Home Forums Main Forum Patient Stories Ariel takes the Plunge

Viewing 15 posts - 136 through 150 (of 519 total)
  • Author
    Posts
  • #12087
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    We are all cave-dwellers !
    Although I shall need to brave the harsh UK climate and get my bloods taken today
    Brrrrrrrr! :evil:

    Sending positive thoughts and happy spashes #flower #love


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12094
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks friends #love
    Be back soon just waiting on a bit of info re a sx
    Xxxxxxxx

    #12381
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Just to say
    Having a tough time
    My Daughter is safe but it’s been more than 24 hours now since I have spoken to her in the Nadi area of Fiji
    If you didn’t know the largest storm on record in the Southern Hemisphere hit Fiji full force during last night
    I’m pretty exhausted
    I managed to postpone her flights today until safe.
    She has been helping at an orphanage then this suddenly came
    This is not about hepc sorry
    Its just to say gimme a hug
    I kinda need one
    Will be okay when I get to hear her voice and this beast has buggered off and no threat it is still a category 5 and just sitting west of fiji now
    I dunno when I will get a decent nights sleep because I am alone here and watching this thing praying it will p off and not do another u turn

    But I long to talk to her and the entire country is in lock down
    I guess this qualifies for a #rant
    Apart ftom this I send all love and will catch up with your updates asap my life here settles a bit with this going on

    Attachments:
    • image-2-3-4-5-6-7-8-9-10-11-12.jpeg
    • image.png
    #12395
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    What a worry for you Ariel,
    I do hope all is well.
    When it comes to daughters, nothing can tug at your heartstrings more.
    Still, she’s not alone and probably holed up somewhere safe but maybe some communucations are down due to storm.
    Sending BIG love
    Let us know when you hear all is well
    LG xxx


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12396
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Hi Ariel,
    Sending you a virtual hug ((( ))) #love
    As a mum of course you will be very worried until you speak to her again. I know where you are coming from and as a mum myself I feel for you. I’m sure will be fine and as LG says communications may be down.
    Lots of love, debs xxxx

    #12405
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Thinking of you Ariel, yes as Mums we can relate to that level of anxiety. Wishing her a big bubble of protection and sending you big warm hugs, take care #love :)


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

    #12433
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thanks Debs, LG, chejai and friends, had contact today yes! Bit exhausted right now, but want to let you know the sx issue I had was myy BP it zoomed up to 180/130, I didn’t want to write it up until it was sorted…that all happened last Wednesday thanks to Dr James for assisting me thanks to Pat1 for your behind the scenes support, to LG and to my GP here. My BP is 127/70 now today, and I am on double bp meds…lucky huh because with the drama in Fiji woah good to have found that before that unfolded and I had no idea of this forthcoming. I haven’t slept for two nights because of it of course, tracking the thing. I still need to locate my adopted orphan daughter over there she will be fine she is 24 she is not stupid. It is a matter of the signal only one cell tower is active for the entire Viti Levu. I urge anyone who has a few bucks to chuck it towards this beautiful nation.
    It is absolutely horrific the devastation, this is the biggest storm the Southern hemisphere has ever seen. It is currently sitting West of Fiji still so I am just willing the bugger to basically bugger off still. It is a cat 4 at mo.

    My Alt and AST are fantastic…just waiting on a better more accurate VL PCR RNA result to come in now. Had it taken last Wednesday. ALT 18
    AST 21
    GGT 28
    Bili 9
    all amazingly promising…will update when the VL is in, last one was an <30 at Day 25, now last day of week 6, gawd going well it is really flying past this tx. Well thanks to all fr the big love I am fine, Splashes and good to catch up again xxxx

    #12474
    Avatar photoemilio
    • Guardian Angel
    • ★★★★★
    @emilio

    Hey Ariel

    Just been catching up on your journey and wanted to say g’day and send some love #love #flower :P , so glad your BP is now resolved sort of. Wishing you Godspeed and GodSVR and remarkable happenings. Em

    #12476
    Avatar photomgalbrai
    • Guardian Angel
    • ★★★★★
    @mgalbrai

    Ariel. Nice. Special. Sweet. Good. Magical. Loving. Witty. Mystical. I could go on and on…
    #flower


    Curehcvnow@gmail.com
    http://forums.delphiforums.com/generichcvtx

    G 1a F-1
    Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
    11/17/15 4 wk lab ALT 17 AST 16 <15
    11/18/15 Started Harvoni
    12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
    1/14/16 Fin. Tx
    7/07/16 UND SVR 24

    #12478
    Avatar photoDebs
    • Guardian Angel
    • ★★★★★
    @debs

    Glad all is well Ariel :+1:

