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TOPIC: My parcel of Magic Pills has arrived!!

My parcel of Magic Pills has arrived!! 3 years 10 months ago #7597

  • Chejai
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Well, a couple of hours ago my long awaited parcel has arrived. But, I haven't started to take them yet because there was only just the pills in the bag, aren't we supposed to receive a copy of our blood work/Hepascore etc? The Dr did the Pathology request, I had the bloods done a month ago, paid for the $190 Hepascore test.
I don't want to start Tx without knowing my current baseline results.
Anyone else get their meds/consult/pathology via GP2U? Did you receive a copy of your pathology report?

Greatly appreciate any advice.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7600

  • Paul-Jarman-facebook
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Contact Gp2u Chejai they will have your path results for you.
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7602

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Great Ok thanks, Paul. It's DLS down south so I'll call in the morning. I've waited this long so a bit longer won't hurt :)
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7654

  • Ariel
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All the very best for tx Chejai won't be long until you start here's to us all I should start today or tomorrow keep in touch cheers for a better 2016 to us all
Shaka
Ariel
Gen 1a
Peg/inf/riba 2012(!) stop @ Wk 43 potassium low +issues (rlps week 4 post tx, VL120,000) scnds eg. adenomas.
pre sof/led VL 240,000 Fibsc F0
Day 25 <30
Day 32 UND
Week 10 UND
EOT UND ALT11AST17GGT19
SVR4 UND ALT10 AST16 GGT13
SVR8 UND ALT <9 AST16 GGT15
SVR12 UND ALT14 AST19 GGT12 Bili 5
EOT +18 ALT13 AST20 GGT9 Bili 5
EOT +21 ALT11AST15
Cured SVR12
Dysplasia Adenomas RemvdAug '16
SVR24 UND ALT11AST16
ColonoscopyClear Nov17
LumpectomyClear ‘18
LithotripsyCytoscopyBiopsy 4/18
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7662

  • Jaz
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Best wishes Chejai!! Time to kick some hcv butt!!
3a F0 TX Naive
Started Tx 12/12/2015 Kingswood Sof/Dac

Pre Tx - ALT 71 AST 40 V/L 9 million
Day 11 - ALT 12 AST 15
4 week - LFTs normal - detected (same sample sent for v/l showed undetected) :/
6 week - UND
12 week EOT - UND
SVR4
SVR12
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7668

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All the best to you Chejai! A few of us starting around the same time! And you too Ariel! #love
Geno 1a, F1, tx naive, had it 35 yrs.
Started Cipla HepcvirL on 12/01/16
Starting VL 490,000
At 16 days in <15
4 week results: UND
8 week results: UND
5 weeks EOT alt 25
SVR 15 - Not Detected
6 months EOT - Not Detected
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7670

  • LondonGirl
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Great news Chejai !
Have you got the GP2U app ? You 'may' find your results there?
Yes, all of us together soon :cheer:
#love
GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7685

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Yeah, LG I have the app but it doesn't show anything other than my script. I've rung the club and was told my 'message' would be passed on. So, still waiting. I'm very unwell today - a typical episode of diarrhoea, nausea, sweats and dizziness, I really hope this is something related to the HepC and goes when it does because I've been having these regularly for over a year now :sick: I'm not starting Tx until I have the blood results and I feel better anyway.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7687

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I had those same symptoms you described before I began treatment Chejai within 48 hrs I was feeling good. As someone one else wrote on here or FB I can't remember about starting treatment with a cold said. " They were that sick they had hep c when they started treatment".

I really didn't give a toss in the end what my numbers were when I started tx it didn't matter at all, I didn't wait took the first ones within 1 minute of getting them home. I've had so many bloody tests I was sick of them I just wanted the pills and got am and now am cleared.

Cheers
Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7689

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Ok, so turns out the iOS app is useless because I couldn't access files other than scripts. I went to the online website via browser instead and looked under 'Files' and all my results are there and have been for a few weeks! I've had a cry and meltdown over them, especially my Fibrscore, it was 4.7 in 2013 and is now 8.5. The Hospital Clinic Hep nurse told me I didn't need another fibroscore because 'nothing could change much over 2 years!' i know it's still not bad, Viral load then 16, 000 IU/ml and now 100, 000 IU/ml, again not so bad but still things have changed and I'm really glad to have taken the plunge and decided to get Tx, despite the Specialists continually telling me to 'wait' for the past few years.

