months ago #23431
I'm just up the road and today maybe not so much. 
Umm....Melbourne, you know how it is! G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed 24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed 16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof SVR7 - 22/06/17 UND SRV12 - 27/07/17 UND SVR24 - 26/10/17 UND  |
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Ariel takes the Plunge 7 years 3 months ago #23434
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Can I sleep on your couch? That's my budget these days
Failed Interferon 96', G1a, VL = 9 - 5.5 Million, F3/A3, AST 111, ALT 190, Generic DAA treatment Sof/Led (Mylan - India MYHEP LVIR) - 8 June, 2016
2 Week Results 20 June, 2016 AST 19, ALT 32 4 Week Results 06 July, 2016 AST 22, ALT 30, VL = 35 6 Week Results 20, July 2016 VL only = HCV RNA Detected, Non-Quantifiable <15 8 Week Results 04 August 2016, Labs, LFTs Normal, VL = UND 12 Week Results 31 August, 2016 LFTs Normal, VL = UND EOT + 4 Weeks, LFTs Normal, VL = UND, "SVR4" SVR12, 21 Nov 2016. CURED!!! |
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Ariel takes the Plunge 7 years 3 months ago #23435
Hey Fitz we would have space for you Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!! Harvoni treatment, started 19 March 2016 4 week results Bilirubin 12 down from 14 pre treatment, Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47, VL <15 down from a lazy 6 million or so EOT Results Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND 12 Weeks post EOT Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND Cured baby |
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