Home › Forums › Main Forum › Patient Stories › End of Treatment – EOT › Any Post-Treatment Reflections?

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  • 1 April 2016 at 3:20 pm #14739
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    Hi Pat,

    I think we all feel fatigue nearing EOT and I can understand more after we’ve stopped the meds. I am also experiencing ‘liver twinges’ (Took my last Sofo/Led yesterday & extending with Sofo/DAC starting today). There does seem, from what I’ve read anyway, to be a slight ‘withdrawal’ from the meds that improves after a few weeks. This can be mentally as well as physically. I’ll probably be positively snail-like in June! These are strong medicines, it would be strange if we didn’t get some adjustments going on treatment and coming off?

    Glad you’re sleeping better, I think a few of us know that 4am wake up, I also had a spell of 5.20 am precisely ! Thinking of you for your SVR4 and sending my very best wishes to you from afar #flower #love #flower

    ps I have also put on weight, but it was very necessary for me, could still do with a bit more if there’s any going ;-)

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 April 2016 at 4:11 am #14842
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    12 week EOT labs tomorrow. Really feeling good. I also have my five year, thoroughly enjoyable COLONOSCOPY right afterward!!
    Things are getting sporty “down there” right about now after drinking my little “cocktail”…
    I will be making like a king tonight, getting some quality “throne time”…
    Oh well…
    m

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    4 April 2016 at 5:31 am #14844
    Avatar photojay kim
    • Topics: 3
    • Replies: 48
    • Total: 51
    • Recovery Champion
    • ★★★★
    @jay-kim

    i am pretty sure you are fine.

    please keep us posted your wonderful result.

    jay

    hep-c for 20yrs.
    GT1a. Started twinvir(sof-led) 05/03/16.
    Before tx: VL=1.7mil. AST, ALT in normal range
    2nd week of tx: VL <15. AST, ALT in normal range
    6th week of tx: VL < 15. AST, ALT in normal range

    4 April 2016 at 6:22 am #14846
    Avatar photore_roll
    • Guardian Angel
    • ★★★★★
    @re_roll
    mgalbrai wrote:

    I will be making like a king tonight, getting some quality “throne time”…

    Good luck with EOT results and the Rear Admiral, aka, analolologist doing
    his/her thing. I know the situation all too well….grandma and good old Dad
    could not beat it.

    After your anal results (who cares about the EOT results :lol: ), I’m sure you
    will enjoy not one but two, maybe three of your favorite farm house ale.

    Again Good Luck, Mike….e.

    contracted Gen 1a in the 70’s, dx in 2007…ast 27 to 35…alt 43 to 96…vl 1.2 mil to 8.6 mil.
    biopsy F-2 (2012)..pre tx results 1/23/16 ast 32, alt 46, vl 3.1 mil
    tx started 2/11/16…. lab results 2/24/16 ast 18, alt 18, vl <15 IU/ml
    28 days later………….lab results 3/9/16 ast 21, alt 21, vl UND
    56 days later………….lab results 4/6/16 ast 20, alt 22, vl UND
    139 days later………..lab results 6/29/16 ast 28, alt 30, vl UND…EOT
    SVR24

    4 April 2016 at 9:13 am #14855
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    All the Very best Mike for SVR 12 woop I have my flippin fins crossed for you
    Colonscopy yuk. Ty for reminding me hee hee my turn soon
    Splashes from Ariel
    Enjoy your throne your highness

    4 April 2016 at 11:45 am #14863
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    I will be making like a king tonight, getting some quality “throne time”…

    Although “Pico prep” is now the commonly used product, the one I had for my scope was called “Golytly”

    If ever a product was mis-named “Go-lightly” has to be it!

    YMMV

    4 April 2016 at 11:49 am #14864
    Avatar photopat1
    • Guardian Angel
    • ★★★★★
    @pat1

    always an exchange
    bad and good at the same time
    I hope there is more good than bad #flower

    gt 1a VL 6m
    F2/3 FibroScan – 9KPa in 2011 and 7KPa in 2015
    sof/dac 10 December for 12 weeks
    pre tx alt 85 ast 51
    4 wk alt 34 ast 31 UND <35
    8 wk alt 29 ast 32 UND <15
    12wk alt 25 ast 25 EOT 3.3.16
    SVR24 UND KPa5.3 F0 in normal range
    I am well
    .forever grateful to fixhepc

    4 April 2016 at 1:02 pm #14867
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    ROFL!!! I will never be able to watch that divine movie again without laughing about this James :lol:

    4 April 2016 at 1:22 pm #14871
    Avatar photoTina-Hill-facebook
    • Guardian Angel
    • ★★★★★
    @tina-hill-facebook

    :woohoo: :woohoo: <img style=illy:' /> Sorry couldn’t help myself…the devil made me do it.

    colo.png

    hb7da393e.jpg

    SVR 24

    4 April 2016 at 1:42 pm #14876
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    I will be making like a king tonight, getting some quality “throne time”

    Oh the joys ! I feel for you, It will all be over with soon #flower

    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    4 April 2016 at 2:53 pm #14878
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    “Game of Thrones”
    Act 22.4 update and thoughts:
    What goes in, must come out-a lot quicker….
    “Liquid Assets” has a new meaning.
    Invest in some Charmin stock.
    If it feels like a fart, it probably isn’t.
    The plumber “back there” is the one who wouldn’t fight for me in my quest for tx.
    I hope I didn’t piss him off too much.
    Does he really love his job?
    I hope I can keep my big mouth shut when they send me to “happy land”.
    His nurse hates me.
    Why is he dressed like he works at a slaughterhouse??
    M

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    4 April 2016 at 5:53 pm #14882
    Avatar photopoodle
    • Guardian Angel
    • ★★★★★
    @poodle

    really funny Mike, ever consider your own spot of stand up?, obviously not while your throning, good luck for ETO post testing. Always enjoy your posting, keep it coming. Iam getting down to my last 5 tablets =24weeks. Enjoyed the journey. . Jill

    Geno1a 35years fibrosis 2 or 3 different results from different hospitals ??
    24weeks mesochem sof/led as unsure of fibrosis status.
    currently UND. No bad side effects
    Have svr12 … waiting for svr 24
    I now have SVR 36 weeks.

    4 April 2016 at 8:18 pm #14891
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    No stand up comedy, maybe some sit down drama.
    I have approached my prep by following Al Capone’s advice on voting:
    Do it early. Do it often….
    I could eat a brumby about now.

    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    7 April 2016 at 2:36 am #15003
    DorianLS
    • Topics: 2
    • Replies: 19
    • Total: 21
    • Treatment Warrior
    • ★★★
    @dorianls

    The main thing I noticed is that I no longer had to lie down during the day to be able to function. That was a fantastic thing. I am a little concerned though because I have had fatigue occasionally since the end of treatment and I worry about treatment failure. But all and
    all, I’ve felt better than I have in the last 40 years…..and that’s iimpressive!

    7 April 2016 at 4:28 am #15012
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    Hi DorianLS,

    I wouldn’t be worrying that a bit of fatigue signified anything about your results just yet, when are your SVR viral load test results due?

    I notice a number of people comment on some occasional fatigue post Tx but given our collective age profile I suspect that to some extent it comes with the territory. For myself, I will be happy to live with a little of that in place of the constant overwhelming and bone-crushing fatigue I had pre Tx.

    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

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