Getting my head around it and will do separate post.
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7691

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Thanks Paul, I hear where you're coming from. I wanted to make sure all the tests for my baseline were done before I started in case I had to go and do any more. With the whole 'diarrhoea and wanting to throw up' today I don't want to risk 'losing' those precious pills. Assuming I'm well tomorrow then I'll start in the morning. Honestly, love that this forum is the one place you can actually discuss such bodily functions and symptoms without people saying, 'Ahhh, way too much info!' :P
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7695

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Hi Chejai,

Your two fibrosis scores are still within the range for same recommended length of treatment so I wouldn't worry about that.
And VL jumps around all over the place anyway. It was important with the old Interferon Tx but it really only counts for seeing when you reach low/undetectable levels with these new meds. And both your readings are at the low end of the scale anyway.

I look forward to hearing your good news tomorrow! :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7703

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Even though I've been a member for a few months and posted bits and pieces here and there re pre-Tx symptoms, I want to collate that and use this as my Tx journal.
My Magic Pills arrived yesterday and today i've got my Path results, I'm sick today and hoping i'm well in the morning and I'll start Sof/Dac, a.m., since I take other meds at night.
Daily drug regime is AD - Mirtazepine, before bed as it's sedating; Nexium 1st thing in a.m before I can eat; Tilade asthma preventer; other drugs used when required - PRN - Valium, Lyrica, Endone, Oxycontin.
Vitamins/supps - Omega 3 fish Oil, Calcium + D, Magnesium, Multi B complex, Zinc + Vit C, Super Greens (not when I have diarrhoea), Inner Health Probiotics for IBS.

I have Clinical depression, anxiety, PTSD, OCD, Asperger's. I also have Osteoarthritis that has rapidly progressed in past 2 years with many sections on my spine 'bone on bone' crushing nerves, Carpal Tunnel and Peripheral Neuropathy - this started a few years ago periodically, intense burning, numbness in hands waking me constantly at night, then my feet, a year ago it set in permanently 24/7 and a few months ago it started on the left side of my face - turns out I have arthritis in my TMJ and swelling is putting pressure on the Trigeminal nerve. An endoscopy a few years ago revealed Reflux and Duodenitis.
I've suffered from migraines for the past 40 yrs too. Otherwise I'm doing great ;)

I spent the 70's as an adolescent experimenting with everything, growing up on the central coast in NSW, beachside, hippie chick. I started smoking pot and drinking around 12-13 yrs, dropping acid and generally partying hard. When I was 18 I was introduced to 'shooting up' a range of drugs by my brother (18m younger) and cousin (a yr older) - typically heroin and Pelfium. We were completely ignorant of needle sharing, despite the disinfecting process and hanging out in Sydney's Darlinghurst district with my cousin's friends in some 'drug den' meant the sharing was very high risk.

I was working full-time in Hospitality and would drive down there for my 2 day binges. It wasn't until I passed out one Sunday arvo, in this place, and someone woke me Tuesday arvo that I thought something wasn't right! I had begun swelling up everywhere and had crushing fatigue. I went to the Dr's and he took one look at me and said, 'OMG! You've got hepatitis we better get you and your family/friends tested!' My results showed ALT/AST's sitting around 1500!! Non A-Non B hepatitis - later to be named Hep C, I also had co-infection EBV (aka Glandular Fever) My skin and eyes were so yellow and my body was blown up like a balloon, everyone thought I had suddenly put on lots of weight, even though I couldn't eat, but it was the Glandular Fever and oedema from kidney dysfunction. My Dr didn't know how I was still alive. At that time I was the only one with Hepatitis but later my brother and cousin were also to test positive but never got as sick as me.

