×

Notice

The forum is in read only mode.
Welcome, Guest
Username: Password: Remember me

TOPIC:

Drinking alcohol 7 years 2 months ago #4173

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082

mgalbrai wrote: Drank like a fish for 30 years.

Mike


You drank water for thirty years and you wonder why you were only F1? :lol:

It's a strange disease though, isn't it? Some seem to get away with abusing their liver for years and others end up with all sorts of problems. Mind you, my annual checks ups gave no indication at all until 2012 and even then my liver wasn't too bad. Damn.....now that I think about it all the problems have been since then when I gave up! ;)

G
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:
The following user(s) said Thank You: mgalbrai

Drinking alcohol 7 years 2 months ago #4177

I can relate...I too drank my 3-4 Barcardi's EVERY night and when younger drank regularly and quite heavily sometimes. My Fibroscan and Ultrasound only showed a fatty liver and the last LFT was good......I certainly dodged a bullet I think being diagnosed (quite by chance) and am now on treatment.....have my four week blood test next week and will hopefully find out on 21/12 the results...very nervous but hopefully will have a good outcome. I now drink Holsten's non-alcoholic beer.....quite a nice drop once you get used to it. :)
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!

Drinking alcohol 7 years 1 month ago #4442

  • Bloot
  • Bloot's Avatar
  • Offline
  • Senior Member
  • Senior Member
  • Deep in the forest lives a tall tall tree
  • Posts: 68
  • Karma: 1
  • Thank you received: 88
I still have a very bad memory of the hangover that led to my hep diagnosis. This was about 15 years ago. Allow me to share.
Biggest party ever and I went completely overboard with pingers and alcohol + a big reefer on the walk home
As soon as my eyes opened after a pass out sleep I knew I was in trouble

The violent convulsive heaving was so extreme my face would go purple as I almost choked from lack of air
It was like my stomach was trying to force itself out through my mouth in the most violent way possible
Once the worst of the convulsions passed i slumped on the tiles (I was driving the porcelain bus)
Minor convulsions had me sounding like a walrus as i lay there heaving, swearing and groaning at the severity of it
I was sweating profusely but freezing cold but my forehead was burning up
My head felt as though a hammer drill was driving between my eyes, while my eyes felt like they were being squeezed in a vice

The pain was relentless, but lying in bed the fear would rise as a slight, horrible gurgle in the pit of my stomach started
No please, no. Not again. Please no. I was pleading - probably how my liver was pleading with me the night before. it was pay back time!
The gurgle would intensify as my mouth filled with saliva. I would hold off as long as I could because I knew what was coming
Just as the first convulsion started I would leap out of bed and plunge my head in the bowl as the whole sorry process started again

This kept up for the best part of 15 hours. My partner wanted to call an ambulance but I wouldn't hear of it. Best to ride it out. Idiot (me not her)
Well into the next morning i started feeling a little better and the convulsions stopped
After some more hours i was able to keep down a pain killer and finally get some sleep once the intense migraine in my head went
Into the night I was able to get out of bed and watch some TV. A few more hours and I could eat a little.
I felt sick for the rest of the week and couldn't stand the thought of alcohol for over 6 months. Just the thought of the taste made me feel sick.

I was pretty fit and otherwise healthy at the time, surfing 5 days a week and working out as well
I knew it wasn't food poisoning or similar as I'd always suffered from over the top hangovers - just nowhere near this bad
i was always perplexed that my mates could drink more than me and feel relatively OK
I had been drinking since about 16, and a lot, but couldn't seem to have a big drink without being bed ridden the next day

I went to see a naturopath who said that key factors led to my liver being compromised. She also had a medical degree and sent me for blood tests
I have to admit I was floored when the positive result came back
It reminded me that I used to hit up with people I knew had hep
But at the time I just thought hep was something you got from eating dodgy food overseas

Anyhoo, just a little story that came to my mind reading this thread
I have had 2 bed ridden hangovers since but the last was 3 years ago
I'm confident that I will never have another again as i am far more careful, if not sensible, these days lol

I actually consider that in many ways my hep has been a positive in my life
I really cleaned up the drinking and drugging and did a naturopothy degree as I wanted to focus on natural health
I kind of wanted to say sorry to my body for all the shit and disrespect I had shown it for a long time
It has shaped my life as far as working from home and concentrating on exercise and rest rather than income
I can honestly say until now (apart from my previous tx) that it really hasn't shown me too many negatives that I can think of
i think because of it I am fitter and healthier than i would have been otherwise
I don't know this for a fact, but if I think it's true, then that becomes the reality doesn't it

