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Hi friends!
Thought I could post a bit about my progress.
I’m ending my week 4 and have done my basic blood tests. My liver enzymes are normal – first time in 20 years. Not so happy about some other stuff, a bit too much iron (?), K-Sedimetation high (?), blood in urin (?), S-CK high (??), S-CEA high (??)… getting viral load next week.
Observations:
Sleeping is disturbed (I rarely sleep through night in one piece) but that don’t bother me that much, I’m used to it.
This week my heart beat is irregular, I feel a lot of palpitations and VES – not a good feeling at all. It happened also before tx.
No headaches (only once in the 1st week)
My anxiety has not really gone away as I hoped for.
I have hot flashes every day :/
Worst hours for me were some 3-4 hours after taking the pills. Lightheadness or some strange feeling. But last days I didn’t feel it that much (anymore?)
Can’t really work a lot behind the computer, I start to be more anxious – no worries there because I’m a freelancer and I can adapt.So all in all, not that good but not that bad either.
Will keep you posted
Hi Hope,
Great to hear that your liver functions are back to normal, that’s a good sign that the meds are doing their job. Look forward to hearing of your VL results when you get them, I’m sure they will also be good news.
The other results don’t sound directly related to the treatment and you should discuss with a doctor whether they need further investigation so you aren’t worrying about them.It sounds like you are handling any side effects without too many concerns which is good news.
I wouldn’t be too worried about any issues not clearing up yet, you have had hep for a long time so it is unlikely that all the symptoms will just disappear immediately. And some may not be totally related but once you get rid of the virus you will be a lot healthier and can then focus on anything that is left.Wishing you a great VL result.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Great that you are doing better Hope
(and my apologies for not tracking down your thread sooner, I’ve been trying to catch up here and evidently missed you)
I can vouch for the fact that my lifelong anxiety/depression issues (which Hep can only have exacerbated!) have been lessened noticeably since I’ve been on tx…and I’m sure you will feel it lift in time too. For your worrying thoughts, I can relate its easy to get into ruminating about all the worst possible outcomes – been there and done that! I can really recommend looking into CBT and mindfulness; it will help to separate yourself from your thoughts and see that that is all they are – and more importantly you don’t have to believe every one/take them onboard if they aren’t helping you. Just a suggestion anyway
Today I had an appointment with my hepC doc and I told her I was on generic Sof/Dac. Her first reaction was…well….she was angry and suprised. Her question was how a smart, intelligent woman like me (I’m accepting marriage proposals in my inbox
) with such a fear of pills could go and purchase pills from India and started taking them. She said that she’s worried about the additives in this pills and long term effects of this additives and this combo. Well couldn’t say much about that, but I told her that it was THE TIME for me to do something regarding my hepC and that’s it. At the end of conversation she was already a bit calmer . She was like “I don’t know what to do with you”. And than she said something that suprised ME. “Come in a month, I’ll monitor you like you’re on regular treatment with us”.
I thought it’s a nice story so I’m sharing
So in a month I’ll know my viral load, they took a bunch of blood out of me. Will keep you posted.
I asked your weight because if you were really small, the standard dose will actually be larger for you. But no. Good luck on the VL test. I would like to be there when the Dr sees your results with you. Don’t be too smug!!
I love the anecdote about your GP Hope. It reminds me of the receptionist yelling “no no no” into the phone when I rang my liver clinic after doing exactly the same as you to ask if they would still monitor me.
I’m seeing you wafting in wearing a full Indian inspo outfit next appointment and perhaps a little bow on greeting you could even make sure you have a faint smell of curry. I do have a crazy humour when it comes to these shock reactions we deal with then have to water down the “horrified” person, funny how they always come around like Split said haha when you’re UND
After all these meds are from India shock horror!! I’m UND both bloods and near EOT now so feeling awesome
Wishing you well and getting those other niggles sorted too that it’s nothing serious
My bicarb is slightly over on each bloods but I am not thinking about it until EOT see what happens then once the meds have left my body
Blood in urine is so annoying huh I had that heaps in 2014 it was kidney stones and I had a lithotripsy which sorted it.
Good luck for your VL Hope again I love the anecdote about the shocked doc. Gave me a giggle xx
ArielHi Hope,
Not only were you able to organise the medication you need when your doctor couldn’t but now you’ve got her monitoring your treatment……you definitely sound like a very smart, intelligent woman to me.
G3a since ’78 – Dx ’12 – F4 (2xHCC)
24wk Tx – PEG/Riba/Dac 2013 relapsed
24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
SVR7 – 22/06/17 UND
SRV12 – 27/07/17 UND
SVR24 – 26/10/17 UND
Hi there Hope, I am so sorry to read you are having these troubles. I would see your nearest Dr, GP? and have some more tests? Who treated the bladder infection, can you contact them?
In the 2nd month of treatment, I got a chest infection, it was no fun at all! It took until the 7th (last) day for the antibiotics to do something – My GP warned me of this, don’t know if it was because I was on the HepC meds or if it was the antibiotic type/strength. (Amoxicillin) Also, which antibiotics did they prescribe? .Did your Dr say anything about how long they thought it would take to work and / or when to contact them again?
I do think you need professional advise re this, hopefully someone will be along soon., but in the meantime, I suggest you try to get to see someone and just check the urine again etc at least.
Hoping you improve soon, I feel for you
lg
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