Home Forums Main Forum Patient Stories HCV Symptoms Cirrhosis and Resistant Hep C – New Symptoms are they serious?

Viewing 14 posts - 61 through 74 (of 74 total)
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  • #29669
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    I had a test the other day and I have an appointment on Tuesday with Anne my nurse who you spoke to a couple of weeks ago. Ill get her to provide me with all results dating back to pre treatment as well as the one I had the other day then get them up here on the forum. Out of interest and for my own education what category on the tests do I look at? Interested if anyone has an opinion on the fingers issue as well.

    ciao

    g

    #29672
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    That’s one nice looking cemetery G, these guys did a really nice job. All the best on your upcoming results.


    Making the world a better place – one patient at a time.

    #29685
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Dr James.

    Sorry about the delay in getting these results uploaded.

    g

    Attachments:
    • 20200118_125651.jpg
    • 20200118_125726.jpg
    • 20200118_125750.jpg
    • 20200118_125807.jpg
    #29686
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Barry,

    So your

    ALT has fallen = less liver damage
    INR fallen = liver making clotting factors better
    Bilirubin fallen = liver clearing toxins better
    AFP is low = no liver cancer
    Platelets have risen = less portal hypertension and splenomegaly due to less inflamed liver

    That all looks great!


    YMMV

    #29687
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Thanks for deciphering the hieroglyphs for me Dr James!

    g

    #29689
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Barry666,

    Thanks for sharing the article about the Taranaki cemetery. It must have been a lot of work but it looks beautiful. Those results look pretty good too. #flower

    #29766
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Hi there.
    I had my bloods taken the other day so I should know the verdict next week sometime, after which Ill post an update here. Trying not to get the Armageddon virus but our service has been deemed essential work so I have to occasionally go to check in on some of our people who are getting affected by the isolation. Very strange to communicate to people standing at their front door whilst I sit in a vege garden or backed up into a hedge.
    On a not so funny note I got some xrays of my fingers which have been locking up and aching for a few months now. I get psoriasis in small patches here and there on my skin which came up quite rampantly during the antiviral treatment I finished some months ago but the x-rays showed that I have psoriatic arthritis. I understand its an immune system issue and you can treat it but not cure it. I want to get the doc to prescribe something for it but I would like your opinion on what would be safe taking into account the current state of my insides.
    Hope you are all well!
    g

    #29773
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    There are quite a number of options, and to a degree they are all “suck it and see” in that some work great for some patients and not so great for others.

    The full list is here: https://www.mayoclinic.org/diseases-conditions/psoriatic-arthritis/diagnosis-treatment/drc-20354081

    We would usually start with methotrexate but that might not be the best idea in you. As you can see there are stacks of options and it’s really something best managed by a rheumatologist. Not only do they have expert skills in this area they are also allowed to use stuff GPs are not.


    YMMV

    #29811
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Hi.

    Just a quick update. I had my blood test for end of treatment viral load about 4 weeks ago but testing for covid 19 has been the priority for labs recently. Unsure as to how long it will take for the results but Ill post them when they appear.

    Hope everyone is well and happy.

    Take care

    g

    #29827
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Hi all and a special shout out to Dr James…

    My test results made their way through the queue of covid 19 samples finally and I have been informed that I have cleared the virus from my system. My Hepatology nurse rang me to let me know this and its still not quite sunk in yet.
    I really want to thank you all for putting up with me and some of my dark and pessimistic posts on the forum, and your efforts to keep me positive about the chances of destroying the virus and especially during the horrible effects that the meds delivered up to me as side effects.
    In particular, I want to thank you Dr James for extending your generosity in making the treatment possible for someone who had no hope in hell of paying for the drugs and had resigned themselves to coping with the deterioration of body and schooling up on how to best cope with that.
    You are a legend to me Dr James and have helped me to again believe that their are some good people in the world who make positive changes in peoples lives.
    Again thank you for helping me. I will now be able to more effectively and for a greater period into the future, help those who are suffering with the thoughts that lead to suicide and help them back from the brink or look after them after they entered the embrace of darkness but survived.
    again this is us and what we do: http://www.taranakiretreat.org,nz. If you are in NZ and know someone that needs our non-clinical but enbracing support, or if you yourself cant climb out of a dark hole, reach out to us through the website above.
    I will be lurking on the forum and website and hope to be able to have some input here if needed

    my unfathomable gratitude and respect to you all

    g

    This is the correspondence I received from my test if it is any use to you at all:

    Patient Details

    Patient Name: PITCAIRN, GORDON A

    NHI No: BAK7206

    Date of Birth: 18-Aug-1971

    HCV PCR RNA: <15 not detected

    Copy To:CC Doctors: MADISON, BHAKTA.

    Ordered by:CAMPBELL WHITE

    Laboratory:

    Observation date:08-May-2020

    #29828
    Avatar photoMar
    • Guardian Angel
    • ★★★★★
    @mar

    That’s amazing news Gordon, you did it #woohoo!

    Yes it was quite tough on you, but it was all worth it in the end.

    You’re a good guy and you help a lot of people, that’s why you found people like Dr James to help you.

    Enjoy your new Hep C free life :)


    Making the world a better place – one patient at a time.

    #29829
    dope-on-a-rope.jpgDr James
    • Guardian Angel
    • ★★★★★
    @fixhepc

    Hi Gordon,

    Thanks for your kind words. The timing is good. Currently, I’m dealing with a patient complaint where the complaint is basically that the patient did not like me telling them there was nothing wrong (despite the fact history has proven that to be the case) and that their self-diagnosis from Google was incorrect. It’s weird – on the one side we have life and death disease where help is appreciated. On the other we have hypochondriacs wasting their time by writing, and far more of my time by having to answer baseless complaints.

    Failing the only government-funded treatment first time around must have been shattering. It’s been a honour to be in a position to help you get the job done second time around.

    Please enjoy this video:

    https://www.youtube.com/watch?time_continue=2&v=yRf6wAR-eEY&feature=emb_logo


    YMMV

    #29838
    Avatar photocoral
    • Guardian Angel
    • ★★★★★
    @coral

    Hi Barry666,

    I’m catching up with posts and just read about your wonderful results. Such good news after a really difficult path for you. #flower

    I’m also involved in suicide prevention and suicide bereavement support across the pond from you. Dr James and the fixhepC crew have fixed us so that we can pay it forward in some way. So pleased for you Barry666….make sure you look after you while you are looking out for others. #flower

    #29846
    Avatar photobarry666
    • Topics: 2
    • Replies: 36
    • Total: 38
    • Treatment Warrior
    • ★★★
    @barry666

    Hi Coral.
    Tough work but totally worth it right? Good to hear you are in the thick of it too. Dr James is a legend and gave me hope when I had zero.
    Keep it up!
    g

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