I know that the eventual consequences can be dire, but the eventual consequences of life can be dire anyway
I know many people for whom that is, or in some cases was, true - and through no fault of their own necessarily

Anyhoo, I've thought about this virus more in the past 4 months than I have in the past 12 years
So I get to musing about things and like to have a whinge, nag, prattle on etc
And what better place to do it than with the wonderful people on here

Peace love and happy apples to all :P
52 y.o. G3a for about 30 years
Previous tx 2004 interferon/ ribavarin
2004: ALT 624 AST 263

Pre tx test 23/10/15: ALT 153 AST 128 VL 11 849 493
6/11/15: Sof/ dac started
26/11/15: ALT 41 AST 41
7/12/15: ALT 36 AST 30 Virus undetected

2004 biopsy F3
Fibroscan appt Jan 11 2016.
The following user(s) said Thank You: Life, pat1, mgalbrai, Chejai, 1folho, Lynne-Francis-facebook

Drinking alcohol 7 years 1 month ago #4458

  • CJ
  • CJ's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 373
  • Karma: 4
  • Thank you received: 419
Wow Bloot, what a story. I can relate a little to that, but not as severe as you. :ohmy:

The hangovers I used to get were always worse than my other friends were, ..now I know why,
yeah, having the virus ( when you find out you have it) can make you more aware of trying to get healthier, I also am a much more clean living person now.
Eat well, don't drink anymore, exercise & look after myself.
I actually don't miss the alcohol, Funny that, as I always wanted a drink every night & would party on weekends with the alcohol.

Glad you've found a healthier you :)
J the young dragon slayer is:
HepC 1a since birth
Male aged 15
VL 2000000
Started Twinvir/ 10-11-15-then Sof/led.
NO sides so far !
after one week VL : 37
after 4 wks VL : UND !
EOT 2/2/16 UND.!
4 wks. post tx results....pending....
7/3/16 VL result : 4 week post tx: SVR !
12 weeks SVR !
24 wks SVR yeeaa!!
The following user(s) said Thank You: pat1, Chejai

Drinking alcohol 7 years 1 month ago #4549

  • Dallo
  • Dallo's Avatar
  • Offline
  • New Member
  • New Member
  • Posts: 10
  • Karma: -3
  • Thank you received: 8
SVR rates of alcoholics using IFN/riba were considerably lower though it's considered to be an adherence issue. Afaik there's no DDI problems with alcohol and the DAAs.

I cleared in January with AbbVie meds and didn't drink at all during Tx. Just seemed wise to me given that side effects were a bit unpredictable.

The synergy factor with HCV + alcohol is about 10, so quite high, but from what I've read most of it is caused by increased reactive oxidative stress.

It's a personal call. I'm cirrhotic but still have a drink or two occasionally. My specialist's advice was to never have more than 2 and to ensure that I had a number of days off in-between.
Was geno 1b since 1973. SVR January 2015 (V-Pak)
Survivor primary HCC, in remission NHL (MZL)
Compensated cirrhosis. Hoping for some regression...
The following user(s) said Thank You: pat1

Drinking alcohol 7 years 1 month ago #6244

  • pat1
  • pat1's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 340
  • Karma: 15
  • Thank you received: 977
fixhepc.com/kunena-2015-11-10/faq.html#

I confess

Yesterday I had not one christmas drink but two. I had a glass of wine with family in the late afternoon and then in the evening I enjoyed a glass of champagne. Last night I couldn't get to sleep until after 3am and during the night I felt as though my neural network was on fire. This morning all symptoms had disappeared and I woke feeling very tired.

I won't be drinking again while on tx.

I'm going to try and catch up on some sleep now
regretfully yours...
and I do so love Christmas...
gt 1a VL 6m
F2/3 FibroScan - 9KPa in 2011 and 7KPa in 2015
sof/dac 10 December for 12 weeks
pre tx alt 85 ast 51
4 wk alt 34 ast 31 UND <35
8 wk alt 29 ast 32 UND <15
12wk alt 25 ast 25 EOT 3.3.16
SVR24 UND KPa5.3 F0 in normal range
I am well
.forever grateful to fixhepc
The following user(s) said Thank You: Chejai

Drinking alcohol 7 years 1 month ago #6245

  • zhuk
  • zhuk's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 551
  • Karma: 3
  • Thank you received: 502
I'm with you part - definitely not on tx. Hey if its confession time lol, I had two beers yesterday - a rare thing for me, probably the second time this year. Don't feel any specific ill-effects but its something I won't be doing again, for a very long while...ideally I will give my body a clean run until at least SVR24. Wouldn't mind being able to have the odd social drink once in a relative blue moon.