    #12489
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    Thank you so much for the props, Mike, Em, you guys RAWK. Thanks ladies, this is gonna make everyone on the DAAs here sx just slip into oblivion okay?
    Yeah we may feel a bit off colour, a tad upset about the state of our bodies…BUT we are in good hands here and we will get better, these meds are rippers at slaying dragons, no sparkly unicorn rainbow cards needed.
    I know I have had a whine about my nearest Public hospital, but hell this puts it into perspective. here is the video of the Hosptial In Lautoka< warning, it will rip your heart out. I think I will get my VL in tomoz...crossing my fingers and toes, flippers and fins, and I aam forcing myself to go for a wave this weekend. This event has given me a right old kick up the proverbial, well a prod with neptunes fork into action.... https://www.youtube.com/watch?v=VsJ0AVL2iH0

    #12510
    Avatar photoLondonGirl
    • Guardian Angel
    • ★★★★★
    @londongirl

    crossing flippers and finns

    :lol:

    Good luck with your VL result #flower
    Sending #love to you and your daughter


    GT1a Dec14 F2/8.7 VL 900000-2.5M
    Jan16 Hepcivir-L MonkMed/Redemption
    Baseline: VL 913575 Alt 76 Platelets low
    Wk2 VL1157 Alt 23
    DET Wk 8 VL 32 Alt19 ‘In the slow lane’
    June16 Fibro 5.7 F0/1 LIF 1.5
    Wk 11 VL<12 Alt 13 Det/Unq
    Extending tx 12 wks Mylan Sofo/Dac MonkMed
    Wk 14 VL <12 Det/Unq
    Wk 16 VL UNDETECTED
    Wk 22 + 4 Wks Sunprevir FixHepC
    Wk 24 UNDETECTED Alt 13
    Wk 12 post tx SVR12 Wk 26 SVR24
    Thank-you Tim, Dr Debasis @ MonkMed & Dr Freeman @ Fix HepC

    #12555
    Avatar photoAriel
    • Guardian Angel
    • ★★★★★
    @ariel

    #flower #flower #flower #flower #flower #flower
    UND
    week 5-6 ish test
    Repeat: UND
    I REPEAT UND
    Ariel is making whirlpools as she types!!!!

    Thankyou Dr James Greg J and team at FixHepC
    RAWK!!!!!
    I’m off to hug people and trees and random dolphins
    Love you all!
    Ariel who is now overtreating to the death of nothing anyway
    Yes !!!!!!
    Stoked is not just for surfers but I ain’t telling them ha!!!

    Best day of the last five years

    Attachments:
    • image-2-3-4-5-6-7-8-9-10-11-12-13.jpeg
    • image-2-3-4-5-6-7-8-9-10-11-12-13-14.jpeg
    #12556
    avatar876.jpegGaj
    • Guardian Angel
    • ★★★★★
    @gaj

    :woohoo: Hey, congratulations Arial!!!!! :woohoo:


    G3a since ’78 – Dx ’12 – F4 (2xHCC)
    24wk Tx – PEG/Riba/Dac 2013 relapsed
    24wk Tx – Generic Sof/Dac/Riba 2015/16 relapsed
    16wk Tx – 12/01/17 -> 03/05/17 NS3/NS5a + Generic Sof
    SVR7 – 22/06/17 UND
    SRV12 – 27/07/17 UND
    SVR24 – 26/10/17 UND
    :cheer: :cheer: :cheer:

    #12558
    Avatar photoChejai
    • Guardian Angel
    • ★★★★★
    @chejai

    Ariel, so glad you were able to make contact with your daughter, hope she continues to be safe and well – wishing the same for all those there in Fiji devastated by this. It’s hard to get my head around “winds @ 230 km/p/h and gusts as strong as 325 km/p/h”!
    A reminder of Cyclone Pam destroying Vanuatu last year – it’s always so heartbreaking, especially how isolated they become with no power lines and mobile towers, weather too wild to access by water or flight.

    I’m always relieved but surprised how low the death toll is in the wake of such extraordinary devastation. So, I’ve been reading why and apparently it’s to do with the way the natives construct their huts and the materials they use. They have been living with cyclones forever, using lightweight things like bamboo and pandanus, woven together – not using nails and heavy masonry and not creating heavy pressure within because they’re porous. So, it’s the building materials in places hit by cyclones that cause the most damage and injury to people!
    Also, apparently another big ‘saviour’ was SMS alerts, almost everyone has a mobile there and it proved to be the one thing to alert people to prepare themselves! That’s awesome :)

    Anyway Ariel, hope you’re feeling better and getting a chance to get those results you’re waiting for.

    Sending you hugs and #love #love #flower


    QLD Australia ☀️
    G3a HCV 35 yrs Tx naive
    Started Sof/Dac 13/01/16

    Dec ’15
    AST 70
    ALT 89
    GGT 124
    Fibroscore 8.5
    F1-F2
    13 Feb’16 VL UND #woohoo!
    AST 24
    ALT 26
    GGT 50H

Viewing 15 posts - 136 through 150 (of 519 total)
  • You must be logged in to reply to this topic.