emo Can hep C cause strange symptoms? (Yes!)

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6 years 7 months ago #2297

No sex drive here and if I don't treat soon, probably no teeth either !


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC
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  • Bloot
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6 years 7 months ago #2299

I'm 51 and have hep for around 30 years
12 years ago my liver biopsy showed 3/4, a very bad result
3 years ago I had a VL of 5 million +
My AST ALT have dropped to 116 and 184 respectively
Unfortunately my Protein and Globulin have increased to 89 and 44 - not sure what that really means, but it's not a good sign

Funny thing is, if anyone were to ask me if i feel any symptoms, i would say 'not really'
After reading everyone else's symptoms i'm wondering if it's my age or if I've had it so long any symptoms are normal

The only symptom i can say is definitely hep related was the over the top hangovers which is how i discovered it
i don't think I get overly tired, but I work from home, so that's a bonus
I can ache, but only after a lot of exercise - I just went away with a friend and did an 11.5 hour killer hike and we both suffered equally - during and after
And we were able to continue drinking the next night as usual (yes - I am stupid in that respect, but hey..I am who I am)
I ride a mountain bike and can take some good hits, but don't seem to bruise excessively and recover normally
If sex drive is feeling horny, then any decrease in that i would see as a bonus lol
All in all, I don't feel much different to any other 51 year olds, except maybe better
I'm hoping after tx starts I'll feel like someone put a rocket under me

I've kept my hep in the back of my mind for 13 years now and only since coming on here it has forced it's way to the front
I became quite worried initially as it seems most symptoms seem to start late 50's early 60's
Good thing about all this is that i can see a change of life style coming - especially after my fibroscan in January
The biggest negative for me is that riding bikes goes with drinking beer, so for the next 6 months at least i need to deal with that

I've since made peace with the likelihood that I will not be living a long life - it's just another shithouse family legacy
As hep c tx is advancing I hope options for dying will advance by the time i get really sick
And rather than hanging around as a miserable burden i can choose a quick exit if liver cancer or failure eventuates

Anyhoo, as you say, onward and upward and I sincerely hope that everybody here gets cured and can move on with a more normal life
The opportunity to be cured on our terms is beyond belief really. When I first read the article, i put it into the too good to be true category but had to check it out anyway
The good doctor, the buyers club and everyone here are incredible and anyone who disagrees needs to do some research and get educated and get real :woohoo:


52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263

Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected

2004 biopsy F3
Fibroscan appt Jan 11 2016.
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6 years 7 months ago #2305

I think most of us are used to the symptoms e.g.feeling tired

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6 years 7 months ago #2309

Hey I remember years ago when I didn't realise I had the virus, I would get terrible hang overs, never realised that was probably from the hep!!

Also, does anyone think the virus affects your memory.

My son's memory's BAD, could it be the hep? or just a normal teenager lazy thing ?


J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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6 years 7 months ago #2311

Teenagers will use any excuse to forget things !


Two time relapser.

SVR 4 achieved 12/16 at last
SVR 12 achieved 22/02/2017 The Bastard has been defeated :):):)

GT 3 - about 28 yrs with HCV

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6 years 7 months ago #2314

My memory is very bad too. Can't remember whether I lock the door

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6 years 7 months ago #2318

Teenagers will use any excuse to forget things !

Ha!! yeah that'd be right :P


J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!

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6 years 7 months ago #2320

And we were able to continue drinking the next night as usual (yes - I am stupid in that respect, but hey..I am who I am)
I ride a mountain bike and can take some good hits, but don't seem to bruise excessively and recover normally

The biggest negative for me is that riding bikes goes with drinking beer, so for the next 6 months at least i need to deal with that

Bloot You can't do it mate.When you are on tx its like trying to put a fire out with water and pour petrol on it at the same time ,especially if you already have liver damage.
I ride a mountain bike too.I live just down the road from a track where the World Championships are held.I do a circuit nearly every morning.Very few of my riding mates drink,and none smoke cigarettes.You can get hooked on the taste of water.
I had a great wine collection before I was diagnosed.I haven't touched it since.What were once cheapies are now pricey vintage wines.I give them to friends for xmas presents.Get into fruit smoothies,they can become very addictive.