Fortunately I was pretty much abstinent from my diagnosis in '90 until around 2009 when I started competing in a sport where (at least at interstate/away comps) its common - though on those rare occasions I rarely drank more than a couple due to bugger-all alcohol tolerance, not adverse liver effects. So who knows this might be the only reason I'm F0 now...maybe I've dodged a bullet. Reading your story bloot, man you have done great to come back from where you were - all the more power to you :)
GT1a since 1988, diagnosed 1990
F0, tx naive
VL 262,000 ALT 40 AST 26 GGT 13 Fibroscan 04/12/15 - 2.9
Started Mesochem sof/dac 12 weeks 01/01/2016
11/02/2016 - 6 weeks UNDETECTED
AST 26
ALT 26
The following user(s) said Thank You: pat1, Chejai

Drinking alcohol 7 years 1 month ago #6271

  • Vicki
  • Vicki's Avatar
  • Offline
  • Senior Member
  • Senior Member
  • Geno type 3b. On sof/dac for 12 weeks.
  • Posts: 45
  • Karma: 2
  • Thank you received: 39
Interesting topic. I have also mostly abstained from alcohol since diagnosis and also being pregnant and raising kids is a good reason not to drink too. It wasn't easy, it's a drug that's every where and totally accepted and as we know, it does more damage to health and families than any other drug. On occasion, I have been socially excluded by past friends for not wanting to go out and get rotten with them. Some people can get very uncomfortable when you tell them you don't drink. I tragically lost my father to drink and witnessed family and friends lives being degraded over the years.

On successfully completing the DAAV's on the 16/12/15. A part of me thought "great" I can drink like normal people do now. So, I've had a few glasses of wine on a regular basis and a bit more on Xmas. It was kind of fun and I felt kinda happy and kinda tired and kinda bored and kinda crazy and a bit nauseous.

I remembered a Chinese proverb "A sick man lives longer than a well man"

I know this is a strange thing to say but, I sort of miss my Hep C shackle. Today I am released from Hep C, but it has taught me a lot about myself and I'm proud of the disciplines I developed and practiced and I know that I want to continue practicing for the sake of both my mental and physical health.

Grant to us the serenity of mind to accept that which cannot be changed; courage to change that which can be changed, and wisdom to know the one from the other.

All the best
The following user(s) said Thank You: Life, Joy, pat1, Chejai, Jan-Dowling-facebook, Gaj, Lynne-Francis-facebook, Jaz

Drinking alcohol 7 years 1 month ago #6279

Get rid of the virus. Assess the damage. Drink (or not) accordingly.
No doctor am I.
I'm not going to screw up my new-found health. I will drink moderate amounts of really fine libations if my wife doesn't kill me for even thinking about it...
Oh well..
Mike
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Life, pat1, MtGoat

Drinking alcohol 7 years 1 month ago #6282

  • Gaj
  • Gaj's Avatar
  • Offline
  • Moderator
  • Moderator
  • Optimist :-)
  • Posts: 1436
  • Karma: 32
  • Thank you received: 3082
^^^^^

+1

I got a 8yo Margaret River Shiraz from a Santa I hadn't told. :(

......looks like it will become a 9yo (or at least a great way to share celebrating my 60th a month after finishing treatment.) :)
G3a since '78 - Dx '12 - F4 (2xHCC)
24wk Tx - PEG/Riba/Dac 2013 relapsed
24wk Tx - Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx - 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 - 22/06/17 UND
SRV12 - 27/07/17 UND
SVR24 - 26/10/17 UND
:cheer: :cheer: :cheer:

Drinking alcohol 7 years 1 month ago #6283

  • sonix
  • sonix's Avatar
  • Offline
  • Elite Member
  • Elite Member
  • Music is life
  • Posts: 165
  • Karma: 2
  • Thank you received: 359
I confess to having a couple of Stone's ginger beers on Xmas day after drinking almost nothing for the last 6 months. Tasted nice but I don't think it did me much good. I think it just amplified my tiredness from lack of sleep recently so I needed a few hours nap afterwards.

