Beaches Treatment - Harvoni (Aus PBS)

This topic has 188 replies, 35 voices, and was last updated 8 years ago by beaches.

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15 September 2016 at 12:08 am #22972
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Thank you Sven and Meg.
Fitz you are very kind.

Pamela Anderson is one of my heroes. She is a passionate champion of ocean wildlife preservation, something close to my heart. Maybe even closer to my heart than my liver is

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
16 September 2016 at 12:55 am #22999
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Hey b,
Sorry, been outta the loop for a bit … dealing with family crisis. Sure needed some “good news” and here YOU are giving me just what I needed. Those vids and pics you shared, as well as the congratulatory ones others posted, just made me smile and give a shout of thanks for such a beautiful place to call home and such beauties as you and the rest of the creatures of the sea we all share it with …. Thanks beaches, GREAT NEWS!

Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
16 September 2016 at 2:29 am #23004
beaches
- Topics: 10
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- Total: 760
- Guardian Angel
@beaches
Thanks m8
Hope all is well with you now
Fishy smiles from me

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
16 September 2016 at 2:44 am #23007
MtGoat
- Topics: 5
- Replies: 74
- Total: 79
- Recovery Champion
@mtgoat
Yay Beaches!!! So glad to see this great news!

Cheers
3a for 35 years
Dx 1996, tx naive, ALT 46 AST 38 VL 140K
Started Sof/Dac 1/23/16
Kingswood generics AUS
2/19/16 4wk lab HCV Undetected ALT 14 AST 19
EOT 6/1/2016
TX was 18 wks (w/some 1/2 doses & 1 skip dose after 11 wks
while waiting for +6 wks to arrive)
SVR4 6/30/16
SVR12
SVR24 Redeemed
21 September 2016 at 11:22 am #23179
Fara
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- Total: 83
- Guardian Angel
@fara
Congratulations Beaches on your SVR 12! Such great news!

HCV since 35-40yrs., GT 1a , Dx 2004; VL 4-5 mil, F2-3
Tx sof/led started 3/4/16
4wks VL <15
9 weeks VL UND, ; Alt-15,Ast-13
16 weeks VL UND Alt-20, Ast-22;
EOT 24 wks UND
SVR 4 UND
SVR 12 UND, Alt.15, Ast. 17
SVR 24 UND
10 October 2016 at 12:32 pm #23708
beaches
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- Total: 760
- Guardian Angel
@beaches
Finally got to see the doc last Friday,
I had my 12 weeks post treatment bloods pulled at the end of August but the wait was due to my having an unexpected work commitment on the date of my original appintment.
The HepC nurse told me my results by email, but it was good to get a hard copy of everything. She said I could get retested in 6 months or so but she didn’t see the need and neither do I.

I’ll get my liver functions tested every year as part of a general health check and if anything looks strange I’ll gt it checked.

I feel like the effects of coming off the treatment have truly gone and that’s pretty cool.
A couple of observations:

The doc thought I was pretty healthy prior to starting Tx. That was probably because I generally presented that way, plus she knows I have a fairly active lifestyle. I explained that I really didn’t know that I was unwell until I got well.
It probably took 2 months to feel normal after EOT. Atter I’d finished it my resting HR went up by about 10 BPM, but now it’s back to normal. That was the most noticeable thing.

I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 October 2016 at 2:16 pm #23711
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
Life’s a beach!!
Go forth and enjoy!!
Happy for you!
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
10 October 2016 at 2:42 pm #23714
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
mgalbrai wrote:

Life’s a beach!!
Go forth and enjoy!!
Happy for you!
m

Thank you mgalbrai
Going forth and enjoying life is exactly what I plan to do.
In a bit under a year’s time I’m planning to be swimming and moochiing around the Costa Brava, and checking out some other parts of Europe, yet to be decided.

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
10 October 2016 at 2:47 pm #23715
mgalbrai
- Topics: 28
- Replies: 1,298
- Total: 1,326
- Guardian Angel
@mgalbrai
You’ve earned it. That’s a lot of goodness you’ve spread around.
This will be my last year in the salt mine.
Then, look out world…
m

Curehcvnow@gmail.com
http://forums.delphiforums.com/generichcvtx

G 1a F-1
Started tx 10/23/15 (Meso sof & led) ALT 48 AST 28 v/l 1.6 mil
11/17/15 4 wk lab ALT 17 AST 16 <15
11/18/15 Started Harvoni
12/16/15 8 wk lab ALT: 15 AST: 13 V/l UND
1/14/16 Fin. Tx
7/07/16 UND SVR 24
10 October 2016 at 4:48 pm #23717
fitz
- Topics: 9
- Replies: 490
- Total: 499
- Guardian Angel
@fitz
beaches wrote:

I feel very lucky. Lucky that I managed to hang in until these drugs became available, and lucky that I have come into contact with this awesome, diverse, global tribe. I hope that everyone has the easy time and success with the treatment that I have had.

It really feels wonderful to have those results in hand doesn’t it? “Closure”. There’s nothing like it!

So happy for you, pal!
10 October 2016 at 6:42 pm #23720
Matt-Kenney-google
- Topics: 1
- Replies: 423
- Total: 424
- Guardian Angel
@matt-kenney-google
Ahhhh freedom…

Congrats sis,
Matt

GT1a; Got it some time in the 70’s; Diagnosed @1976
Tx naive
METAVIR: A2-F2
SOT May 18, 2016: CMP: AST 162 ALT 241 VL 13000000
3 weeks after SOT: AST 27 ALT 31 VL 138
Reached EOT Aug. 10, 2016 / Received svr4 results Sept. 20, 2016: AST 22 ALT 24
Hep C RNA NOT DETECTED”
11 October 2016 at 1:38 am #23733
coral
- Topics: 8
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- Total: 606
- Guardian Angel
@coral
Such great news Beaches. I know what you mean about not knowing how unwell you are until you are well. You now have a fantastic new normal. Swimming and mooching around the Costa Brava sounds damn fine too.
11 October 2016 at 11:32 am #23744
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
The mooching will include a couple more locations in Europe, not sure which, but if there is any way I can meet up with any fellow fighters in that neck of the woods and swap stories over a meal, I would definitely be up for that, just saying. August or September next year

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
14 October 2016 at 3:07 am #23808
beaches
- Topics: 10
- Replies: 750
- Total: 760
- Guardian Angel
@beaches
Doesn’t get more official than this…

Genotype 1a
Diagnosed in 2004, had HCV for all my adult life. Until 2016!!!!
Harvoni treatment, started 19 March 2016
4 week results Bilirubin 12 down from 14 pre treatment,
Gamma 25 down from 52, ALT 19 down from 63, AST 19 down from 47,
VL <15 down from a lazy 6 million or so

EOT Results
Bilirubin 10, GGT 18, ALT 19, AST 21, VL UND

12 Weeks post EOT
Bilirubin 11, GGT 16, ALT 22, AST 20, VL UND
Cured baby
14 October 2016 at 3:15 am #23810
Hieupham
- Topics: 9
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- Total: 59
- Recovery Champion
@hieupham
Congratulations Beaches!

Nishkama Karma
C√πng nhau lo·∫°i b·ªè Vi√™m gan C tr√™n kh·∫Øp th·∫ø gi·ªõi!
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