Gen 1b 40yrs,tx naive, f3/f4.VL too high to quantify.
Started tx 12Oct.sof and riba India via greg.Dac from Mesochem.
4wk result virus not detected,all liver functions in normal ranges.
Only SE intermittent insomnia.Feel great and grateful otherwise
Last Edit: 6 years 7 months ago by miko3. Reason: Grammatical errors

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6 years 7 months ago #2323

miko3 wrote:

There is one symptom I forgot to mention,and I note no-one else has.My sex drive over the last few
years plummeted from normal plus to zero minus.I note it is listed amongst the known symptoms in the book..
I wonder if others have experienced it,or if it just a topic that is taboo.

Mine's not changed over the years. :blush: I'm fibroscan F0. Maybe it's related to liver damage?

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6 years 7 months ago #2330

Bloot, what miko said. You cannot drink. Not just on Tx. Not at all while you have the virus and for a good while afterwards. I have no doubt I would not have got to the F3/4 level by my age if I hadn't become quite a heavy drinker for the first time in my life around 2009 and for about 5 years. You cannot drink at all. Nothing will screw up your liver quicker and more thoroughly than the combination of HCV and alcohol.

Sorry to be the bearer of bad news but you have to stop. Completely. :(


Huon Valley, Tasmania
Hep C+ since 1980s
Genotype 1b
F3/4
VL 480,000
Started Indian Sof and Riba, BMS Dac (comp access) 28 August 2015
UND at 4 weeks
Finished treatment 19 November 2015
12 February 2016 UND SVR12
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6 years 7 months ago #2331

I agree with Chester, drink, but make it water!

Quite shocked to hear of drinking on tx :ohmy:

Sorry to be a but of a nag, but booze isn't not good, not a drop.


GT1a Dec14 F2/8.7 VL 900000-2.5M
Jan16 Hepcivir-L MonkMed/Redemption
Baseline: VL 913575 Alt 76 Platelets low
Wk2 VL1157 Alt 23
DET Wk 8 VL 32 Alt19 'In the slow lane'
June16 Fibro 5.7 F0/1 LIF 1.5
Wk 11 VL<12 Alt 13 Det/Unq
Extending tx 12 wks Mylan Sofo/Dac MonkMed
Wk 14 VL <12 Det/Unq
Wk 16 VL UNDETECTED
Wk 22 + 4 Wks Sunprevir FixHepC
Wk 24 UNDETECTED Alt 13
Wk 12 post tx SVR12 Wk 26 SVR24
Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

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6 years 7 months ago #2337

When I say I have to deal with the next 6 months
I mean it's the 6 months I will be on tx and not drinking I have to deal with
We'll see what my fibroscan shows in January and then I'll assess life after tx

I have curbed my drinking significanly and now consider myself an infrequent social drinker - but I still love a drink
But I haven't really given much thought to my hep in 13 yeaars and feel that is why it doesn't bother me much

Having said that, I feel that my life is going to change after tx and I think I am slowly coming to terms with that
What that life will look like I'm not sure, but I have no kids or family as such and I'm not too afraid of death
Maybe I'll change my tune if it is staring me in the face. I'll know when it happens I guess

Thanks for the comments - I hear you
One things for sure - some intersting times ahead

PS. I'm having a fruit juice at the moment :)


52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263

Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected

2004 biopsy F3
Fibroscan appt Jan 11 2016.

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6 years 7 months ago #2344

"I'm not too afraid of death
Maybe I'll change my tune if it is staring me in the face. I'll know when it happens I guess"

You'll know before that. Death is not the problem actually. Trust me. It's what happens to your body on the way there. I won't list the symptoms of advanced liver disease because I think you are afraid enough already to be in denial about your hepc. You can look them up for yourself. I sincerely hope that you spare yourself that journey, stop drinking, do the tx and thank your lucky stars that now we have the meds to let us escape this nightmare disease.

dt

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6 years 7 months ago #2347

Yeah I think it is the process tats painful and scary. That is what we want to avoid

Good that bloot is now on fruit juice

Last Edit: 6 years 7 months ago by tweakmax.
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6 years 7 months ago #2348

Strange thing, symptoms....don't necessary make a whole lot of sense, or correlate with your disease progression, from what I can work out.

You say you don't have many to report Bloot despite being around F2/3 and a high VL, yeah I am just about the opposite with F0 and have had these fits of exhaustion on and off all night, can hardly move off the bed lol


GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
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