Grant to us the serenity of mind to accept that which cannot be changed; courage to change that which can be changed, and wisdom to hide the bodies of those who pissed us off. ;)
M 61yo HCV+ ~ 30 yrs Gt1a F2 VL 223,000 ALT 54 AST 42 Tx start Sof/Dac 17Dec15.
SVR4 at 7Apr16 ALT 22 AST 22
SVR12 at 9Jun16 ALT 23 AST 25
Melbourne, Australia
The following user(s) said Thank You: mgalbrai, Paul-Jarman-facebook, Chejai, Lynne-Francis-facebook, zhuk

Drinking alcohol 7 years 1 month ago #6285

I have acquired a taste for Coopers ultra light beer which had 0.05% alcohol (don't drink it a lot though) and also Holstens non-alcoholic beer....sounds gross but isn't a bad drop once you get used to it. I miss my Bacardi though :(
Lives in Bendigo, Victoria
No prior treatment Genotype 1b Fibroscan 0 (only showed a bit of a fatty liver) Diagnosed in February 2015 Currently on my last week of treatment taking led/sof Last LFT normal
Insomnia the only side effect
Undetected at 4 weeks
SVR4 - undetected - all bloods good and GP very happy
SVR12 bloods to be done at end of April 2016
SVR12 - undetected!!!

Drinking alcohol 7 years 1 month ago #6287

  • poodle
  • poodle's Avatar
  • Offline
  • Premium Member
  • Premium Member
  • Posts: 109
  • Karma: 2
  • Thank you received: 188
Wow there are some wicked members on this forum....
Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
24weeks mesochem sof/led as unsure of fibrosis status.
currently UND. No bad side effects
Have svr12 ... waiting for svr 24
I now have SVR 36 weeks.
The following user(s) said Thank You: Lynne-Francis-facebook

Drinking alcohol 7 years 4 weeks ago #7067

  • Vororo
  • Vororo's Avatar
  • Offline
  • Platinum Member
  • Platinum Member
  • Posts: 334
  • Karma: 15
  • Thank you received: 1047
Isn't it strange how this bastard virus hits different people in different ways...?

I first learned that I had the virus only in January 2015 although, now that I look back, I have probably had it for many years. Maybe even for up to about 40 years. When it was first diagnosed last January, I thought I had caught it recently because all the symptoms seemed to indicate a recent "acute" attack. But then I remembered that I had a similar (but somewhat different) "acute" attack back in 2003.Back then, my GP pointed to my high GGT results and told me to quit drinking and smoking and come back and see him if still had a problem. Also back then, I had never heard of HCV, and probably neither had my GP. HCV never came into the picture...

...This all took place in Scotland (which explains the "Oor Wullie" icon), and no doubt my GP was sick of seeing patients with "alcohol-related" problems. So anyway I quit the booze and the cigarettes, and I quickly started to feel much better. One year later, still alcohol and cigarette free, I felt absolutely great. Clearly, it was the beer+cigs that were to blame. And my GP had diagnosed the problem. A no-brainer, right? ... Oor Wullie had bin ha'en muckle tae much swalley!! So after one year of abstinence, the young Wullie slowly started hain a few drinks fae time-to-time, but he wis aye care-fool not to gae back tae his previous livels.

Fast-forward 15 years.

Just by chance, a few months after a trip abroad, Oor Wullie went tae see hus GP (a different one by now) on anither matter. The good GP was concerned that young William was losing weight and looked tired, so he ordered some LFTs... This time, bingo! HCV detected! ... Crivvens! Ahd ner a thoot a thaat! (said Wullie).

So the good GP sent Oor Wullie to a specialist who quickly ordered lots of tests - endoscopy, gastroscopy, coloscopy - the lot! Poor old Wullie had tae sit on his buckit fi a hale wik affie ah tha! But the tests came in, and bingo again - only F0/F1! No need to worry, no treatment advised at this early stage! The specialist ordered Wullie to cut out the swalley (ah jings! not again!), and advised the boy-hero to hope he would clear the virus naturally,... ah by hisell.

But also by this time, Oor Wullie wasnae as stupit as ye thunk, an he had din the ole 2+2=4 calculashun ah by hissel. An he new there was nae way he was gain tae cleer the virus natrelly. He also new that the swalley wisnae the real problem. So he got oot his pet moosie, wee Jeemie, an he startit searchin o the internet for a solution... But meenwhile, thanks tae hus specialist, Wullie had lots an lots of tests din, so fae the furst time in his life, he cood aktchelly see whit the fuk was gaen on wae hus luvver.