So, they set up quarantine at my Dad's house, looking after me because I couldn't walk from one room to the next without aid. I didn't touch anything other than pot for some time. I eventually moved to Qld to travel and work; lived in Melbourne with my cousin for a bit; went OS; went back to go to Uni in Sydney. So for about 10 years I drank inconsistently and occasionally smoked pot. Then my brother introduced me to 'speed', so a few years getting messed up and 3 rehabs later, my father died unexpectedly at 51 yrs and I knew if I stayed in that town I would die so I moved back to Qld nearly 20 years ago. I've had long periods of being clean but usually end up drinking wine (spirits don't agree with me) especially when stressed. Don't smoke cigs and haven't had pot for about a year.

My youngest brother died suddenly at 41yrs in 2013 from drug overdose. My other brother has HepC and cirrhosis and is hoping to get Tx this year.
After seeing a Private Specialist for around 12-18m, I was referred to the RBWH Liver Clinic and have been going there for 2 yrs+. I had a fabulous GP for 8 yrs here, since moved on, who regularly monitored me. My LFT's have always been out of range and fluctuating. I've been feeling worse in the past 2 yrs. Episodes of diarrhoea that makes me housebound, with sweats, nausea and dizziness. Fatigue that can be so crippling, waking constantly from the intense pain in my hands and feet and now the side of my face. I would do anything for a good night's sleep!
I am a single mother of a precious little guy 10 yo, who has ASD and I Homeschool him. We have no family/friends here where we live.

I have Genotype 3a
In 2013 I had a Fibroscan score - 4.7 kpa F0-F1
Viral Load was only 16 000 IU/ml Log 4.2

December 2015 Path Results

I was given an "Enhanced Liver Fibrosis Score", rather than the Hepascore as requested, don't know the difference just that the Hepascore range is 0.00 - 1.00. My Fibrosis score is 8.5 which apparently puts me in F1-F2 range.
Viral Load 100 000 IU/ml Log 5.00
Total Protein high 86
Albumin high 46
ALT high 89
AST high 70
WCC all in low ranges, have been for a long time.

So, that about some it all up. I plan to take the Sof/Dac in the a.m. since I take my AD's at night.
As long as I don't have diarrhoea or throwing up tomorrow :sick: then i intend to take my 1st dose!!
Wow, can't believe this is happening after years of being told to wait and thinking I'd never get a chance to be rid of this virus and it's finally about to happen. I wonder if these DAA's will knock out the EBV too, as I have had relapses of this.
I'm grateful to people like Dr James Freeman and Greg Jefferys who opened the door and let the light in
QLD Australia ☀️
G3a HCV 35 yrs Tx naive
Started Sof/Dac 13/01/16

Dec '15
AST 70
ALT 89
GGT 124
Fibroscore 8.5
F1-F2
13 Feb'16 VL UND #woohoo!
AST 24
ALT 26
GGT 50H
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7713

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Hi Chejai,

Thanks for sharing your story. You've had a few adventures and now another one starts with a happy ending. I hope you're feeling better tomorrow. Take that first pill and get that show on the road... B)
C
G1a probably early 1980's, Biopsy F1(2010), F2-F3(2015). VL 5+mill; 2+mill (2014) Tx naive. Accessed Sof/Led through Dr Freeman at GP2U and Buyers Club (lifesavers!!!)
Commenced tx 12/11/15. 9 wk: VL <15 Detected but LFT = Normal 12 week results: UND (Yay!) Due to slow response commenced Sof/Dac 4 Feb for 12 weeks. EOT @ 24 weeks 27 April 2016. (With thanks to Dr Freeman et al). SVR11 result: VL 1,950,000. It's back!
New tx 030916 (Viekira Pak, Solvadi, Ribavirin UND @ 111116. EOT 170217.
SVR12 and SVR 24...
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My parcel of Magic Pills has arrived!! 3 years 10 months ago #7714

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Hi Chejai,

Wow, what a story.
Glad you survived. :ohmy:

I also wish you luck, all the luck in the world.

I think your tx will defeat the virus, just hope some of your other illnesses disappear with it .
I feel they will, especially the digestive problems, they did for me.

My heart goers out to you & your little boy, I so hope you will be well.

xo Cindi
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
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