Hi Debs thanks so much for your popping by
I was stoked to read how you’re travelling
I’m feeling tired at the moment its good to let my body rest
Some of the stress in my life which has snuck in via the HCV brain alley is being removed as my clear thought and articulate voice returns
I’m really quite surprised at just how everything is starting to fall into place
I remember explaining my feelings by likening my life to a big jigsaw puzzle which I could do but although the pieces were the right ones I just couldn’t slot them into their positions
Well they are slotting in now one by one
Some of that’s easy and some a bit confronting as I work through my big picture
Moving forward I am looking forward to working again, possibly will need to sell up my home too, hopefully can wait until after tx, and downsize a lot.
Only can be better as I move along the track to wellness.
And here is one of my anthems and credos
Again it’s from a surf culture Film
The famous Morning of the Earth
This is Simple Ben

http://youtu.be/S75a00owFFA

Thanks Magpie and CJ and Debs and other friends
What a superb soundtrack for a film it’s really my favourite so grounding and uplifting all at once
Up too early here a lot going on. Also it’s probably a good day to get my bloods done I am day 26 and see clinic next Friday with a bit of a push my VL might get through in the week….
My hair and skin are really great and I have put a kilo on its not huge but its a sign
I think a lot of HCV patients have to deal with stressful lives oh well it’s going to be okay clearing not just the virus but other unhelpful things are part of healing …….
I may as well pop in for the bloods today a bit early but I can’t wait any longer
Not much else to share just fatigue in my bod, a bit of pain not too terrible
Probs the legacy of peg/inf nothing to do with this tx anyway
Have a great weekend friends
Splashes
Ariel

Dear friends,

Thanks for the support in my messages re the interferon being given to me in 2012, when the new meds were already known about, when I had full health but for a rash, was surfing four or more days a week, and a career professional. I knew nothing of this illness, was told nothing, was told nothing about peg/inf, was told nothing about sx and well…it ruined me, but mostly when I look back now with education, no fibroscan going in, no liver damage found, the gene testing after and finding the C/T gene anyway, all this done by a different specialist of course…. and the extremely low VL going in…
I have so far had three surgeries since to fix up things. I developed abnormal lymph cells on tx…I was still detected at 13 weeks and left on it until my heart was at risk at 43 weeks…*sighs* I had no idea and no education and nobody.

Since that I have done training in Community Service at tertiary level, just too add to my qualies so I know now how to talk the right language, ( I have a Bachelor and done a Masters in my field)

I became a lobbyist and have spent three years lobbying for thee release of the DAAs. I have read everything I can get my hands on…it has been a crash course in trying to turn this around.

My stash of letters is very thick, and the frustration is enormous, I have even made phone calls to the CEO’s of the big pharma I didn’t care about the cost of the calls, I care about the cost to our lives….

I may be on DAAs now, but this is fact. It did happen. I was in a LOT of pain physically.

It is the last day of Week 4 today. I had my bloods done on Friday as I said. I feel great. yes there are some sx, but they are manageable.

I think we know so much about the human condition from this illness and these times we have been through, be it a case like mine, or a story of having a liver transplant, like a friend of mine had, which is no party that’s for sure…but they got through, yes they got through.

I think song from Cinderella sums it up, and yep it may sound’ corny’ but that’s okay too…..
Love to all out there