Heer's a wee tabel o Wullie's results fae 2015 (plees dinna spred this aroon, cus its still ah medikal-cofidenshul):
DateASTALTGGTLipaseV-LoadComment
404052600Reference
23-dec-141081806795Fatigue+Myalgia
06-jan-151261906268HCV suspected
10-jan-15139219700.2MHCV confirmed
13-jan-15280335119Stopped swalleyin
17-jan-1512722963116No swalley
23-jan-151132221526.9MStill no swalley
24-feb-1584107107No swalley + feel OK
23-mar-158413446109No swalley + feel OK
05-jul-15559137913.7MNo swalley + Feel OK
01-aug-15Resumed swalleyin
09-sep-1512719350108Still feel OK
01-oct-15Discovered FixHepC!
15-oct-1582133521351.9MSwalleyin + Feel OK
10-nov-15Started Sof+Dac
01-dec-1547634674Still swalleyin
10-dec-15475844< 15Feel great

Jus for the rekord, "swalley" in the tabel means Wullie was swallyin aboot 2 or 3 wee tins o beer per nite, on averidge. Not reelly tae much, eh Jeemie?

Enny-way, ye kin see fae this tabel tha after aboot 6 months off the swalley, Wullie's LFT figgers wer back doon tae almost resonnibel levils (but still abuv normel). An he had startit tae feel much better, maybe even kyurd. But durin ah that time, hus viral load aktchelly went up!! So if Wullie hidnae seen ah the figgers fae hissel, he micht hae thoot tha he wis reely kyurd jus like be-foor...

Ye kin also see fae the tabel that Wullie had high lipase levils, which indikates a problem wi his pancreas. But ye kin also see that cuttin oot the swalley didnae dae onything tae change the lipase levils signifikantly.

An I hope finally ye kin ah see that, even if most ay the figgers are aw skew-whiff an dinna mak much sens, the onny thung that brings doon ah the enzymes toggither is the Sof+Dac treetment... Thank god for FixHepC!

So, pittin aside aw the stupit spellin, in case you are wondering what is the point of this post, what I really want to say is that if your GP or your insurance company tell you to cut out the booze and then maybe they will think about a treatment, you have to tell them this is all wrong... Wrong, Wrong, Wrong! If you are feeling unwell with anything that even remotely relates to the liver, you have to demand a HCV test.

And if HCV is detected, you have to tell him/them that the only solution is to cut out the HCV. Forget any questions about alcohol. HCV is the primary problem! And if they tell you to wait, dinna listen cus it jus meens there skert ah PC Murdoch an the like! Nah, ye'll jus haff tae get yer ain moossie oot an dae it fi yersell, jus like Oor Wullie! Then ye'll be feeling richt as rain in jus a fuw days!


After-thought #1

For sensible advice about alcohol during treatment, please see

fixhepc.com/kunena-2015-11-10/faq.html#

After-thought #2

I'm not a medical expert, but since I am "only" F0/F1, I suspect that quite a few of my previous symptoms like losing weight (despite eating 3 meals per day) were probably due to lipase/pancreas problems. In other words, it seem that the HCV was hitting the pancreas as well as the liver, at least in my case...

After-thought #3

Come to think about it, I haven't seen anyone else post results for "lipase" in this forum. This seems a bit strange, since my gastro-hepato-specialist always seemed more concerned about my lipase levels than the other LFT results. He now seems happy enough with the latest value (down to 74, compared to a reference value of 60).

After-thought #4

Next blood tests scheduled for 4 weeks. I will report if any damage was done during Christmas and New Year...
;)

After-thought #5

Sorry for the long post!
Diagnosed Jan 2015: GT3, A0+F0/F1. Fatigue + Brain-Fog.
Started Sof+Dac from fixHepC 10-Nov-2015. NO sides.
Pre-Tx: AST 82, ALT 133, Viral Load 1 900 000.
Week4: AST 47, ALT 58. VL < 15 (unquantifiable).
Week12 (EOT): AST 30, ALT 26, VL UND
Week16 (EOT+4): AST 32, ALT 28, GGT 24, VL UND
Week28 (EOT+16): AST 26, ALT 22, GGT 24, VL UND
Ever grateful to Dr James.

Relapsed somewhere after all that... Bummer!

Jan 2018: VL 63 000 (still GT3).
The following user(s) said Thank You: LondonGirl, Chejai, 1folho, Gaj, zhuk, Vikki, Mnem

Drinking alcohol 7 years 4 weeks ago #7070

"Beer makes you feel the way you ought to feel without beer.."
-Henry Lawson

"Beer is proof that God loves us and wants us to be happy."
-Benjamin Franklin

I'll drink to that!
M
This email address is being protected from spambots. You need JavaScript enabled to view it.
forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
The following user(s) said Thank You: Life, Chejai, zhuk
Time to create page: 0.084 seconds

Copyright © 2015-2020 FixHepC

Back to Top