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Hi all!
An update from me and where Im at with the treatment so far. On the 18th of Dec I will have 3 weeks left to go of the 16 weeks taking Maviret and Sofosbuvir. Things are still a bit rocky mentally and the headaches still occur, but Im almost there. I’ve lost a lot of weight (close to 10kgs) which is connected, I believe, to the depression and its associated disinterest to food, insomnia etc.
I have another general meeting with my specialist next week but I havent had a blood test for this one.I know I have to wait 3 months after the last dose to get a verdict, but should I have a test done at the end of the treatment i.e day after finishing or thereabouts (for a general overview of functions etc) or just finish it and then do the 3 month purgatory ending bloods?
I usually have to remind them of things so should I be asking for an ultrasound sometime between now and the final blood test and if so, when would you recommend is an appropriate slot along the time frame between now and mid April?
The 3 month wait feels like its gonna be intense, so does anyone have any suggestions or tactics to get through it or is it basically strap yourself in and count off the days?
Of course the result could go either way come mid April 2020, so Im wondering whether there is an existing thread, website, book or other resource available that would be informative and helpful in guiding someone through the stages, steps or realities of being left with Hep C and Cirrhosis? Something that addresses the changes in health that will occur and useful strategies to cope with the progression of the illness? Would it also be useful to yourselves and general research to create a diary of thoughts, observations and test results should that be the outcome? Remember I am a pessimist and have to prepare for any outcome as a rule of thumb, but you generously opened the door for me to try once more and have supported me through this and I would like to give back some of that energy if I can.
Anyway, I hope you all have an enjoyable and relaxing Christmas if I don’t get the chance to post again before then. Have fun with your loved ones and don’t take things too seriously!
Respect to you all
g
Hi all.
Tomorrow is the last day of the anti viral meds you so kindly gifted to me.
Please excuse my previous post as it now (reading it back to myself) seems like a frustrated and negative rant and I don’t blame the lack of reply!
Wish me luck as I enter the three month wait. I will let you all know the result when it comes so that you know where we got with the treatment.
Looking forward to regaining my sanity soon cos its been a trip down many paths!
Hope your New Year is going well so far.
Again, thank you all for being there for me, especially Dr James! You have the patience of a saint to have been able to deal with me even on a good day.
Respect
g
Hi G,
I do know from personal experience how hard it is to wait for results but today you are taking the last of your medication – so congratulations on this milestone. I used to view the waiting for results as part of the whole treatment regime. It didn’t mean that I wasn’t impatient and a bit anxious but I tried to put it into the bigger picture of the cure.
Hep C messes with our mental and emotional selves as much as our physical health. No need to apologise on its’ behalf! It’s a rollercoaster G but I hope this next bit is a smoother ride for you.
Coral
Hi there.
Can anyone tell me (from my blood test scan in a previous post) what particular item refers to my viral load (?) and how to read the result/score/figures and what they indicate compared to the desired number indicating someone is clear from the virus please? I just want to compare the first blood test I had years ago to the test I did about a month ago. Its all hieroglyphics to me!
Also, over the last couple of months, the joints of my fingers have started to become increasingly painful to the point that attempting to make a tight fist is almost impossible. A couple of my fingers (the two next to my thumb) sometimes “lock” when I’m holding/squeezing things. Any relation to Hep C or Cirrhosis or am I just getting old? I only ask as its been a reasonably quick process rather than over a long space of time.
Hope you are all well and happy. Im rostered off for three days and being a gardender (30 year green fingered obession), Ill be propagating dozens of ferns and ornamentals for the Taranaki Retreat landscape I manage and The Te Henui cemetery where I volunteer by growing specimens for them. The amazing volunteers (my mentors unofficially) have transformed the cemetery to the point that it is now a major attraction in our garden festival. Check out the news article below!
Inspirational
g
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